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Posted 2/26/2018 2:21 PM (GMT 0)
Good morning all I have recently been prescribed Zytiga for my advanced met prostate cancer.I have started on hormone shots a month ago and feel better than I have in years. My question is for anyone on Zytiga are the side effects tolerable I'm terrified of what can happen in reading the Zytiga website from cover to cover.

Gave your thread a subject line. -- PeterDisAbelard, moderator

Post Edited By Moderator (PeterDisAbelard.) : 2/26/2018 12:22:31 PM (GMT-7)

Posted 2/26/2018 7:25 PM (GMT 0)
Hello Lcitti3,

Welcome to the forum. Glad you found us. Hope we can help.

I've never had Zytiga but I can bump your question to the top of the page by saying hello. I'm sure some of the guys will step forward.
Posted 2/26/2018 7:28 PM (GMT 0)
I just noticed that we are having activity on a Zytiga thread that might answer some of your questions.

You might check this out:

ZYTIGA: Our Collective Experience
Posted 2/26/2018 9:08 PM (GMT 0)

Hello Lcitti3,

There are many fellows here on this website who have experiences with ZYTIGA.

We have worked together, as brothers in the battle, to collect our first-hand experiences.

As shown in the post above, you can simply click on the thread entitled ZYTIGA: OUR COLLECTIVE EXPERIENCES, as posted above.

Another way to find that same thread is to type in the title "ZYTIGA: OUR COLLECTIVE EXPERIENCES" into the SEARCH BOX located at the top right-hand corner of your screen.

There you will find the first-hand experiences, posted by our members.

When starting a new medication, it's important to have some encouragement.

In my case, my oncologist recommended we try ZYTIGA.

A few weeks later, he said, "Let's do some lab work to see how things are working."

My PSA began to drop within just a few weeks of beginning ZYTIGA.

It has helped many fellows, along the way --- worldwide.

I take four daily ZYTIGA pills. I recommend that you drink plenty of WATER before, during, and even after you take your prescribed dosage of ZYTIGA.

Drinking plenty of water will help reduce any feelings of nausea that may occur.

We have fellows here that have been helped by ZYTIGA for months, and even years.

In my case, I just received my 32nd monthly bottle of ZYTIGA.

It has continued to help me, for nearly three years now. I give thanks for this.

To track my progress, I started saving my empty ZYTIGA bottles.

First there were 2 or 3 ZYTIGA bottles, lined up on my shelf. Then there were 5 or 6 ... when there were 12, I knew ZYTIGA had helped me for an entire year.

Today, I give thanks for the 32 little ZYTIGA bottles, all lined up on a shelf. It is a daily reminder to me to have HOPE, and to encourage others, when they are starting a new treatment of ANY kind.

In my case, I can sincerely tell you that ZYTIGA dropped my PSA down to the lowest level I have ever seen since I was diagnosed --- even lower than when I was pursuing chemotherapy treatments.

I give thanks for these newer medications and treatments, such as XOFIGO, XTANDI, ZYTIGA, and PROVENGE --- because these treatments have helped friends of mine in this battle.

Be sure to check out the ZYTIGA: OUR COLLECTIVE EXPERIENCES thread. You will find it informative and helpful ... and best of all, written first-hand by our members here.

Let us know how ZYTIGA works for you. You have 100% of my personal support and encouragement!

