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I have discovered something that I think will help you too. PART 1

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Ulcerative Colitis
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Posted 5/27/2008 3:12 PM (GMT 0)
Are the items you listed on the first page spices or herbs? As someone asked earlier, what are the ratios? How many times/day did you take them? How often did you do the yoga? You say that you're UC was cured by removing braces, so you'd have to use less meds than others. So, what/how much did your dad use?

p.s. xpsunny, I don't think that the moderators are discriminating against you. Can you please just answer our questions and quit arguing with the moderators? Thanks.
Posted 5/27/2008 3:16 PM (GMT 0)
I have a question for the OP, you say that you're cutting out as much sodium as you can, but peanuts by nature are high in sodium, then when they go through the roasting process they are usually salted on top of that. True you can get unsalted peanuts but for a natural food they still have a large ammount of sodium. How are you controlling your sodium intake and still eating so much natual food rich in sodium?
Posted 5/27/2008 3:45 PM (GMT 0)
Colby: great news! I to have found a "cure" . For the last six weeks I have been taking bromelain 500mg. I take 1 capsule after every meal. All of my symptoms have dissapeared. two b m's daily. Bleeding has stopped by 98%. the dietary supplement from pineapple contains magnesium trisilicate and magnesium sterate, coinsidence ? " I dont think so". My dieterary restrictions are no leaf lettuce OF ANY KIND, no corn cooked or raw and ABSOUTLY no carbonated beverages!! good luck.
Posted 5/27/2008 3:55 PM (GMT 0)
Okay....enough with the mentioning of cure....maybe let's say that "it works for you." The only real cure we know about is removal of the colon. We want our forum members to try different things that may help their symptoms to decrease, but not sure we can claim "cure" to some of these things.


Posted 5/27/2008 5:09 PM (GMT 0)

xpsunny said...
I wonder why do people take Allopathic medicines although Ayuurveda has a cure. I know many people who have been cured (includes me and my dad).

Well, I believe you answered your own question yourself, by saying "I live in India so I think the medicines which I take are not available in UK"
We don't take these therapies because they're simply not available to us.

I don't think anyone is discriminating against you at all. I don't see how you're promoting anything any more than the original OP, but I do agree that everyone should stop using the word cure so lightly. It may just be that it seems you, and others, have been cured because you've managed to find something that is keeping you in remission which is great, but it won't work for everyone, and people tend to get defensive when something they've struggled with for so long is made light of by saying "Well duh, you don't need to do all that, just do this simple little thing and you would've saved all that time!" At least that's how I see it anyway *shrug* I'm glad you've all found something that works for you aside from having surgery though! :)

Posted 5/27/2008 7:12 PM (GMT 0)

ediekristen said...

It may just be that it seems you, and others, have been cured because you've managed to find something that is keeping you in remission which is great, but it won't work for everyone, and people tend to get defensive when something they've struggled with for so long is made light of by saying "Well duh, you don't need to do all that, just do this simple little thing and you would've saved all that time!"

Exactly. This is what I was trying to say in Cfro's previous post, but I got accused of being angry and contentious, because I find throwing the word cure around offensive, and just really naive to claim it's a cure just because something may have worked for one person.

I look forward to reading this post in a few weeks and seeing how "cured" everyone becomes who has been eating heaps of canned spinach.
Posted 5/27/2008 7:20 PM (GMT 0)

Sara14 said...

Exactly. This is what I was trying to say in Cfro's previous post, but I got accused of being angry and contentious, because I find throwing the word cure around offensive, and just really naive to claim it's a cure just because something may have worked for one person.

I look forward to reading this post in a few weeks and seeing how "cured" everyone becomes who has been eating heaps of canned spinach.

Definitely! It's like when people say "Well if you didn't eat _____ then you wouldn't be sick!" Like it's really that easy.

Personally, I don't like spinach at all and leafy greens REALLY hurt my stomach; there's no way I could get myself to eat a can of it a day, or even a week. Even if it was a cure, I think I'd wait for something else! Which to some people might sound crazy or stupid but really... How many people would eat poop [for example] if they were told it would cure them? Although... Sometimes I think there might actually be a few... :P

 

