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OT: Anyone had mono?

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Posted 9/22/2007 4:42 AM (GMT 0)
I've had mono twice, the third time was actually mis diagnosed and the beginning of my Ascending Colonijitis, I remember my throat was stuffed. Dr's also did the same to me made me out to be a hypochondriac until i was so sick i didn't eat for 3wks. Sorry to hear about ur ideal. I can't understand y Dr's let things get so out o f control. they wonder why there are so many people in our emergency rooms. Only thing that seemed to work 4 my sore throat was warm salty water. Tastes disgusting and you hav to do it every 30mins but it does eventually work. as for the ears I still hav a ringing in my ears. I buy garlic liquid capsules cut them open and pour them into my ear, and stuff my ear with cotton balls so it doesn't fall out, b4 i go to sleep. It has reduced my sore ear symptoms almost completely, but like all natural stuff you hav 2 do it everyday without fail.
Hope you're symptoms remain in remission. Just ry to eat heaps of vegies, and get lots of rest, if yo unot ready to go back to work after a wk don't go thats 1 thing i've learned. Don't get back into life unless your body is totally reted and restored otherwise you will relapse
Posted 9/22/2007 12:52 PM (GMT 0)
Oh wow! Your throat really did hurt! Hope you are continuing to feel better!
Posted 9/24/2007 4:33 PM (GMT 0)
Yeah, it really did hurt. lol. I'm continuing to get my energy back. It seems like my throat hurts more now than it did when I first got home...but it still doesn't hurt very much.

After not having a BM at all for 3 days while in the hospital, I've been having D every day once or twice since getting home. And yesterday I had 4 BMs. Before I went to the hospital I was having 3-5 loose BMs a day. I didn't take my Rowasa for about a week b/c I felt so miserable, but I just did one last night. I'm wondering if the D is from the antibiotics (Augmentin and they gave me IV antibiotics in the hospital), the pain meds (tylenol w/codeine), the surgery in general or just my UC deciding to get worse on its own. Also, my anus area is super itchy and kind of hurts to wipe...not sure what's causing it...any ideas? I've also had this weird left-sided pain, right under my ribs, for about the past 2 weeks...it's not very bad, but it seems worse when I inhale deeply. It comes and goes.
Posted 9/24/2007 4:44 PM (GMT 0)
The itching is likely from all the antibiotics you've been dosed with. Can you tolerate any yogurt right now? That would likely help to relieve it within a few hrs. I think you need to get back on UC meds ASAP. For me pain below lowest left rib indicates UC flaring up in descending colon-- it comes & goes rather than hurting continuously. Drink plenty of fluids & try to ease back to a balanced diet, rest as much as possible-- I think you'll need another few weeks to get back on track because you really have been thru a lot btw meds & tonsillectomy. Take care! / Old Hat
Posted 9/24/2007 5:25 PM (GMT 0)
Hi, Old Hat! Thanks for the advice. I've been eating yogurt every day since my surgery...making sure to eat it at least 2 hours after I take my antibiotics. I missed two days of Asacol b/c of the surgery, but have been taking it since then. I hope my UC isn't spreading again. I've only been able to eat soft foods so far, so maybe that's causing some D, too. My ENT told me to eat soft foods for 2 weeks. I guess I'll just hope the Rowasa works...sometimes I feel like it gives me more D than without it. I've already had D 3 times this morning, after using Rowasa last night.

I hope you're doing well!
Posted 9/24/2007 6:47 PM (GMT 0)
Sara14-- your good wishes are much appreciated. I'm doing o.k. because the Colazal is working the whole way down these past 2 months. If I had to keep using Rowasa, I would definitely be passing more liquid bms; it has always affected me that way! It would slowly eliminate the urgency & bleeding, but it never helps with solidification of waste if/when I have to use it daily. From what my gastro has said about it over time, this is the way it affects many UC patients, not just me. That's one reason my gastro encouraged me to try Colazal before it got full FDA approval & I'm basically glad I did. I just cross my fingers that it keeps on helping at present dose & hope to go back on "step-up, step-down" approach by year's end. My gastro thinks it's possible, but that I shouldn't push things after the recent flare. Makes sense to me, too. Hope you can vary your diet a bit more as throat heals & get back with your multivitamin as well. Keep us posted! / Old Hat

Posted 9/24/2007 11:16 PM (GMT 0)
Old Hat - I'm glad to hear you're doing pretty well. So, does Colazal work all the way down through the rectum? The Asacol doesn't seem to make it down that far for me. What exactly is the "step-up, step-down" approach? Are you on a maintenance dose of Rowasa? Sorry for all the questions. It seems like you're very knowledgable about all of this and it also seems like you have a really good GI.

