HealingWell
Search Close Search
☰

hypo & fibro ?

Support Forums
>
Thyroid Disorders
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 11/11/2010 1:39 AM (GMT 0)

Just wondering how many of you have hypothyroid and also has fibromyalgia?  There's so much going on with me right now I'm wondering if this is something that happens?  Aches all over body. Tingling hands. Numb finger and part of hand. Headaches. Tired like before I was dx. with hypothyroid. Endo hasn't been much help. Just keeps checking my blood and saying I'm not sure. My GP sent me to a rhym doctor who just looked at my wrists and elbows and told me I have carpal tunnel and tennis elbow in both. That was after talking to me for 15 mins. Sent me for theraphy for low back pain, to build up muscles. Didn't help. Have an appointment with new rhmy on the 18. Just wondering if what I'm feeling is normal for hypo or not.  

Posted 11/11/2010 10:55 PM (GMT 0)
Have you had an MRI of your spine? You may have a nerve impingment going on in your spine.
What's your TSH, T4 & T3 levels? Do you have Hasitmoto's Thyroiditis?
Posted 11/12/2010 9:31 PM (GMT 0)
Hi, I have been hypothyroid for about 20 years. No sign of fibromalgia yet

res
Posted 5/4/2011 3:36 AM (GMT 0)
i have had fibro for 9 years and just found out this past year i have hypo, my endro thinks they are connected and i have to have a total thyroid removed this month. hope some of the pain from the fibro will go with the thyroid gone!
Jen wink
Posted 5/30/2011 7:02 AM (GMT 0)
I have Hypo, fibro and CFS. It all seemed to go hand in hand when I was diagnosed 17 yrs ago. My system can't handle prescriptions, so I take vitamins/minerals/herbs and go for chiro, acupuncture and Thai massage. I've started to experiment with Hyperbaric Oxygen treatments as well.
I also found out that if I clean/do laundry/wash dishes with natural products, I don't have debilitating pain anymore...the pain is still there, just not as harshly. Chemical sensitivity was another 'problem' that went hand in hand with the rest of my diagnosis's.
Posted 6/4/2011 11:42 PM (GMT 0)
Wow, thank you for posting some info. I'll be heading to my doctor for more blood work and see what I can work out with him. Thank God he's a good doctor and will actually try to help me. Unlike all the other docs I've had.




OutsmartDisease said...
I had just the same symptoms you described. The reason is turned to be a combination of low T3 and low cortisol. Both Syntheroid alone and desiccated thyroid medication were not helpful. I found that a professional trigger point massage kept the pain away for about a week allowing me to have a break.

After I started with Isocort (cortisol containing adrenal support) and switched to Syntheroid combined with time-released compounding T3, ALL symptoms went away within a couple of months. Sometimes, I feel tingling and aching pain in my arms and under the armpits (typical carpal tunnel syndrome symptom), then I know that I need to balance T3 and cortisol again. Usually, time-released T3 between 10 and 40 mcg is added to the same dose of Syntheroid you are on when your TSH is between 1.0 and 1.5 (optimal range). You DO NOT need to reduce the dose of Syntheroid and replace it with T3.

It would be great to check adrenal function and cortisol levels. Even the small abnormality makes a big difference for thyroid patients. If cortisol levels are sub-optimal thyroid medication doesn’t work as it supposed to. If cortisol is too high, T3 converts into reverse T3 and the person has hypothyroid symptoms. If cortisol is too low, T3 cannot enter into the cells and the person has hypothyroid symptoms.

According to my experience, it is difficult to find the right dose of cortisol also because the body’s requirements are different depending on the physical activity. However, not everybody needs cortisol. Often some kind of adrenal support will be enough. On the other hand, cortisol is only one of many factors affecting the action of T3 and may not be your problem. There are other factors affecting conversion of T4 into T3 as well.

Dr Lowe has a book The Metabolic Treatment of Fibromyalgia and he believes that fibromyalgia is a thyroid issue due to under conversion of T4 into T3 and can be helped with using the right form of T3. I personally think that the better way to go is to identify the cause why T3 is low and try to correct it.

smilewinkgrin :-) :-) :-)
Posted 6/10/2011 3:51 PM (GMT 0)
I feel so stupid not thinking about this earlier. After several months of miserable pain, fatigue and visits to the rheumatologist, I am going back to my PCP to get my thyroid checked. I bet it is low again. I was looking on Mayo clinic website and pretty much all of the symptoms of fibromyalgia are also the symptoms of low thyroid.... Hum.......... Interesting, isn't it? Since being diagnosed with hypothyroid around menopause, I have done nothing but gain weight. Sometimes it stays steady if my TSH is real low. I am going to ask to try armour thyroid and that my T3 and T4 levels be tested along with the TSH. Something's gotta give for me.
Posted 6/22/2011 6:00 PM (GMT 0)
Wow...are we the same person? I was diagnosed with Hashimoto's in the beginning of the year and Fibro this week....same symptoms and then some....

I am still in the back and forth to between doctors...hoping for some relief...hang in there...
Posted 1/7/2012 10:32 PM (GMT 0)
I have Hypothyroid, Hashimoto's, and Fibromyalgia.  I have been dealing with this for a long time now.  I am on Levothyroxine at the moment.  I do believe they all go hand in hand.  I have to go back for a check up in feb to my endo doctor.  I go sometimes every six months, nine months, to once made it a whole year before I had to have a check up.  It just depends on what's going on and what he's monitoring.  I can't say I feel tons better espically with the fibro involved now, but I do feel better than I did 10+ years ago when all this started coming into play.  It's a journey that we go through and our stories continue to grow.  Your thyroid can affect so many different things.  It's hard to get the right dose.  I feel like mine needs to be adjusted but every time I have lab work done everything is "normal".  My question is how do these doctors know what normal is?  I mean each patient is different.  What might be a normal reading for one patient might mean the next one will need meds adjusted.  I don't get it.  He hasn't changed my dose in a long time and i plan on asking him about that and about going back on synthroid.  I really think for me I need to be on synthroid rather than the generic form.
✚ New Topic ✚ Reply