My first post last week.

Hi all...

My... it seems my first post caused quite a stir with one person...many thanks for the notes of support and some private emails as well.

When I was post surgery, I used the ENTIRE experience as a basis for a series of articles that I have shared across many spectrums. The point was simple and obvious ( well to me at least....I knew I should have had a physical and just didn't. That one conversation with my friend ( who had PC and did the radiation) "woke me up" and I got a physical. Had I not run into him, who knows what would have happened. I have shared this story as well in my speeches AND I have had numerous men tell me afterwards that they went to the doctor. One friend had a PSA of 9 ( he is fine). The other point is we all know that PC when caught early is highly treatable/curable. That's the point as well.

I tracked the scores for three years with a top flight Urologist at Penn and he suggested that I do the biopsy last July. He also said, that most likely had they done the biopsy three years earlier, they could very likely have not found anything. I think he was surprised when the results came back with PC.

Being new to the forum, I don't know all the lingo yet - and I am not afraid or unwilling to share ANYTHING. Please ask me. My (physical and mental) recovery is hastened by talking and sharing my story.

Thank you for allowing me to share. ( and if you don't like what I have to say, PLEASE block me...my world is bigger and more complete than you could ever imagine.)

-TC327

Post Edited (TC327) : 4/19/2017 7:15:36 PM (GMT-6)

First Sergeant RA Collins used to say "throw a rock into a pack of dogs and the guilty one comes out barking"

ed

As a a co worker used to say... when i told him once..." aw there ain't no justice'' He shot back..." thats a good thing or we'd all hang "

shouldn't point fingers...thick skin helps...heck back in the day...newbies went thru initiation rituals in most groups...betcha First Sgt Collins...{uh let me put my macho voice on} .... {there ya go}...had some initiation rites for the newbies...
On a more serious note TC...welcome to the forum...stay ez breezy...we all got cancer...just like you...no specials being offered that Im aware of...

Sounds like you will fit right in... we don't all agree with all posts anyways. One thing for sure is that we all have our own views based on our own experiences. I wish you well on your PCa journey. Take care. -JR

TC - Whether your story strikes a chord with me or not matters not. The fact that you came here to share it . . . well THAT gets my attention and thanks to you. The more folks we have here who are able to tell their own stories and share how they unfolded will continue to make this site more and more valuable to the newcomers. I especially appreciate your comment that you are willing to share ANYTHING, as some of the things we experience are not commonly discussed. I'm sort of more open about some things than others, and occasionally I find that I can help a guy who otherwise would remain needy.

I'm relatively new to all this myself. I reviewed several other sites when I was first diagnosed, and found this site, in my opinion, gave a broader and less biased wealth of information than did the others. Contributions like yours (and I hope like mine - especially the ones about the learning and choosing treatment and providers) are what makes this site great. Please stay with us. The new folks need all the help we can offer.

Gentlemen-

I had created a signature with my details and I am not sure why it is not showing up. Here it is! Is there anything else I should have on it?

______________________________________________

dx at 54
PSA elevated at age 51 and a score of 5.5. Tracked for 3 years and PSA between 4.8 and 6.3
Biopsy 7.16/ 12 cores/11 negative and 1 had 20% cancer load
GL 7 ( 3+4)
Robotic Prostatectomy 11.16.16. UPenn by Dr. David Lee
Confirmed biopsy results - Pathology ALL Clear (12 Nodes, Seminal Vesicle and Margins)
5-15% cancer in capsule and all contained
First Follow Up PSA - undetectable ( 3.17)

Welcome back TC327. I'm glad you've decided to stick around. I think your story will resonate with a whole lot of men. In fact, I see a lot of similarities with my own case 7 years ago.

Unfortunately for me, my surgery necessitated the removal of one nerve bundle. From your signature, I assume that in your case both bundles were saved. Good for you!

clocknut said...
Welcome back TC327. I'm glad you've decided to stick around. I think your story will resonate with a whole lot of men. In fact, I see a lot of similarities with my own case 7 years ago.

Unfortunately for me, my surgery necessitated the removal of one nerve bundle. From your signature, I assume that in your case both bundles were saved. Good for you!

Yes, both bundles were spared with 85% still in place. The surgery was the "nerve sparing" which I know you are all aware of.

Thank you...

TC

TC327
Great to hear back from you and see that you got your signature on OK. Just a suggestion, but you might want to edit you greeting to "Ladies and Gentlemen", because there are a lot of great caretaker females here. Your story just stirred up some real memories for me. Hopefully some others could relate. Dont think anyone will block you, as you say. Glad your world is big and glad to welcome you in ours.

Andrew-Thanks for the reminder about not "feeding". Sometimes people here say the darnest things! I sometimes get caught up with thinking up clever replies, but try to realize this site is not the place for being "too" clever.
Wings, Brother in the Battle

P.S. Just wondering what the TC327 stands for?

Post Edited (Wings of Eagles) : 4/22/2017 10:42:15 AM (GMT-6)