Edit: I forgot to mention before that I haven't smoked for about 12 days now either...I wasn't planning on quitting, but my throat hurt so bad that I didn't want the smoking to irritate it further and I don't want it to screw anything up while it's healing either. Now that I've gone this long, I might try to quit...but I really, really hope that isn't making my UC worse. Smoking never really seemed to help me though.

Posted 9/25/2007 2:27 PM (GMT 0)
Quitting smoking FOREVER is an extremely important thing to do for your lungs, heart, vascular system, brain, mouth/throat-- let alone intestines. So great if you're on your way to total abstention!                                                                               

Yes, Colazal works all the way down for me. However, UC seems to be most persistent for me in the sigmoid colon, not in the rectum-- so I can do fine with a Rowasa every month or 6 weeks when in remission on low-dose oral 5-ASA daily. For UCers with persistent inflammation in the rectum the daily (nightly) topical med seems really important. Dr. Daniel Present, who is 1 of the best IBD gastros in the country, recommends "jump-starting" healing of the rectum by using Cortifoam (10% steroid rectal foam) 2X daily for 7-10 days, then going to retention enemas. That sounds like very wise advice to me, based on my experience in treatment, & I wonder why more gastros don't catch on to it. Calming the rectum is crucial to relieving urgency. The "step-up, step-down approach" is newer thinking on maintaining remission thru variable daily dosing with existing UC meds. My gastro is also a researcher in IBD, so keeps up with latest studies, & thought it would help keep me from "maxing out" on Colazal.

Posted 9/25/2007 4:10 PM (GMT 0)
Thanks for answering all my questions. I will have to ask my gastro about Cortifoam if the inflammation in my rectum continues to persist. I have a new GI that I like a lot better than my first one, but I'm still not sure he is all that great. For example, after my c-scope a couple weeks ago, I only had inflammation in the rectum, but he just told me to continue w/the Asacol, not the Rowasa...I'm only doing the Rowasa b/c it makes sense to me.
Posted 9/25/2007 4:54 PM (GMT 0)
Yes, in your situation it does seem like Rowasa is more important. If you want to cite the D. Present info. re Cortifoam to your GI, it should still be available in transcript form on MedicalCrossfire.com-- from the archived panel discussion "Spotlight on IBD-- achieving optimum management of UC" or something close to that-- I can't swear to the exact title. I notice that a member with Crohn's colitis (pb4)frequently endorses my comments about Cortifoam's help with rectal inflammation. One can use it for up to 3 weeks w/o worry about systemic effects so I don't know why more GIs haven't caught on to it! It comes in a small, neat package & is very easy to use + the patient does not have to lie on left-side after instilling it. Phew! I feel myself getting angry that better info. re treatment options is not more easily available to us all. (Vent, vent ... ) / Old Hat (nearly 30 yrs with left-sided UC; currently on 6 Colazal daily for July flare in descending colon; should be back in remission again soon)

[P.S. That entire MedicalCrossfire panel discussion on UC is chock full of interesting info. if you have time to read it thru &/or can print out a copy to read/transport.]

Posted 9/25/2007 6:06 PM (GMT 0)
Thanks! I will definitely take a look at that panel discussion and discuss it with my GI. I really appreciate all your help and suggestions. =)
Posted 3/28/2008 3:10 AM (GMT 0)
"I've also had this weird left-sided pain, right under my ribs, for about the past 2 weeks"

Thread topic "Anyone had mono?"

Sara..Obvioulsy I reckon you had tonsil infection

Did they rule out mono..??..

I found this thread via googling Mono as my UC-Chrons Daughter tested pos

Check this out

"..Does mono have any complications?

Sometimes. The main serious concern with mono is that the spleen will enlarge and even rupture (tear open). The spleen is like a large gland. It's located in the upper part of your abdomen on the left side. It helps filter your blood.

Although a ruptured spleen is rare in people with mono, it's wise to be aware of the signs and call your doctor right away if you notice any of them.

Signs of a ruptured spleen include pain in the left upper part of your abdomen (under the left chest), feeling lightheaded, feeling like your heart is beating fast and hard, bleeding more easily than usual and having trouble breathing."

Source above info http://familydoctor.org/online/famdocen/home/common/infections/common/viral/077.html
Posted 3/28/2008 3:31 AM (GMT 0)
Hey SoCal Dad. Wow, I barely remember posting this topic! Yes, my mono test came back negative. It was a tonsil infection, a peritonsillar abscess to be exact. I ended up having to have my tonsils taken out.

Thank you for posting that information about the spleen. All of those symptoms sound like things I had months ago. I had all of those things happen after I started taking Asacol, and on and off for several months, but I haven't had any of them since September.

I hope your daughter is okay and can get over the mono soon.
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