Do any of there symptoms sound familiar?

Hello all - I'm new to the forums here as I'm starting to get frustrated not only with my condition but also with the inability or unwillingness of the doctors I've seen to diagnose my ills. So, here goes:

 

I have been experiencing some troublesome symptoms which could be related to Celiac Disease, IBS or something along those lines. I had to run to the ER thinking that I was having a heart attack. Pain in the chest, problems breathing, numbness in both arms followed by dizziness and feeling of blacking out. Well thankfully after stress test and CT scans and ultrasound of the heart all is fine in that area. But I still experience dizziness, feeling of fainting, some feeling of air or liquid coming back up in my chest followed by a almost state of fainting. I have realized that if I take a  gas relief pill it goes away. I also have a bad digestive tract. Food comes out sometimes exactly as it came in, such as salad and tomatoes. I don’t eat too many carbs… Just white cheddar popcorn or pretzels (no pasta , rice , potatoes). Just mainly vegetables and lean proteins. I am scared because I have not felt healthy since last September.. I am never 100%. Sometimes I walk around feeling like I have vertigo… I also get a very bad flavor in the mouth almost thinking that it could be bad breath, it does not last long just few minutes and then goes away. Could you please let me know if you have experienced any of these symptoms. I am 31 years old , not overweight I work out 5 to 6 days a week and I am also eager to become  a mom. I just want to be as healthy as possible before-hand. I have seen a couple GI docs and neither has listened to me very attentively and no diagnosis has yet been made. It is quite obvious though that I’ve got some form of a GI problem.

 

PS: I just had an endoscopy done last week which did not reveal anything alarming!!

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Thank you for your help. Anything will be appreciated.

 

Does this sound like it could be Celiac Disease?

Post Edited (axm12) : 1/19/2010 8:14:55 PM (GMT-7)

I am still waiting on blood test results as well as the ones for the endoscopy. I will post it when received. Thank you for your interest.

It will be interesting what your blood test shows. But just a heads up, I did not show in blood work for positive celiac. I had a biopsy that finally came back with a positive celiac result. Another idea that came to mind is maybe get blood work on any vitamin difficiencies. One of the signs for celiac that my doctor caught on to was that I was long on B3, B6, B12, foliac acid, and vitamin D. I guess with celiac your intestines have a hard time breaking down vitamin B's and that's a realy red flag. I now take B12 shots once a week. B12 helps rebuild damage to your intestines. Keep us posted on your blood test results.

Sounds like helicobacter pylori.

Its a nasty bacteria that burrows in the lining of your stomach & certain foods flare it up & make your symptoms worse.

I've suffered with IBS symptoms & anxiety my whole adult life. I found Gluten Free diet in the last few years has helped tremendously & I have loads of energy, no constipation, pain, wind, mucus in stools (sorry grose I know) 20 years later I've been diagnosed with Helicobacter (why the Doctors didn't check for that when I first started getting chronic diarrhoea, cramps, weight loss etc I don't know).

My Dad's always had stomach problems, we thought it was a genetic bad stomach. He recently had a breath test & confirmed he had Helicobacter, people living together catch it off each other & I had a blood test to confirm I have it. I've had a course of antibiotics but don't feel they have worked as I don't feel any different. I feel a lot better from eating a gluten free (regular painless BM's, not anaemic etc) , low dairy diet and avoiding Vinegar & tomatoes have stopped the diarrhoea. I need to fast & do a breath test to see if it the bacteria is still present. But I recommend anyone who is having tummy troubles, constipation, diarrhoea, anaemia, infertility, miscarriage, anxiety, depression, low energy get tested for Helicobacter Pylori ASAP. Its bacterial & so easily contracted, I wouldn't be surprised if 50-80% of the population have it. Good luck! Please let me know how you go?

Tash74 said...
Sounds like helicobacter pylori.

Its a nasty bacteria that burrows in the lining of your stomach & certain foods flare it up & make your symptoms worse.

...I've been diagnosed with Helicobacter (why the Doctors didn't check for that when I first started getting chronic diarrhoea, cramps, weight loss etc I don't know).

...He recently had a breath test & confirmed he had Helicobacter, people living together catch it off each other & I had a blood test to confirm I have it.

 

Tash, I had a negative test for hPylori, but not a breath test.  Has anyone heard of  false negatives with tests for hPylori? 

 

I am in my fifties and my celiac was discovered 3 years ago after complaining of stomach pain for 3 years.  Because drugs like omiprezole(Spelling?) and ranitadine(sp?) had little effect and may even have made the pain worse, my primary doctor started treating me like it was all in my head. 

I finally insisted on a GI doctor, and he found celiac. The gluten free diet helps, and by eliminating dairy, chocolate, soy, and citrus as well, teh lower abdominal part is under control.  I still have the esophageal pressure which is often combined with nausea.   After so long, I get depressed and feel like I will never feel well.  Then, for maybe a week or two, I start to feel better and get hopeful before the problems return. 

It is now made worse with seizures, other neurological problems, and doctors who point their fingers at one another and avoid me.  My celiac doctor thought he was giving me bad news when he told me it is possible that celiac is responsible for my neurological problems, but I felt like hugging him because he was the first to not say that it is all in my head!

I know there is an answer out there.  Any guesses?  Any advice on the next steps?

Thanks for the advice, but how do you find a GOOD one in Upstate NY?  Two years ago I got a referral to one and was told it was not arthritis because I had too much motion in my joints.  No explaination for the pain or the other symptoms.  Seems like the specialists talk to my primary Dr and they gang up behind the excuse of "Mental health."  The Mental Health practitioners say I am under stress from the situation, but other than that I seem to be fine. 
How do I get someone who is willing to look for him/her self?