Handshake, from across the miles,
CYCLONE ~ Iowa State University
Posted 2/27/2018 11:37 PM (GMT 0)
Thank you all for your response and support. I intend to beat this and will post my progress.
It's good to have a supportive Brotherhood.
Posted 2/28/2018 4:11 PM (GMT 0)
The Lupron shot (this drug has several names) will cause the side-effects, not the Zytiga. You must take the prednisone to avoid some nasty side-effects...Has your insurance company approved the Zytiga this early in your treatment?
Posted 2/28/2018 4:36 PM (GMT 0)
Took it today for the first time and yes with the prednisone,so far so good 👍. Insurance companies have approved it and advocate groups have helped in the cost also. I also get one shot of Xgena every month and a hormone shot every 6 months. Lcitti3
Posted 2/28/2018 6:04 PM (GMT 0)
Leo
Welcome to the club that we really would rather not be in. My zytiga experience is ongoing for the 41st month now still undetectable. I added a couple posts in the Zytiga our collective experinces threads. Also please find the little search box in the top blue line of this forum, and type in the phrase "Letters to the newly diagnosed" Very inspirational messages there.
That post was started by our good friend ISU Cyclone.
When you can, try to post your diagnosis and stats in the little box in your profile. You can keep that updated and it helps us in seeing where you are at and where you have been in your journey. I don't believe in luck so I will wish you good fortune and as always keep the faith!
Wings
Posted 2/28/2018 6:37 PM (GMT 0)
Thank you Wings, I will definitely look into the threads and post my progress. Leo
Posted 3/1/2018 7:26 PM (GMT 0)
Hi Leo,
In my experience, Zytiga had no worse side effects than Lupron alone. I have just begun month 55 on Zytiga! Kidney and liver function continue to be normal. The only real difference has been a lower potassium level so I supplement daily and it has helped. I realize that this is not the case for everyone. Zytiga is usually well tolerated but for some, their liver does not like it. I bruise easier than I use to. Not sure if that is the Zytiga or the Prednisone. I take 5mg 2x daily. I am told that 10 mg twice a day is the normal prescription but I have done very well on half that. Morning nausea is common after taking meds in the morning but did not last in my case. It was also very mild. Due to non-existent testosterone my brain doesn’t work as good as it use to but is okay as I was too smart to begin with. Lol 😂😂😂 Anyway, welcome to this rotten club. There are a lot of good people here. Enjoy the ride
Posted 3/1/2018 8:04 PM (GMT 0)
Thanks Todd I'm too smart for my own good too lol . I'm only on Zytiga for a few days but I have no side effects so far not even the nausea. I took the advice of one of the veterans on this thread and take the meds on an empty stomach with an entire bottle of water first thing in the morning and no nausea,unfortunately I also have the Gout so I've had a flare up and improve hoping it's not from the meds. Anyway I'm 63 and feel good otherwise.
Posted 3/2/2018 2:01 PM (GMT 0)
After my first round of Zytiga I looked in mirror thinking I would see all kinds of weird things, much like a werewolf. Nope. Just a few, like brain function and a cough, a few hot flashes, which may be from Lupron or Prednisone. Now I am going to put on my Tutu and go out and work in the yard (not really).
No side effects I cannot handle.

Mr. Bill
Posted 3/2/2018 2:48 PM (GMT 0)
Thanks Mr.Bill I can certainly handle that side effect the Werewolf was one of my favorite Universal Monsters. I'm not experiencing any adverse effects yet thanking. i thank God everyday for all my support from family and friends and now my healing online Brotherhood
I intend on beating this or at the very least lead a normal life.
Posted 3/2/2018 4:12 PM (GMT 0)
Lcitti,

Keep that positive attitude and you will win! Nobody said it was going to be easy, but attitude goes a long way. You will lead a normal life. I put my worries and concerns away and enjoy my life. You cannot let the negative overpower all the positive in your life. Sometime when you have a few moments google The Invitation Oriah Mountain Dreamer. By all means keep us posted.

Mr. Bill
Posted 3/2/2018 5:06 PM (GMT 0)
Lcitti,

I'm about a week ahead of you in the start of Zytiga. Nothing much to report in the SE realm at this point so hopefully smooth sailing on for both of us.

Bill
Posted 3/2/2018 7:06 PM (GMT 0)
Thank you Mr.Bill it was very inspirational.
Posted 3/4/2018 9:04 AM (GMT 0)

Lcitti3 said...
I took the advice of one of the veterans on this thread and take the meds on an empty stomach with an entire bottle of water first thing in the morning and no nausea,unfortunately I also have the Gout so I've had a flare up and improve hoping it's not from the meds.

Empty stomach is essential - your doc should have been all over that point. And the prednisone 5mg 2x per day (with food) is the standard at my onco.

I didn't last long on Zytiga as I had the liver issues they warn about. Someone has to be in the 2%, right?

Anyway, I suffered badly with gout for years, until the docs put me on Uloric 40mg per day. Flares since then have been non-events. I had no flares while I was on Zytiga or Xtandi (and yes, I'm on lifetime Lupron as well).
Posted 3/4/2018 2:33 PM (GMT 0)
Thanks Doctor did go over everything the full bottle of water with the Zytiga helps the most i get a burning in my stomach but it doesn't last long. I take Alopurinol for the Gout but it was my Grandsons Baptism and I cheated with a lot with food I'm not supposed eat and it caught up with me. Oh well with all the crap I have to deal with now a little indulging can be forgiven once in awhile.
Posted 3/5/2018 10:30 PM (GMT 0)
Good afternoon all,went to Doc today got my six month ELIGARD shot all results from blood work came back good PSA continues to drop all vitals are great and Zytiga has not given me any side effects as of yet. I thank you all for your continued support and inspiration.
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