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is it common to have to keep increasing the amount of Levoxyl over time

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Thyroid Disorders
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Posted 11/20/2011 2:34 AM (GMT 0)
I've been diagnosed with hypothyroid since my first daughter was a newborn 13 yrs ago. I've never seen an endocrinologist just a GP. Lately it seems everytime the GP does a blood test, my Levoxyl has to be increased. I started at 50 micrograms and am now up to 137 micrograms daily.  I still feel cold/tired/depressed. I also have Crohns, low B12 (take shots every 10 days) and low vitamin D.  Is this need to increase dosage common? Would it be better to check in with an endocrinologist?

Thanks for any help/info.

Posted 11/21/2011 3:43 PM (GMT 0)
hello, its me again.

I would get an appointment with an endo. I don't think that its that uncommon to have your meds upped as years go by but maybe this doc isn't upping them enough. Maybe an endo will have better knowledge on the hows and whens.

I started out on 250 because of the cancer. I will stay on this high dosage until I start showing symptoms of hyper, then I will be slowly lowered until I am at an even keel. Exactly how long this will take? I don't know. I see the endo every 6 months with new blood work each time. She is also the one that is handling the deficiencies.

It takes months to get into a specialist so I would see about scheduling something soon. If nothing else it will put your mind at ease.
Posted 11/21/2011 10:19 PM (GMT 0)
Also, with Crohn's you may not be absorbing the medication normally; many people with Crohn's do have malabsorption issues (likely this is the reason for your vitamin deficiencies, too.) I also think due to this it would be better to check in with an endo who may have more experience with complicated cases.
Posted 11/22/2011 12:59 AM (GMT 0)
Thanks for responding Judy2 and mscrowbar. My Crohns diagnosis is fairly new, so I am still exploring what it means to my health as a whole. I hadn't considered that it might also affect absorption of Levoxyl.  I'll look for an endocrinologist, as you suggest. I am just so tired of feeling exhausted and cold 24/7.
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