A curious mass email from Mike Scott at Newprostatecancerinfolink

As I am on the mailing list for the New Prostate Cancer InfoLink Social Network, I regularly get emails, announcements, etc. from them on PCa–related issues. (Perhaps some of you do as well).

This morning I found in my inbox a mass email from Mike Scott over there with the following text:

Subject: Need U.S. prostate cancer patients to talk to the media

Hi folks …

I need at least a couple of U.S.-based prostate cancer patients who were diagnosed with low-risk prostate cancer (Gleason 6, PSA<10, clinical stage T1c or lower) about 5 to 10 years ago and who had an immediate radical prostatectomy. I don't care whether you are mad as heck now that you know you could have had active surveillance or you would tell the media that you'd do the immediate surgery all over again tomorrow. Ideally I'd like at least one of each. If you are willing to speak with an important healthcare journalist about this, please let me know ASAP. You can email me directly at this address


and send me a phone number too please.

Thanks

Mike

Curious. There are certainly issues here that we have discussed from time to time, with it often becoming a "vigorous" discussion, but I would think it's rather interesting that a prominent PCa figure such as Mike Scott would send out an email such as this one. And who is this "important healthcare journalist," and what is his motivation in all of this?

I took a quick look at their website:

/prostatecancerinfolink.net

but saw nothing elaborating further on this (at least not yet), so for now this may be one of those "stay tuned" sorts of things.

Perhaps we'll hear more about it as it develops, possibly more from Mike himself.

Again, curious.

I'm sure a journalist is doing an article and contacted the organization looking for PC patients that he/she could talk to. That's a pretty common way of locating "man in the street" folks to be included in an article. I also think it's good that he's looking for PC patients on both sides of the aisle.

Steven Dallas...that's great, if you only waited several months, that IS effectively "immediately" for all intents and purposes. You did not, I assume, have a second, confirmatory biopsy within that time, and it was less than 12 months from initial diagnosis until your treatment...if correct, you do fit the criteria. (I should say that you do fit the more broad notion of "immediate treatment" and probably the specific criteria Mike is looking for.)

thanks!

Double O U C H

He was fairly nice yet very unhappy about his email being posted here.

If you see the other half of my butt laying around somewhere send it back to me


MODS - this thread should probably be zapped.

Jack, yes I did the Mod thing for a year or so.

BUT, Mike Scott doesn't want anymore people from here to contact him. Read my last post.

yeah, if he was only looking for one of each, probably easy to find...especially in his site's social network.

81GyGuy, you can go back and edit out his email address from that first post of yours by using the pencil icon in the upper right hand corner of anything you post online here...although that email address is also public and posted at the PC Infolink site for anyone to access...