phosphatydl choline

who put you on it? or was this an experiment?

If it's derived from soy, it could be that you might be estrogen sensitive...

quincy

Hi. I just read some of the research and thought it was worth a try. Old Mike warned me that it wouldn't help, because it would dissolve before the colon (it's not enteric coated). It's not a matter of the soy (if it is), because I eat soy products all the time.

This was all an attempt to avoid another course of prednisone.

Anyway, Bigphule, here's the info I posted in another post: (https://www.healingwell.com/community/default.aspx?f=38&m=1129539)

Do any of you remember a post about research on phosphatidylcholine? Someone posted research about it: Stremmel W. Merle U. Zahn A. Autschbach F. Hinz U. Ehehalt R. Retarded release phosphatidylcholine benefits patients with chronic active ulcerative colitis. Gut. 54(7):966-71, 2005 Jul.

I can't find that posting now, but just did a "medline" search and found more research (8) articles indicating that phosphatidylcholine can help reduce inflamation related to IBD.

I'm not a doctor, so I can't understand all of it, but from what I read from the abstracts of these articles, the amounts and types of phosphatidylcholine differ among the studies, but the general consensus is that taking phosphatidylcholine helped at least 50% of the participants, whereas only 10% of the placebo group had a reduction in symptoms. If anyone wants the citations/abstract, please let me know. I have them in a word document and can e-mail them to you. Most of it should be pretty understandable and you can even print it out for your docs, if you want!

Anyway, I began taking 4 (420 mg) capsules of phosphatidylcholine last Friday. It cost $15.99 from the "Vitamin Shoppe" for 100 capsules. (I was having a VERY BAD flare with blood, mucus, D and cramps since at least 4/25.) The cramps and D are gone. I'm having regular solid bowel movements, the bood is trace and I still have some mucus, but am optimistic that'll go away, too. Yesterday, I ate spicy "Popeyes" mashed potatoes & fried chicken, buffalo wings, pizza! I had a little gas, but not much of anything else (just the mucus and trace amounts of blood).

I never began the Rowasa or Canasa my GI rx'd, but switched to the Colazal (from Lialda) on 5/9. I attribute my "remission" to the phosphatidylcholine, although the Colazal may have kicked in after being on it for a week.

From my personal experience and what I've read in medline, I'm a believer in phosphatidylcholine. The only side effect I read was "mild bloating". I thought it was worth a try for me.

I just wanted to put this out there as an FYI. Do with this info what you will...

Best regards!

TraciZ, thank you for your post! It gives me a lot of hope. I researched phosphatidyl choline 2 days ago. It sounded so promising I went to the health food store that afternoon and bought the same dosage capsules you take. I've been taking 3/day and I think I'm already seeing improvement.

This UC flare isn't as bad as some I've had, but it is persistent. I've had symptoms now for about 3 months. Went to the GI doc in early Apr. Had to go to a different one in the practice since the one I liked and had for years had retired. Thought at first I was going to like this one, but I don't think so now. He upped my Asacol to 9/day, put me on mesalamine enemas, then cortisone enemas, and, now, predisone. After reading all the scary side effects, I'm trying to get off of it as quickly as I can that is safe. I'm down to 7.5mg/day now.

I've always been more alternative method oriented anyway. I went into remission about 10 yrs. ago taking colostrum. Guess I started taking it for granted and cut down to about 2/day. But now I'm taking 9/day. I really feel that the colostrum and the phosphatidyl choline (PS) are what's getting me over this. I sure hope so.