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Second thoughts on IMRT and brachythrrapy

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Posted 6/26/2018 6:29 PM (GMT 0)

JNF said...
Stan your concern about the cribriform pattern is very valid. It puts you in the high risk category and studies show that there are high recurrence after surgery.

According to the ISUP, this is incorrect. Cribriform used to be part of the Gleason pattern 3 diagnosis, but was elevated to Gleason pattern 4. Thus, a man who used to be GS 3+3 is now GS 3+4. It can only change a diagnosis to high risk if 95% of the tumor was now Gleason pattern 4 (including cribriform), which is not the case here. The ISUP change actually lowers the risk level of both GS6 and GS7 diagnoses by the Will Rogers Effect.
Posted 6/26/2018 6:52 PM (GMT 0)
TA thanks for the information. I was reading studies that indicated it would elevate the risk. Apparently your info is more recent than what I was reading.
Posted 6/26/2018 7:48 PM (GMT 0)
forget SEs for now. one way to know surgery wasn't right for you is you end up getting salvage radiation anyway which can cause more collateral damage than if RT was your primary treatment.

I can't see your numbers but take a look at mine. just got back from my doctor and my PSA going into my 9th year post treatrment (I count from when testosterone returned) is again .1 undetectable.
Posted 6/27/2018 12:26 AM (GMT 0)
This whole thing has caused me much anxiety ...everything points to me doing the combo...I hsve my reasons ...one is I’m not good with anathesia and much more including signs from the lord....but one would think having Stanford and UCSF in my back yard they would be one the same page but they are not ....I had 3 reports the original no cribiform Stanford agrees no cribifirm. But UCSF and decifer say cribiform ....I have been monitored since 48years old 5.1 PSA then negative biopsy 51 5.4 PSA negative biopsy 54. 5.9 PSA decided to watch now 57 PSA in dec 2017 8.1 and now just last week 4.6 .....I wondered why the top surgeon at UCSF peter Carroll talked so much about the combo radition with me ,,,he spent 40 minutes with me and I drilled him .he said 4=times do whatever I’m comfortable with the results are the same ..8-10yesrs,,,,this man is quite the scholar ...he is 63 and has been there 32 years with 6000 under his belt ...he knows what h3cis taking about , I am glad I waited because the mono way not have been sufficient....I think once I start hopefully the anxiety will slow down ...the radiologist seems extremely confident he has been there 22 years must mean something ...thanks everyone
Posted 6/27/2018 1:24 AM (GMT 0)
I had brachytherapy in 2011 and cyberknife in 2017. I had virtually no side effect so far.
Posted 6/27/2018 1:34 AM (GMT 0)
I guess I better ask if I can handle this with only 5 or 6 hours a day sleep ..that’s all I get ...I can’t nap I wake up ..this darn anxiety has hit me hard ...and I hsve to take a pill to get that much sleep ..but i eat right and try to exercise ..thanks fir suggestions..I will get thru this ..they make big deals about everything ..all my biopsy painless ...markers omg the list of side effects page long Took 5 minutes painless I hope this will be as well

Post Edited (Stan1961) : 6/26/2018 8:16:58 PM (GMT-6)

Posted 6/27/2018 2:54 PM (GMT 0)
More sleep is definitely better for your all around health. At the same time I'd bet more a fair amount of Americans only get 5-6 hours of sleep per night. I'd say on any typical night I'm awake for at least an hour sometime between 2 and 4 am and that's with zero anxiety.

Have you seen a therapist to help cope with the anxiety?
Posted 6/27/2018 4:16 PM (GMT 0)
Just wanted to elaborate on the cribifirm thing...the dr said the tumor is high grade but I am still intermediate because they say we caught it early .this dr is big on watching and he said because of the grade we should treat it ...so the radiologist is treating it as high risk even thought he says I’m intermediate risk just to make sure ....I feel pretty good about this now .l
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