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Hashimoto, goiter & breathing issues

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Thyroid Disorders
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Posted 8/28/2015 2:05 PM (GMT 0)
Hi everyone...31 year old female. Was diagnosed with Hashimotos a few months ago. I have a fairly large goiter (35mm) and 3 smaller ones on my thyroid. They did a barium swallow as well as x-rays on my throat and chest and saw that there is mild compression to my trachea. I have good and bad days with breathing. Some days i'm fine and some days I feel like i'm struggling for air. What's interesting is even though I feel like I can't breathe, i've checked my oxygen levels during and it's never less than 97%. My main issue is at night..i'll go to sleep feeling ok and wake up after a few hours feeling like i'm breathing fast and my heart is beating around 90-100 bmp. Once I prop up a little and take some deep breaths it usually slows down and I go back to sleep, but some nights I go through this 2,3,4 times. It's really disruptive. I can't recall the last time I slept peacefully through the night. I'm curious if anyone else gets this? I'm just worried that it's hurting my heart somehow. They did send me to a sleep study and of course it didn't really happen that night and everything came back fine.
Posted 8/28/2015 2:19 PM (GMT 0)
Hello,

What was the results of having hashi? hypo? or hyper ? do you have a TSH test to share with us ?

Do you take any thyroid medication ? How is the goiter treated? is it shrinking with Levo? or not ?
Posted 8/28/2015 2:38 PM (GMT 0)
I'm bordering hypo..she said i'm not quite full blown hypo yet. I'm not on any thyroid medicine at all and the goiter is not shrinking.
Posted 8/28/2015 3:04 PM (GMT 0)
Hi,
If they start you on Levo then there is a chance of 33.3 % for the nodules to shrink and a chance of 33.3 % for the nodules to remain with the same size and a probability of 33.3 % for the nodules to grow.

So your Doctor wants to wait until the hypo is more severe, if I were you, I would push for starting you on Levo ,specially with the symptoms you have !

Do you know what was your TSH score ?

Best,
Posted 8/28/2015 3:09 PM (GMT 0)
triiodothyronine (T3), serum 110 ng/dL

thyroxine, serum, free 0.72 ng/dL 0.75-1.54

thyroid stimulating hormone, serum 4.03 u[iU]/mL 0.50-6.00

GE use only ** for LinkLogic import when terms are not otherwise specified 195 IU/mL 0-34
Posted 8/28/2015 3:24 PM (GMT 0)
The reference range for your TSH test is outdated , the reference range set by the AACE is about 4.3 .

We are not doctors here, only a fellow patients who try to help others through our own personal experience, so I can't tell whether she has to start you on Levo with such a TSH, when I was diagnosed my TSH was above 10.

Did she tell you when will she start you on Levo ? has she tested you for hashimoto through the antibodies I listed above ?

If you have hashi, then when they start you on Levo your TSH will go down and then rise again due to the destruction caused by the antibodies to your gland, this in turn indicate the need to increase the dose , this process repeats it self several times until you reach a steady state, your aim with the TSH should be around 2-3 .

Best,
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