Posted 5/27/2008 7:26 PM (GMT 0)
Well I have been trying this and I have to admit that even though I was skeptical in the beginning I have seen some pretty good results.  Today for the 1st time in over a year there has been no blood.  Also no mucous. The only thing is, now the poop has changed consistency to softer bordering on D which I did not have before.  So I've been researching other foods high in magnesiuim and beta carotene because maybe this much spinach is to much for my body.   But I feel strongly enough that this helping so I dont want to give up.  I've found that various types of beans are aslo high in mag.  I'm gonna try making a bean and escarole soup tonight.  Also articokes - maybe I'll have one tomorrow.  And lots of orange veges & fruits are high in beta carotene.  If nothing else, this thread has at least gotten me thinking and believing in the healing power of foods and the importance of a healthy diet.  Now I think the key, at least for me anyway, is more variteiy of fruits and veges.  CfromUtah, you have discovered something that is helping me - thank you for sharing.
Posted 5/27/2008 9:07 PM (GMT 0)
I am really interested in anything that will mean I don't have to take drugs with bad side effects every day of the week.  I have my next scope on the 2nd and we will see what the Doc says.  I want to just grill him on all sorts of stuff other than these nasty drugs. 
Posted 5/27/2008 10:16 PM (GMT 0)
I've got an idea! Instead of "cure" why don't we all start using the term "placebo"??? Instead of getting all huffy when ppl. are skeptical of the spinach cure, or the broemlain cure, or whatever cure you happen to have discovered.... do some research on the placebo effect & how powerful it is! I totally agree with ediekristen & Sara- this whole "cure" business is offensive & belittling & just downright ridiculous.

Posted 5/27/2008 10:30 PM (GMT 0)
Anyone else tried the popeye diet? I was eyeing a couple of cans of spinach in my kitchen last night, but I don't need anymore softer bm's if it leads to that.
Posted 5/27/2008 10:45 PM (GMT 0)
Eva, I agree. Let's talk about treatments, not cures. Some people are controlled with various foods, some with herbs, some with medications. Even though we aren't having symptoms, we are not cured, but merely controlled and in remission. We still have UC.

It's a great disservice to newly diagnosed people coming to this board to talk about "cures." Imagine, still reeling from hearing the diagnosis, hearing about a "cure" then you try it and it doesn't work for you; nor does the next "cure" or the next. How disappointing and demoralizing that is. This is a condition we can live with and manage. The only known real cure is pretty radical and many of us choose not to take that route. In the meantime, we use what works for us, and that's great. But it isn't a cure.
Posted 5/27/2008 11:32 PM (GMT 0)
red and green would appear brown...maybe that's how some perceive no bleeding?

q
Posted 5/28/2008 12:07 AM (GMT 0)
"red and green would appear brown...maybe that's how some perceive no bleeding?

q"

Exactly.  I know that if I ate that much spinach, there could be no sign of anything red in there. 

 

But I am skeptical for a different reason.  This approach suggests that diet is the trigger and diet is the solution.  I have always eaten well, with lots of greens, carrots, and other vegetables and fruits.  Despite this, I developed UC.  In addition, there has never been any relation between my symptoms and the food I eat. 

 

My own experience indicates that diet has no impact for me.  I have always been obsessive about having a healthy diet, so I know I was always getting the vitamins and minerals that I need.  A deficiency could not have caused my UC.

 

That said, I am glad people are finding some success with this approach, and sharing experiences on this board is helpful to us all.  Spinach is certainly better for us than the nasty medications!        

Posted 5/28/2008 12:21 AM (GMT 0)
That's exactly what I said in the last post on this, Pessimist. But, they continued to tell me this is The Cure.
Posted 5/28/2008 12:36 AM (GMT 0)
I would assume ayurveda medicine is available all over the world. I know it is available in Canada through Transcendental Meditation groups. I know that there are online sources aswell. It never occured to me that ayurveda medicine could possibly help UC. I think this is something that I will research further into.

There is a ayurvedic wellness centre downtown here where I live. Thank you xpsunny for peaking my interest.
Posted 5/28/2008 12:55 AM (GMT 0)
"red and green would appear brown...maybe that's how some perceive no bleeding?

q"

Maybe I'm different than others but when I'm bleeding the toilet water turns blood red. In addition to the blood that I can feel dripping from my body, I usually have lots of mucus and gas to go along with it.
Posted 5/28/2008 1:13 AM (GMT 0)

beenthere, I am glad that this is working for you.  However, your success still does not answer the question of how I could have developed UC if I was eating this way already.  You are proposing a diet that I already followed, before my diagnosis and after (although I do not eat quite that much spinach).  My experience disproves your theory.  It very well may work for you, but it has not worked for me. 

 

Your experience supports what many here already know – that we are all very different, and the same approach will not be effective for everyone.  Your suggestion is appreciated, but please understand that people are not trying to dismiss you.  They just don’t want to hear guarantees.        

