Has anyone else noticed?

That a LOT of support groups and forums and internet things in general... have Crohns first. The website will be Crohns and then on the actual site it will say for those with crohns and colitis. It makes me feel like they're belittling our disease because Crohns is worse. Like we come second or something.

I don't know... it's just something I've noticed. Am I the only one?

i have UC and it sucks... i have bad flares wtih lots of pain... BUT...

crohns is worse really.
it affects so much more of the body and even my doc tells me i could have it worse than UC... i could have crohns.
and he is right.

not saying i agree that they should put us 2nd or whatever, just saying that it really is a much worse disease to have.

I don't think there's really a contest, although at times it certainly can seem that way to us. Probably part of the reason Crohn's is mentioned first is that it was identified as a specific disease earlier than UC.

Whenever I have to tell people what Uc is, I have to ask them first if they have heard of it and when they say no, I then ask them if they have heard of Crohns and when they say yes; I have to then proceed to say that Uc is like Crohns but limited to my large intestine (easy explanation because I don't want to get into the technicalities). I don't think that it's belittling our disease when Crohns is put first, it is just that this is disease that people have actually died from (my own mother died of Crohns) so it can be much more serious. But as long as Uc is being clumped in with Crohns, it is still strarting to get the recognition that it didn't have before. So it's all good in my book :)

yep, I was thinking maybe more people have Chron's than UC.....was a theory and also I think that they have more complications than UC since it can affect their small intestine among other things.

I'm not saying more important, but just my thoughts on why......

I always thought it was alphabetical- "c" comes before "u"???

No fix for Crohns! That's bad news for anyone with Crohns. And Crohns can be (what seems like) anywhere in the GI track.

UC bailout with surgery, I can't wait for mine!

So my take on it is, yea, those with the Crohns need more sympathy let them have it first.

Well I can't help feelin the way I do. I just think that we should have things that are JUST Ulcerative Colitis.. I think that it should be just as widely known as Crohns and not just something... like Crohns.

Whatever. That's just how I feel.

Anyways I never said that crohns wasnt worse... I knew that already... but so is cancer so is i dunno.. liver disease. anyways. i shouldn't have even given my opinion.. just wanted to see if anyone else noticed we dont have lots of internet things that are just uc

It's nice of you to say that FitzyK23, good point of view from a Crohns person.

I agree, at least the Crohns peoples "holding tank" HOLDS.

this is the wackiest post....who cares which comes first? Crohns is more well known, so maybe that's why. But if you look at a disease like cancer, you generally find plain old "cancer" websites first, not a bunch of individual types of cancer websites first. Of all the things to bother a person, & this is it? Hey if it makes you feel better, you just may have Crohns after all! I'm totally surprised people feel this way- it never would occur to me to think along those lines. ANY chronic, incurable disease sucks. They are probably lumped togther because the meds used to treat them are basically the same- & if you do some digging, you'll find that a lot of the IBD "support" websites are maintained by drug companies.

I know you didn't say it wasn't worse CLINICALLY or otherwise, I just added that for those who get stuck on "symptom" wise, which we all know, there can be a severe UCer that is "worse off" SYMPTOM wise than say a mild crohnie...because CLINICALLY, CD is considered a worse IBD than UC because of the simple fact that UC can be complete "cured" by having the colon/rectom removed, whereas that wouldn't do a crohnie any good symptom wise...ask any GI and they'll tell you the same...clinically speaking of course.

I have to agree with Eva Lou though, it is kinda pointless to get all worked up over this expecially because it's true that any incurable chronic disease does suck regardless of it's nature.

:)

I'm just glad that there ARE websites for us.Back when I was diagnosed I didn't even have a computer!We should all be thankful for the wonderful resource that the Internet is,and the support we can give each other through sites such as this.The order the two are listed in doesn't affect the value of these sites to us one bit.

Bottom line is they are both IBD and they both suck and in ways I actually think it's better that they don't single one or the other (CD/UC) out because think of all the extra work it might be for those who are newly DX and aren't even sure which they have...not to mention there are more things each have in common with one another than not, for example, same meds are used to treat UC as used for crohn's colitis because those meds are targeted to reach the colon/rectom and virtually all the same extraintestinal conditions can go hand in hand for either (osteo, arthritis, mouth ulcers eye conditions ect).

Don't you think it's actually easier that they group the 2 together rather than seperate them due to the above mentioned alone? Imagine how those with collegenous colitis (aka microscopic colitis) feel not having their condition plastered everywhere, they'd be happy to be grouped in with crohn's and colitis (which in some way they are because it's still a colitis condition but even less people have heard of it compared to CD and UC.

:)