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waiting for colonoscopy results. Cruelty

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Ulcerative Colitis
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Posted 3/10/2008 7:58 PM (GMT 0)
I had a colonoscopy last week. I was told to call this morning for the biopsy results. I called about 9:00 AM The uncaring phone-answerer said a nurse would have to call and they were all busy. It is now almost 3:00. I am still pacing the floor in agony waiting to hear. I called again and another uncaring individual said they got my message this AM and will call when they are ready. I asked her if she had ever been in the situation of waiting for test results to see if you have cancer or not. She didn't say anything. Then she said they may not even call today if they are too busy. I am worried that since it seems only a NURSE can call, they might have found cancer. I have been up all night worrying, I am worried sick, and they treat me like I am bothering them.

Some of you have seen my recent posts about the GI himself and said I should get another. But here, they are all in big groups. I had bad luck with the other big group so I can't go to any of them. The man wanted to cut my colon out and I have never even been on any drugs yet. He was also going to taper my pred from 40 to 10 and that is after I talked him into tapering in the first place since my symptoms were long since gone. I noticed he is not with that group anymore.

Why can't they just call?

Posted 3/10/2008 8:55 PM (GMT 0)
No medical office I've ever known lets receptionists or office staff give test results. All of my doctor's offices return calls between 4 and 5 in the afternoon, after they finish seeing patients.

I know it's hard to wait, but try to relax. The odds are overwhelmingly in favor of a negative result.

Hugs.
Posted 3/10/2008 9:10 PM (GMT 0)
it's very hard to wait!! After my Kidney biopsy, I had to wait another 5 days after when I thought I would. The Dr. was nice, he was the one that called me to tell me the results were going to be delayed. I cried my eyes out when I got off the phone but it does happen and it is torture to wait.

I also have to wait month to month to find out if my kidney's are getting better and it is awful, I feel like I am living month to month, just waiting to find out about my test results.

Please let us know how it goes!
Posted 3/10/2008 9:46 PM (GMT 0)
Oh I HATE that feeling! Of being on pins and needles waiting for the nurses or docs to call. Excruciating! Luckily, all my docs and staff are caring enough and don't treat me poorly. Sometimes my GI will call himself if I having a rather rough time. Hang in there, I know it's tough...
Posted 3/11/2008 3:28 PM (GMT 0)

I finally got my results. Negative.

The report also lists remission,  as he told my son in the waiting room. My son said the other doctors went up to the families and talked to them. Mine just came to the doorway raised his hand from across the room and said "Everything's fine. Shes in remission. See you in two years." and left. I don't know where he gets remission. I missed the first chance I ever had to go to a hockey game Saturday night because of all day D and I have been bleeding and having D daily since early December.

The report also listed "stay on Asacol." When I went in to set up the colonoscopy only two days before it, The GI and I had a discussion about that. I told him my insurance would not let me have Asacol. He said "we'll just give you Azulfadene. That's cheap." I told him I had tried it in 1983 and just one pill had cause  uncontrollable vomiting and then he became "Dr Backing Out The Door." I can't believe he did not remember that and put "stay on Asacol" on my report. I don't think he even knows who I am or cares.

I have moved a lot. Past GI's have said scope every one year. This guy says two. I was glad about that. I thought they must have found new research or something that says two years is often enough. ( I have pancolitis x32 years) But now I wonder if it is just because his practice is so very big and he has just too many patients. He does seem to have an awful lot of staff. He is also on TV sometimes and give a lot of seminars and talks.

I wish I could take the advice some of you have given me and get another GI, but I looked on my insurance website and I have to go to this guy.

Thanks for reading my posts. Hopefully all is over for 2 years.