Posted 5/28/2008 1:23 AM (GMT 0)
Sore_guts, I am the original poster, they locked my account and I dont know why, for trying to help? the spinach can make it a little softer because it is high in magnesium (magnesium is actually used in laxatives), magnesium can even cause D in high enough doses but the amount you get from food if you are eating foods high in it from my experience will just make it soft. once you get in remission you can remove the spinach from your diet for awhile and your BMs will be perfectly firm and brown with no blood or mucus. IT will work, just stick with it.

Post Edited (beenthere) : 5/27/2008 10:34:07 PM (GMT-6)

Posted 5/28/2008 1:24 AM (GMT 0)
With all due respect, how in the heck has this thread been so badly hijacked? Has it got to the point around here that someone can't even post something that is helping them, in the hopes of helping others? I understand it may not be in order to call something a "cure," but I also understand that this may have been the easiest way for the poster to describe what he wanted to communicate, so I think we should cut him some slack (maybe? Please?).

I am interested in what the poster has to say, and what other people have to say about his topic. Now if people having their say means we have to wade through 10 posts of "this would NOT work for me and I don't like your idea and btw it is a stupid idea" so on and so forth, then so be it.

But do we really have to wade through a completely off-topic post about "Ayurvedic medicine" or what not? I for one did not click on the thread to read anything about that, and it has spiraled the discussion all over the map.

Is it too much to ask that this forum be used by people to respond constructively to other people's posts? I'm all for everyone having their say, but how many posts do we need in a thread basically stating "I do not agree with and/or do not like this posters information and/or attitude and/or approach..." ad naseaum.
Posted 5/28/2008 1:26 AM (GMT 0)
I guess you werent eating enough spinach because it absolutely works for me and I had an extreme case.

Pessimist said...

beenthere, I am glad that this is working for you.  However, your success still does not answer the question of how I could have developed UC if I was eating this way already.  You are proposing a diet that I already followed, before my diagnosis and after (although I do not eat quite that much spinach).  My experience disproves your theory.  It very well may work for you, but it has not worked for me. 

 

Your experience supports what many here already know – that we are all very different, and the same approach will not be effective for everyone.  Your suggestion is appreciated, but please understand that people are not trying to dismiss you.  They just don’t want to hear guarantees.        

Posted 5/28/2008 1:39 AM (GMT 0)
Bigphule, I am the original poster. I still eat a fair amount of sodium, but I dont eat 5 big pickles or a big bag of doritos in one sitting. I just watch it a little. The most important thing for me to stay in remission is to keep my beta carotene and magnesium levels up. Spinach and  sunflower seeds never fails me. Every single time I have the slightest hint of a flare I eat those two Items and it has never failed me since I discovered it. The sunflower seeds I eat are salted by the way

Posted 5/28/2008 1:50 AM (GMT 0)
tap. I was the same way as you, all of the toilet water bright red and had blood dripping out. I knew when I was bleeding and had mucus and urgency. now I have one firm bm a day with no blood, mucus or urgency. night and day difference.

Post Edited (beenthere) : 5/27/2008 7:54:33 PM (GMT-6)

Posted 5/28/2008 2:10 AM (GMT 0)
I know I don't totally belong here b/c I have CD and not UC but I think the two obviously have a lot of similarities and the treatments are often the same. Personally, I am very interested in everyone's personal stories. I don't think it is fair to say that diet has nothing to do with IBD. We all have different triggers and different treatments. For me, my CD is very diet specific. Certain foods = guaranteed flares and other foods are almost always safe. While I don't think my diet ever CAUSED my IBD, I know what I eat contributes to how I feel on a daily basis. I think it is rather rude to assume that a treatment that worked for one is the placebo effect. And if it is, who cares, it is working right??!!? But, for those who realized after they tried something inadvertantly that it helped... it is NOT the placebo effect because they did not try it intending to cure themselves... if you get what I mean.

I have eaten spinach for the last 3 days and my bowel movements were firmer with less urgency and I felt less urge to go through out the day. I doubt this is the placebo effect because I didn't sit around all day thinking "how is the spinach doing." I just added it to my diet with the what the heck mentality.

Any alternative treatment thread usually gets hijacked on the crohns board too. I just wish we could all be more supportive. Its not like this guy is gaining anything from touting his spinach is he? Unless he owns a spinach farm? If you don't want to try the diet don't read the post. Pretty simple.
Posted 5/28/2008 2:13 AM (GMT 0)
Doors, I hope this thread can go back to being a constructive discussion again.

Colby, I'm not sure what happened, we're checking. But please do keep posting. We've been trying desparately to deal with the hijacking thing all day, hopefully it's over now.
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