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Muscle twitching and feet buzzing

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Posted 7/29/2008 3:25 AM (GMT 0)
Do any of you experience muscle twitches? Also do you notice the feeling that your feet are buzzing from time to time?

These things are new and happening to me and am curious if it is related to my possible colitis.

Posted 7/29/2008 7:25 AM (GMT 0)
yeah i always get muscle twitches, but alot of things can cause them, could be your meds, a diet deficiency, or even just alot of exercise can cause them 
Posted 7/29/2008 1:14 PM (GMT 0)
I get joint/muscle pain and swelling. when my legs are swelling, they kind of feel tingly...perhaps this is the "buzzing"? also look at your migrane pills, imitrex makes my whole body feel weird....

Posted 7/29/2008 5:19 PM (GMT 0)
Thanks for your feedback. I am not on any meds right now so perhaps it is the possible colitis---or whatever else it could be that is going on with my body.
Posted 7/29/2008 5:22 PM (GMT 0)
I get muscle twitching all the time. Not sure about the feet buzzing, but my limbs have been falling dead asleep at night lately, which I never had a problem with before... I wake up and my arm, and not even the one I am laying on, will be so asleep that I can't even lift it. Really creeps me out.
Posted 7/29/2008 5:34 PM (GMT 0)
Oh, I have noticed that too!

I noticed you have GERD as well. Have you had any success with toning it down? I went off aciphex for a month and think it has come back---I had the WORST sharp pain in my chest this am (still have it some) it felt like a heart attack. I had to remind myself that my GERD usually feels this way--meaning feels like my heart from the esoph spasms.

Notice a lot of people have both GERD and Colitis?
Posted 7/30/2008 12:35 AM (GMT 0)
thats funny..im not on any meds either..not diagnosed yet..but lets just say i totally have uc..for sure! but anyway..with the buzzing..i totally get that! i feel my feet buzzing and i think its my cell phone or something, like phantom buzzing or something haha! that is sooo weird..and i have had muscle twitches/spasms in my neck and just recently my legs...i wonder if UC has anything to do with it.....hmmm...well ur not alone tho haha

Posted 7/30/2008 2:13 AM (GMT 0)
I get the twitches and have even before I knew I had colitis.

I asked so many doctors and none of them cared. They looked confused.

I have noticed the buzzing also. One strange thing I noticed which somewhat concerned my rheumatologist was that my right toe is not fully under my control - I cannot resist any pressure to keep it elevated. He said that sounded like a nerve issue and to keep him informed.

I was seeing the Rheum to see if I had Ankylosing Spondylitis. He said the Xray didn't show anything, and that I did not have the HLA gene, but that it doesn't really matter to him, that I probably do have "something" there in relation to the colitis.


I must confess I have been delving into conspiracy theory regarding UC lately. Whether Cell-phones could be doing this to us (ie in our pockets all day) or Chemtrails, or terrorism in the food/water supply. It can't be overlooked without thought.

Especially for those of us with *no* family history of autoimmune disease whatsoever.
Posted 7/30/2008 3:00 AM (GMT 0)
Very interesting! I wonder if the feet buzzing is related. My GI just emailed me stating he doubted I have colitis (when before he said it was possible) --perhaps he is just trying to calm me down. Why else would I have this side pain etc???
Posted 7/30/2008 4:08 AM (GMT 0)
just read your signature - the bumps and indents on nails i've had for about 4-5 years before ever having colitis diagnosed.
Posted 7/30/2008 4:22 AM (GMT 0)
When I had a buzzing feeling in my extremities in the past, it was anxiety-related.

Just a thought.
Posted 7/30/2008 4:25 AM (GMT 0)
Huh do you think your ridges are due to the colitis?
Posted 7/30/2008 4:25 AM (GMT 0)
With the buzzing, did it just hit you randomly out of the blue?
Posted 7/30/2008 4:56 AM (GMT 0)
oh yeah,  I get the foot buzzing alot!!!  But I have always attributed it to my Diabetes,  thinking I have peripheral Neuropathy.  Do you have Diabetes???  How about b12 levels?  Have those ever been checked?   A B12 deficiency can cause neurological issues like the neuropathy in your feet...
Posted 7/30/2008 5:24 AM (GMT 0)
ediekristen,

Recently I've been having my hands, arms or feet fall dead asleep and yes it happens more at night. I've been thinking its from the prednisone or 6-MP (not the asacol because I've been on asacol much longer than this has been happening). But since we don't have any meds in common I'm wondering if its a deficiency or related to my recent low body temperature (which drops lower at night and which I don't know what causes it).
Posted 7/30/2008 5:25 AM (GMT 0)
Hmm, no diabetes. Have not had B 12 checked--but will! Thanks for this info!
Posted 7/30/2008 7:45 AM (GMT 0)
hi king1234

