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Parasitic worms and I.B.D. - Article in NY Times

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Ulcerative Colitis
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Posted 6/29/2008 11:24 AM (GMT 0)
www.nytimes.com/2008/06/29/magazine/29wwln-essay-t.html
Posted 6/29/2008 5:36 PM (GMT 0)
Has anyone tried this worm therapy?
Posted 6/29/2008 5:43 PM (GMT 0)
It sounds interesting, however, my first thoughts were....probiotics.....They bring the good bacteria back. I think that sounds similar. I would rather try that than worms. It is interesting though.
Posted 6/29/2008 7:13 PM (GMT 0)
I've spoken with the principal clinical investigator Dr. Joel Weinstock about a year ago...from what I remember there is much promise and much more work to be done before/if it will be available to the general public via rx.
Posted 6/29/2008 7:26 PM (GMT 0)
One of the members at the CD forum did the pig whipworm therapy about 3 yrs ago, you have to get a form from the company that sells them and have your doctor fill it out before they will consider selling it to you...so this therapy has been available to the general public for some time now...I don't recall what the poster at the CD forums outcome was with this treatment, but I know I've read that it works for some but not all (like anything eles so far)...they place whipworm larve in a capsule that you swallow and they get released into your intestines to eat up bad bacteria, sort of along the lines of taking a good probiotic.

You could post over at the CD forum to enquire about it, I'm sure someone with more info will respond.

:)
Posted 6/30/2008 10:39 AM (GMT 0)
My doctor wanted me to try Azathioprine which I am doing however not seeing much off a difference in it although I mentioned the worms which he said he found quite interesting and would look at that if aza didn't work. I told my brother who is a doctor about it and he said it would be highly unlikely I would get it as it isn't licensed here in the UK so don't know if my doctor was just saying that and thinking the Aza would work so we wouldn't need to go down that road.
Posted 7/10/2008 12:29 PM (GMT 0)
Hiya,

I thought you might be interested in how the worm therapy has progressed from weinstock's original reasearch to Hookworm therapy

http://www.nytimes.com/2008/07/01/health/research/01prof.html

Bal

Posted 7/10/2008 12:40 PM (GMT 0)
just as an additional information.
Prof. prichard's study of hookforms for crohns was started in 2006
http://www.nottingham.ac.uk/public-affairs/press-releases/index.phtml?menu=pressreleases&code=SCI-130/06&create_date=20-jul-2006
i've spoken to one person who took part, he has gone back to work and is off steriods.
This prompted me to try 10 hookworms in January 2008. I'm lot better than I was in January but I still do my steroid enemas.
Bal
Posted 7/10/2008 1:22 PM (GMT 0)
I'm thinking of trying this. . . .
Posted 7/10/2008 1:51 PM (GMT 0)
Those of you who wish to try it in the UK, you can get in touch with Dr Paul Fortun at University of Nottingham, he is planning to start UC trails with Hookworms where every paticipant is given hookworm larvaes.
Posted 7/10/2008 6:43 PM (GMT 0)
If this home fecal transfusion thing doesn't work when the baby gets here, this looks to be a possible venture.
Posted 7/14/2008 5:58 PM (GMT 0)
Very expensive....
Posted 7/15/2008 3:48 AM (GMT 0)

pb4 said...
One of the members at the CD forum did the pig whipworm therapy about 3 yrs ago, you have to get a form from the company that sells them and have your doctor fill it out before they will consider selling it to you...so this therapy has been available to the general public for some time now...I don't recall what the poster at the CD forums outcome was with this treatment, but I know I've read that it works for some but not all (like anything eles so far)...they place whipworm larve in a capsule that you swallow and they get released into your intestines to eat up bad bacteria, sort of along the lines of taking a good probiotic.

You could post over at the CD forum to enquire about it, I'm sure someone with more info will respond.

:)

I was not aware pigworm therapy was even FDA approved for use with the general public, but only in FDA trials and studies...

Post Edited (bbc) : 7/14/2008 9:59:55 PM (GMT-6)

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