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anyone have success with entocort?
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Ulcerative Colitis
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sore_guts
Regular Member
Joined : Jun 2007
Posts : 186
Posted 1/24/2008 11:05 PM (GMT 0)
I am so close to remission but can't quite get there. I just want to get better but do not want to go back on prednisone. I tried Entocort once, but was flaring very badly and after being on it for 2 weeks and seeing no improvement my doc switched me to pred. I wonder if I wasn't on it long enough for it to start working. Has anyone else tried Entocort? Did it work for anyone? And how long did it take before improvement started?
Meesh
Veteran Member
Joined : May 2006
Posts : 619
Posted 1/25/2008 12:14 AM (GMT 0)
I tried it briefly, but I discovered through a blood test that I was anemic and my Remicade infusion quit working earlier than eight weeks so I was flaring again. Going into the holidays I was feeling REALLY bad. While I was undergoing iron injections my GI took me off the Entocort and upped the Prednisone again, this time to 40 mg. (I had gotten down to 5 mg every other day). I am doing better now, but the Remicade is once again not making it to eight weeks (today was, quite literally, a crappy day!), this time though my GI is willing to try a different tact, which I had been pushing for. I am getting a Remi infusion this Saturday, which will be six weeks and I'm going on a six week schedule. We're going start the taper again a few days after the Remi infusion. By the time I get back down to the point where the taper causes me trouble I will be ready for another infusion, and this time when I get low in the taper my GI says he will reintroduce the Entocort, the reasoning being it may help bridge me from the low taper dose to getting completely off the Pred. So, while I don't yet have the info you need, I am saying don't call it quits yet on the Entocort. It's focuses on the intestine and side effects aren't as widespread or as harmful as with Prednisone, so you may want to give it another shot, especially as you had some other stuff going during the previous attempt with it.
Meesh
OkieStateGirl
Regular Member
Joined : Jan 2005
Posts : 81
Posted 1/25/2008 6:33 AM (GMT 0)
I tried Entocort because I didn't want to be on pred again. The Entocort was appealing because there were few side effects. Not to discourage you but it didn't work for me. I was also on 9 mg for a little over 2 weeks. Good Luck!
expecting226
Regular Member
Joined : Jul 2007
Posts : 402
Posted 1/25/2008 1:23 PM (GMT 0)
I did a course of Entocort once for a mild flare. It worked for me. If I remember correctly, it did take about
2 weeks for it to kick in.
disco
Regular Member
Joined : Jan 2008
Posts : 154
Posted 1/25/2008 2:11 PM (GMT 0)
I take entocort and it works well for me. I never really felt any side effects from pred but this seems to be a less dangerous option.
Worked for me inside of a couple days.
jano437
Veteran Member
Joined : Jul 2005
Posts : 1622
Posted 1/25/2008 8:28 PM (GMT 0)
It worked for me, but it did take about
a month for it to kick in. Give it another try, but be patient, it does take awhile to see results
hana24
Regular Member
Joined : Dec 2007
Posts : 354
Posted 1/26/2008 2:00 AM (GMT 0)
The entocort worked for me in a matter of hours but it only lasted for about
20 days. My GI said that sometimes it doesn't work as well in the left side.
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