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Ulcerative Colitis
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Posted 2/1/2008 9:36 AM (GMT 0)

Hi everybody, I have finally plucked up the courage to join you! I have been reading postings on this forum for the past year since I was diagnosed and have found the information and support you all give to each other inspiring.

As I said I was diagnosed in March 2007 when I was in hospital after a colonoscopy and off work for nine weeks and have not really come out of the flare. I have had so many medications in that time that I am really fed up, nothing seems to be working.

I am off work at the moment as I have been put on 60mg Prednisolone and they are making me feel really weird. I am also taking 175mg Azathioprine. I am an primary school teacher, teaching 4 & 5 year olds which I love, I have a very supportive headteacher and colleagues who know about my condition and at the moment I am being allowed to get to work 'when I can' which is usually late and I hate it. I do not really know what is going to happen next but have a visit to my consultant at the hospital on Friday. Sorry my first posting was so long but thanks for listening.

Posted 2/1/2008 10:29 AM (GMT 0)
oh excellent some one from uk, email me,

ceri.bligh@btopenworld.com

 

Posted 2/1/2008 12:02 PM (GMT 0)
Hi, welcome to HW and thank you for taking the time to introduce yourself! :) I'm so sorry you are having a rough time at the moment. What is the extent of your Uc do you know? Is it thru out your whole colon or limited? I'm sure you already know, but yes we are a caring group of people with such a wide array of knowledge and in my opinion - there is no better support forum on the web!
Posted 2/1/2008 5:39 PM (GMT 0)
maddypoo,

Welcome to the boards...we can all identify with your symptoms as you already know. It's great that you've made a commitment to become a part of the HealingWell family...welcome.

btw.

I was born in Lewisham and lived in SE18

NBT
Posted 2/1/2008 8:34 PM (GMT 0)
Hi Maddy poo i'm glad you finally plucked up the courage to join us.You've nothing to be scared of we're all friends here, going through the same things on a daily basis.How bad is your UC.Is it spread throughout the colon or just lower down.Maybe rectal meds like 5-asa enemas would really help you get this under control.They will usually help with the frequency and urgency.
Glad you joined us.
Marty
Posted 2/2/2008 9:46 AM (GMT 0)

Oh I am so excited to get replies!! tongue My colitis is left sided and severe, I have tried taking the enemas but haven't been able to keep them in long enough (apart from the Colifoam one with the syringe) but at the moment I have piles so I cannot even go near there!

I have used lots of the information posted on here to bombard my consultant with. I was so desperate a few weeks ago that I asked to be considered for the J Pouch surgery. I don't know whether I really wanted it or just to jolt them into doing something other than experimenting with drugs. Needless to say he was shocked that I was considering it so soon and said there are a number of things we can do first before we have to take the surgery road.I also asked about Remicade but he said that we are not currently in the programme for this medication. So I have to have bloods taken and meet him again next Friday for a further discussion and to see whether the higher dose of Pred has done anything (as yet slowed down the number of times I go and no blood). I was taking Colazide x9 a day, Omneprazole, Prednisolone 15mg, Azathioprine 125mg. I now no longer take the Colazide (not making any difference to anything) and higher doses of the other two. Thanks for you welcoming arms.

Posted 2/3/2008 4:31 AM (GMT 0)
Maddypoo- what does your GI mean by your not in the program for Remicade?

I had Remicade a couple of times and it really helped to stop flares and keep me in remission.

Welcome to HW and good luck with everything.


UChick
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