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Celiac Disease and Crohn's Help Please!

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Celiac Disease
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Posted 3/22/2011 10:28 PM (GMT 0)
Hi everyone,

My name is Kathryn and I was diagnosed with Celiac Disease in June. I've been gluten-free ever since. 48 hours after going gluten-free I started to feel significantly better. However, since September I've starting feel worse again. Diarrhea, severe abdominal cramping worse than before I gave up gluten, mouth sores, and blood in stool. My gastro. doc is currently evaluating me for Crohn's and he suspects that's what's wrong. However, after doing research online I don't think I feel as sick as people with Crohn's seem to. The diarrhea and cramping is bad, but it's not everyday, and it's much less than when I was eating gluten. Could the Celiacs still be playing up? Could I still be experiencing symptoms 9 months post gluten? I'm very strict about what I eat, and the medicines I take. I have separate utensils for cooking, but I guess there's always a chance of cross-contamination.  Anyone ever experience this?

Posted 3/23/2011 12:23 PM (GMT 0)
You may be allergic to other foods besides gluten, for example you may have a lactose intolerance to milk.

Keep a food diary to see any cause and effect and to isolate any other triggering foods.
Posted 3/24/2011 10:29 PM (GMT 0)
It is also possible that you have both. I am one of the lucky winners in the CD lottery--both Crohn's and Celiac.

Crohn's can manifest itself in many ways, so it is often hard to compare yourself to another person. Also keep in mind that those you run across online generally are in a flare or just have more severe cases of Crohn's.

Welcome to the forum! I hope you and your GI can get things sorted out.

Take care,
Posted 3/29/2011 6:09 AM (GMT 0)
I also have both CD and Celiac disease. I'm not sure if it's a lottery win, but it is what it is. Crohn's symptoms vary so far and wide. You don't have to feel just like me or anyone else with crohn's do have it. But, for your sake, let's hope that you don't. Also, your diet may be helping to tame some crohn's symptoms. I've been doing research and it seems from my findings that there is a correlation to those with crohn's and celiac disease and vice versa. It seems it isn't odd to have both...
Posted 4/6/2011 9:42 PM (GMT 0)
Thanks everyone for the great insight! I had a colonoscopy last Tue. and they did find inflammation in my sigmoid colon and rectum. I have an appt. with my GI tomorrow, and hopefully my biopsy results are in. So it might be that I'm among the lucky ones to have both Celiacs and IBD. ICK.
Posted 8/26/2011 4:03 PM (GMT 0)

I have Chrones Disease, and I have been on steriods for three years. I have had been leading a very high carb diet(finances)..I haven't been feeling so well lately and have been eating alot of foods high in gluten. I am now wondering if I have a gluten allergy that is causing a major part of my problem after doing some reading. I am going to change my diet and am on here for some helpful information. So anyone with CD too, I would be glad to hear from! I have had problems with nitrates for years..

Cindy

Posted 8/26/2011 5:22 PM (GMT 0)
cindy, I have Crohn's, too, and recently eliminated gluten from my diet. I have had very positive results. Good luck!
Posted 8/27/2011 12:59 AM (GMT 0)
I was looking at the Celiac symptoms and felt there might be a correlation. I was diagnosed with CD in 2004..CD does have broad symptoms person to person. I just made a trip to the store, and I bought a few items..There was more Gluten free products in the store than I thought..I am now worried about beauty products and vitamins..Kazbern with going Gluten free with CD how did you start off eating?
Posted 8/28/2011 2:13 AM (GMT 0)
I am on my second day of gluten free..I realized when I went through the drive thru after church I could not order anything..I went home and fixed stuff reading the labels..When I was diagnosed with CD, the doctor just sat me down and explained IBD..He never explained diet or that it could be a food allergy just gave me a bunch of pills and half of the pills over the years have made me even more sick..

Cindy
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