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Fecal Bacteriotherapy for C-diff
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Celiac Disease
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ytakaty
New Member
Joined : Sep 2010
Posts : 1
Posted 9/22/2010 11:55 PM (GMT 0)
Hi, I'm new to this site and am hoping I can find a "cure" for my mom who has cronic c-diff. I'm looking for a "recipe" for the fecal transplant enema. We're wanting to do this at home and we have a "clean donor". Thanks
veteran7
New Member
Joined : Sep 2010
Posts : 5
Posted 9/23/2010 1:38 PM (GMT 0)
Wish I could help- am trying to get info as I have it myself
Razzle
Veteran Member
Joined : Aug 2007
Posts : 4415
Posted 9/25/2010 3:38 PM (GMT 0)
Have either of you tried strong probiotics, such as VSL #3? How 'bout a probiotic retention enema?
searching4hope
New Member
Joined : Oct 2010
Posts : 12
Posted 10/5/2010 8:59 AM (GMT 0)
I'm still learning about
Fecal Transfusion myself, but I found good information just reading about
FT through another forum. It's through Ulcerative Colitis > Fecal Transplant - I took the plunge! PART I, II, and III
Hope that helps :)
georgie_girl
New Member
Joined : Oct 2010
Posts : 11
Posted 4/23/2011 11:52 AM (GMT 0)
I have had a poo transplant and you can read my story at
http://thepowerofpoo.blogspot.com/
IamCurious
Veteran Member
Joined : Jan 2010
Posts : 3728
Posted 4/23/2011 7:35 PM (GMT 0)
For more detailed information, fecal transplantation is a hot topic on the ulcerative colitis forum.
Also probiotics especially S. Boulardii has been shown to displace C Diff in the intestine.
sRolfe
New Member
Joined : Jun 2011
Posts : 4
Posted 6/3/2011 10:20 PM (GMT 0)
Just wanted to pay forward…. My daughter had c diff for eight weeks after an unbelievable set of complications from a gallbladder and appendix removal. She is only 10 years old! These multiple serious complications included internal bleeding and a life flight. The doctors were working in her gut area three times and she was on heavy antibiotics as well as an acid reducer (previcid). It turns out that the acid reducer significantly increases the chances of getting C Diff when combined with antibiotics. She came home and didn't recover well. Blood and mucus were in her stool. Finally a doctor ordered a c diff test. She didn't have profuse diarrhea like most do but some new strains of C Diff don't cause much diarrhea. It still wrecks your intestines just as bad. Anyway, after eight weeks they finally diagnosed her. She had been very very active and was now extremely weak, tired, and ill. She spent hours a day in the bathroom. She was treated with flagyl but the c-diff came back after 13 days. So the doctors put her on Vancomycin. My husband and I did a lot of research on the internet. We concluded that Florastor and a fecal transplant were our best proven treatments after antibiotics. We also added Culturelle, Allign and B vitamin. We were desperate and did the transplant at home using her 13 year old brother's stool. We started this the day we finished the vancomycin and gave her 7 treatments. Three in a row and the others about
every other day. Floristor we started two days before the anti biotic ended. We probably should have done it sooner. She had 250 mg twice a day, Allign twice a day, and Culturelle once a day. The b vitamins were once or twice a day when I remembered. We did this for a full month then we have just tapered it to half. In a couple of weeks we will probably stop. We are in week five and she is doing physically pretty good. No c-diff. We are now treating her (counseling) for the trauma all this produced. It has been an awful experience. We had her treated by the best hospital and doctors in the area. We were surprised at their gaps in helping her. None of her specialists recommended Florastor or other probiotic until we mentioned it. None of them ever mentioned a fecal transplant. I am grateful however to those of you who gave us courage to try the fecal transplant. Few hints...get a hat (plastic bowl that fits in the toilet) from the hospital and put a plastic zip lock bag in it for the donor. It makes handing things easier. Remember to take the plastic flow piece out of the enema bottle. We bought a cheap blender and mixed it with saline solution using a recipe we got off the internet (be sure to use non-iodized salt). We blended until it looked like a thin chocolate shake, then strained it using a new stainless steel sink strainer and funnel into the enema bottle. Hold the bottle under warm water if it feels cold. You want the fluid to be about
body temp. We did the enema at night right before bed and she slept after. It is all a little messy and yuck....but it has given our daughter 5 weeks! Good luck to all of you!
Serenitee
Regular Member
Joined : Apr 2011
Posts : 463
Posted 6/4/2011 7:57 PM (GMT 0)
Ytakaty,
Would love to chat with you thru this site or my email address which you can find me under members. I have never met anyone that struggles with C-Diff...I had a ruptured appendix years ago, however in order to save my life they loaded me full of different I.V. form of Antibiotics. Though it saved my life I then got C-Diff and it went into Psuedomembraneous Colitis where then I almost died. Ever since this happened (in 1986), I cannot take ANY ANTIBIOTICS as within a couple days I get C-Diff.
Sorry to talk about
myself, I was just wondering if antibiotics causes your C-Diff (or was it Ur mother)? Would love to know more and try to help you.
Your Healingwell Friend,
Serenitee
________________________________________________________________________________________________________
ileostomy 3-weeks ago...Colitis...Severe I.B.S...No motility in colon...Bipolar 2/Borderline...manic-Depression...Panic Disorder...Too Many too list and too many meds to list
notsosicklygirl
Forum Moderator
Joined : Dec 2008
Posts : 17890
Posted 6/7/2011 2:52 AM (GMT 0)
This is a big topic ont he UC board. If you search for "fecal transplant" in the search box on the top right, you will find recipes and discussions. You have to use a tested donar because you can contract diseases from stool. Please be careful but they say it is a great method to treat c. diff. Have you tried vancomyacin or flagyl? I've heard flagyl isn't too good at stopping a c. diff infection, vanco is preferred. I have also heard that you can get the FB procedure done by a doctor for c. diff. You may want to do some research on that...
A lot of people on the UC board have problems with recurrent c. diff infection.
Serenitee, this post is from a year ago, I doubt ytakaty will return :(
Serenitee
Regular Member
Joined : Apr 2011
Posts : 463
Posted 6/21/2011 11:43 PM (GMT 0)
SRolfe,
I just wanted to let you know I will pray for your daughter and I'm sending get well warm wishes her way.
I got C-Diff the first time when I was 20-years old, and I am 46 now. I had a ruptured appendix and almost died, so they gave me so many different I.V. antibiotics which in turn gave me C-Diff. I was given Flagyl at first but got deathly worse and started Vancomycin for several months. I am now allergic to any and all antibiotics because of it. I have had C-Diff too many times over the years.
The only advice I can give you is be very careful in the future for any illnesses where she needs antibiotics. Even if its just for Strep-throat or an infection of any kind. Most likely she will be very prone to getting it again throughout the years.
Blessings to Ur daughter,
Your Healingwell Friend,
Serenitee
Severe Bowel Problems since 3-years old. Last month had an ileostomy.
Looger
New Member
Joined : Jun 2011
Posts : 1
Posted 6/27/2011 3:29 PM (GMT 0)
www.drmyhill.co.uk/wiki/Faecal_bacteriotherapy
Seems reasonable I think. I'm trying to find a donor myself atm. I have absolutely no Bacteroides in my gut and this is the only way to get them back. Good luck!
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