If you've been experiencing ringing in the ears, then my symptoms are identical to yours. I was diagnosed with a functional bowel disorder, not ulcerative colitis, 18 months after first developing pain in my lower left abdomen. Assuming it was a spasm, I was put on 25 mg of desipramine nightly. The pain went away after 3 weeks. However, over the 18 months of having pains in my abdomen I also developed the other symptoms you mention fatigue, headaches, pain (mine is in the muscles mostly), dizzy spells, bumps on nails and buzzing in feet. Because of the buzzing and abdominal pain, as well as ringing in my ears, as soon as the dizziness started I was sent to neurology. I've been cleared on all tests thus far and my doctors are not certain what is going on. So, while I wish I could say, "Get tested for ..." I can't. But, it might not be a bad idea to check in with a neurologist and an e.n.t.

Also, I was speaking with a doctor and he mentioned a condition where the individual has abdominal migraines. Are you seeing a specialist for the migraines?

I hope you're feeling better very soon!
Posted 7/31/2008 1:38 AM (GMT 0)
King

Yes I think the ridges have to do with colitis. But I got them probably 4-5 years before any serious diarrhea issue or diagnosis of ulcerative colitis. I also strongly suspect that Obsessive-Compulsive Disorder spectrum situation I was having for 1-2 years before diagnosis was also related. There is plenty of literature about OCD being an autoimmune disease - you just don't hear about it on TV because no one gives a da-mn.

Archer

They tried to diagnose me with functional bowel disorder (which i suspected to be akin to a psychosomatic thing or at least IBS), then about 1 month later I was in the ER with ulcerative colitis diagnosis.
Posted 8/1/2008 2:53 AM (GMT 0)
Doors12

Functional bowel disorders take in a group of issues all having common neurological issues. (IBS is under that umbrella.) Thats why they use the low dose psy med, readjusts nerve impulses. Regarding your change to UC, I was told that had treatment not worked I was near guaranteed to develop UC.

In terms of stress, I am just now realizing how dramatically my health has been effected by it. To that end, and this has come as a surprise to me, acupuncture seems to help. I was skeptical but...it seems to be working on getting rid of many of my symptoms.
Posted 8/1/2008 4:54 AM (GMT 0)
Very interesting information. Archer- I do get occular migraines but maybe only twice a yr (thank god). Sorry you do not have a definative yet either-it is frustrating.

Doors-do your ridges look kinda like beus lines? Like horizontal indents and also horitzontal large bumps in the nails? I literally just woke up one morning to find them. I read this could mean a server disease (great!) or inflammation, possible arthritis. I have read others with colitis that have this too.

My GI now does not think I have colitis..mabye he is just trying to calm me down. Definately I am scared it is bowel cancer. Is it odd to have a left sided pain for 8 wks straight? Its just a very dull pain, but there are times in my life I have had SEVERE pains there. Also, sometimes I think I need to have a BM and its just a ton of gas.

The thing is, I do not have blood-diarreah prob. more than the average person but not always. Mostly I have hard stools.

Sorry for the rambles..

So Colitis can maybe cause muscle twitches and the foot buzzing it sounds?
Posted 2/16/2009 5:34 AM (GMT 0)
I was just diagnosed with UC a few weeks ago...prior to the diagnosis i had started having these buzzing feelings in my feet. my dad has ms and i've had high anxiety about the entire situation...

i've heard anxiety can cause these feelings but i have also read that UC can have weird sensations also...I still have to go see my referred gastroenterologist so i hope she'll have some answers...i'm getting really worried, but happy to hear i'm not the only one with these sensations!
Posted 2/16/2009 6:30 AM (GMT 0)
anxiety can cause that stuff as your muscles will clench up and cut off circulation. That being said i get twitches, buzzes, wierd tastes in mouth, etc from all the meds i take and withdraw from...prednisone, klonopin, pain killers, etc etc. pretty brutal stuff but such is life. good luck in your quest for answers :).

Vin
Posted 2/16/2009 1:51 PM (GMT 0)
The tingling etc. sounds like peripheral neuropathy, a side effect of many meds including cortisone-type stuff like entocort and so on.
Posted 2/16/2009 4:07 PM (GMT 0)
well i'm not on any medications yet...so i'm hoping it's the anxiety...although i have started taking B12 and I only get slight buzzing if I'm having a panic attack, but i really haven't felt it at all ever since a day when i started taking it--so it could have been loss of B12 from all the diarrhea!
Posted 2/23/2009 3:37 AM (GMT 0)
could this maybe be something with AS?  anyone with AS experience this?

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