Thank you

Posted 3/11/2008 5:33 PM (GMT 0)
I'm glad at least it was negative. And I'm sorry that you are stuck with "that kind" of doctor. It gets so frustrating to deal with a doctor that doesn't take the time. I can understand that doctors don't remember the specifics of a case because that would be virtually impossible, but if you had a bad reaction to one medication then it should be in your chart in which all they have to do is take a look. Does this doc have any other partners that you can see instead of him? Or is it set in stone that HE is the doc you have to see?
Posted 3/11/2008 7:27 PM (GMT 0)
I don't know, but even if I was allowed to see one of his partners, I would feel "funny" passing him in the hall at the office or seeing him at the hospital or something. On the other hand, the way he is, he probably wouldn't even recogzine me!
Posted 3/11/2008 9:02 PM (GMT 0)
Who cares what he thinks! This is your health..not his. I had to switch GIs b/c my first was awful. My primary had set me up w/ him. I saw him for about a year before I realized I was getting bad advice and not being taken seriously.

Hang in there!!!!
Posted 3/11/2008 11:48 PM (GMT 0)
I get so sick of hearing about these un-caring Drs and dealing with them.Couldn't even spare one moment to speak to your family. The nerve of that guy.If you must stay with him,you will have to get bossier. Ask him if he would like someone in his family to be treated that way. I know that sounds harsh. But like Tabitha said,it's YOUR health and YOUR life. And you're right.......he wouldn't recognize your face,he sees butts all day,lol.
Posted 3/12/2008 1:36 AM (GMT 0)
Sees butts all day!!!!! I'm cheered up.
Posted 3/12/2008 1:36 AM (GMT 0)

UC since'76 said...

I told him I had tried it in 1983 and just one pill had cause  uncontrollable vomiting and then he became "Dr Backing Out The Door."


Lol! Love that line. It's not funny really, (it's obviously really crappy and stressful that you had to deal with such a prick), I just liked your choice of words and I so know what you mean, when they become "Dr. Backing Out The Door."

Is there any way you can get a new doctor? This guy sounds like a total incompetent jerk, and you deserve so much better. I am switching to my 3rd GI next week. The first two sucked. They were both in the same practice and at first I worried a little if it would be awkward seeing my 1st in the hallway after switching to the 2nd guy, but I never even ended up seeing him, and even if I had I know it wouldn't have been a big deal. Plus, like others have said, it's your health and your body! You really have no need to worry about his feelings. And, he probably has so many patients he wouldn't even recognize you just passing by.

Some doctors will give their patients samples of Asacol or other meds if they can't afford them. How come your insurance won't cover Asacol? You may also want to check with the Asacol manufacturer to see if they have any assistance programs for people who can't afford the meds.

Posted 3/12/2008 4:15 AM (GMT 0)
If you like that, you wil probably like "dancing around the doctor's ego." It is when you know your body, your health, your disease, what you need, and you have to make him think it was his idea.

They will cover Asacol. It's just that they give me a strict yearly dollar amount on prescription drugs. Asacol is so expensive that when you add it to the other stuff I have to take I don't have much "leeway". If I get sick late in the year, I will have used up all my drug benefits. I have to "budget." If I knew for a fact I would not get any illnesses all year I could probably afford the Asacol. It is nerve-wracking trying to decide what to do.

Also, I have always had symptoms that don't bother me too much but Asacol made them a little worse and made me feel bad all over. It's just that I think I heard it decreases your chance of getting cancer.

I just had a bad thought. What if my doctor reads this forum and figures out it's me? Or recognizes himself! lol
Posted 3/12/2008 4:02 PM (GMT 0)
Wow... you've been thru alot in the last few days... the best thing to do when waitting for results is not to panic tho.. I've learned that panicing can only make things <pain> worse. :O( So glad you got your results and are ok!
I am with Manulife and they cover Asacol without a drug cap. I consider myself very lucky after reading your story. I had been in remission using Asacol pretty much since I was diagnosed and prescribed it. Only a week ago Monday I have had a flare up that seems very presistant. I am doubling the Asacol to see what happens.

LOL, and I hope your Doctor DOES recognized himself on here.. lol will be a good laugh for us and maybe and eye opener for him.
Posted 3/12/2008 4:13 PM (GMT 0)
Have you checked with the makers of Asacol about a discount program? I know we've posted about it in the past. I'll try to dig up the post...

I hope things get better!
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