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Posted 5/22/2016 3:17 PM (GMT 0)
Hi all. Wanted to check in with the group as its been almost 2 months since I completed my HT. I would like to ask those who have or are using Eligard (HT) are having any effects such as mine. I felt I was gaining strength after HT, but lately I feel weaker and my stamina has decreased. I excersize everyday and keep active. The symptoms I experience now is restless legs at night. I take magnesium and zinc, but seems not to help. Of course the old night sweats are still there, but manageable. When I get up in the morning my legs feel stiff and I find it difficult to walk for a bit. One good sign is that I only have to get up to urinate twice. The second time is around 6:30 in the AM, so I may stay up. Guess thats good.I have an appointment with my oncologist in September for a PSA check. Fingers crossed. Any feedback is appreciated.
Posted 5/22/2016 3:41 PM (GMT 0)
Hello Sixpacks,

I've been on continuous ADT shots for almost three solid years now ... so, I'm right down in the trenches with you, my brother ...

That being said ... I know there are medications for "restless leg syndrome" ... ask your doctor for some advice on that.

If it's a situation of sharp leg cramps in the night, that's happened to me ... it can indicate a potassium deficiency --- when it's happened to me, I stock up on bananas and that takes care of it !

I would suggest you stretch and bend and flex your legs while still in your bed, before getting up in the morning. I think that would help alleviate some of the symptoms you are describing. Then, sit on the edge of the bed for a few moments and flex your legs and toes before standing up.

I think that your exercise routine is smart and healthy. Helps all of us --- any form of exercise --- whatever you like best --- pick an activity you like --- stay dedicated to it, year 'round.

As far as the night sweats you mentioned, Sixpacks --- here are some tips --- cool cotton sheets and cool cotton pillow cases --- you can put double pillow cases on your pillows to protect your pillows from the "night sweats" experience ---

Glass filled with ice and water by your bedside --- I have heard that some fellows put a frozen gel "ice pack" by their bedside every evening, and they use that if they wake up in the middle of the night to cool themselves down a bit.

I think there's no substitute for a bedroom ceiling fan or room fan in your bedroom, if you experience frequent night sweats.

These are some easy tips that might help you navigate through the "night sweats" you have described.

Thanks for the post, and thanks for keeping in touch, Sixpacks !

All my best,
CYCLONE FAN ~ Iowa State University
Posted 5/22/2016 4:55 PM (GMT 0)
sixpacks,
You are 74yo and exercise every day? Now that rocks big time. My HT does cause great deal of fatigue, but usually I can push through it to exercise. No leg problems on Eligard, but Zytiga seems to make everything ache.
Michael
Posted 5/22/2016 8:04 PM (GMT 0)
Guys
estradiol patches changed twice each week practically eliminated hot flushes and night sweats for me . I've heard that neurontin cures restless leg syndrome.
Good luck.
Bob
Posted 5/22/2016 9:54 PM (GMT 0)
Not sure I understand your timeline from your signature. You state 18 months of Eligard started in oct 15 but you are done two months ago (not 18 months as stated)????
Posted 5/22/2016 10:43 PM (GMT 0)
What are your current PSA and "T" (testosterone) numbers? Just because you stopped taking the shots, it can take a year or more before your "T" recovers..At 74, it may never recover..Have you had radiation treatment also?
Posted 5/23/2016 12:20 AM (GMT 0)
As indicated, I have completed my 39 treatments of HT and will be Sept before I get a psa test. Not sure if they do a T test.

Thanks to all who donated their time to my question. I will look into the drugs mentioned and continue excercize. God bless
Posted 5/23/2016 1:04 AM (GMT 0)
Okay...You had 39 treatments of radiation and hormone therapy was added as an adjunct to that. Waiting until September is okay I suppose but personally I would like to know how things were going a little sooner..Many blood labs maintain storefront offices where you can walk in, get a blood draw and order any blood work you like without a prescription. A PSA and a Testosterone test would cost you around $70. You could add a CBC and a CMP and get a complete blood work-up and analysis for maybe $125 total...Without a doctors prescription, your insurance will not cover it...
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