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Remission and no meds - Hurrah

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Ulcerative Colitis
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Posted 4/4/2008 3:05 PM (GMT 0)
I haven't been visiting this forum as I used to.  The reason is very selfish. I have been doing very well.  about 3 years ago I learned about the SCD here from other forum members that exchanged information about this diet. Some defended it and some said it didn't work.  I gave it a good trial.  Only after 6 months into the diet I started to notice some improvement on my condition. One year on the diet (still taking meds) I got much better and introduced more advanced legal food.  On the second year into the diet I started to have periods of remission - no symptoms. But, at that time I did not stop taking meds, only reduced the doses.  Now on my 3rd year I have been so well for so long I decided to stop taking meds (my GI knows about it) and am doing great.  I still do not want to take risks and continue to follow the SCD fanatically, but am now eating all allowed foods which makes it much easier to bear.

I just hope that by reporting here my successful experience I may help a few of you going through the terrible effects of this terrible disease that finding no significant improvement may be determined to do something about it, even though this diet requires a very strong will power and total comitment for a long time. 

Do get better

Bob59

Posted 4/4/2008 3:09 PM (GMT 0)
Congratulations Bob! You deserve to succeed with that kind of determination, I'm glad it has worked out for you!
James
Posted 4/4/2008 3:20 PM (GMT 0)
SCD diet?
Posted 4/4/2008 4:58 PM (GMT 0)
Thanks for having the courage to post about food remedies. I appreciate your honesty about the amount of time it took to get better. I, too, hope to get off asacol, but am prepared to wait until things are better.

I do have a question. I'm doing something similar after two near death experiences with severe universal/pan colitis that required remicade and prednisone treatments (which I'm not on anymore), but not quite SCD (I'm doing the maker's diet). Do you make your own yogurt? Can you eat almonds?
Posted 4/4/2008 5:09 PM (GMT 0)
BOB59 - so very happy to hear about your success with the SCD!!! It's wonderful to hear you're doing so well.

Bigphule - SCD is the specific carbohydrate diet. Google for more info.
Posted 4/4/2008 5:41 PM (GMT 0)

 Hi Bob,

I've been following the SCD diet for 2 1/2 months, but already I've seen significant improvement. After a bad flare, I'm tapering off of prednisone and am now down to 20 mg. I haven't had any problems tapering so far and I don't expect to (although this is my first major flare in a long time). I expect I will continue to take Lialda after the prednisone course is over, but I will faithfully follow the SCD diet for as long as it takes. The diet is a miracle - it really works! I believe (and this is only my opinion) that the Specific Carbohydrate Diet and other diets like it are the only way to keep IBD under control. I know there's no cure for IBD, but drugs alone often do not maintain periods of remission for any length of time. Thank you for writing about your experience with SCD. I'm a new member and I wasn't sure if it was an acceptable topic on this forum.

EllieKate
SCD 2 1/2 months
prednisone 40 mg
Lialda 4/day
Assorted vitamins
Assorted probiotics 7/day

Posted 4/4/2008 6:23 PM (GMT 0)
Bob..thanks for the update. Happy you're feeling well!
q
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