Posted 9/9/2018 4:25 PM (GMT 0)
Thought I'd check in with the G9 club. Hadn't been here in a while, I've been spending time on a couple of other sites and lost track of this one. It still appears that my cancer was beaten into a dormant stage with the help of Dr. Myers, PSA remains undetectable, Alka Phos is normal and last Axumin scan showed no active disease. I now consult with Dr. Sartor in NOLA since Snuffy's retirement and continue monthly visits for bloodwork etc. with my local medonc.
Still on triple ADT - Xtandi, Lupron, Avodart along with estradiol patch and Metfomin. Also several supplements and Meditteranean diet - the Snuffy protocol as Sartor puts it. SE's of long term ADT are significant but I'm reluctant to change anything for fear of waking the beast. So the new normal includes fatigue, dull headaches, brain fog, memory issues, etc. But I guess I'll take it over the alternative.
Dull headaches are really annoying and usually are accompanied by some heavy brain fog. I nip it in the bud with one ibuprofen at the onset which seems to knock it down for most of the day and helps me to feel better. Anyone else get these?
Anyway just checking in and plan on staying in touch.
One more cast...
Ed