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Ulcerative Colitis
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Posted 8/4/2008 2:04 PM (GMT 0)
I have been having uc symptoms fairly regularly now for a couple of years mostly due to non-compliance of my medication schedule.  My symptoms were always the same - blood/mucus/gas multiple times a day, until this January when the pain in my abdomen increased.  The last three months or four months, however, I have been fully cooperative and early in the summer I enjoyed several weeks of near zero UC symptoms. 

The last month, though I am having less of the blood/mucus/gas, I am having tons more diarrhea and it is occuring mainly during the night.  It starts about 11:30pm and I am awakened every hour or two until dawn.   On a positive side, the urgency is so much better than it used to be so occasionally I can stall getting up for a short a period and sleep a bit more, but bottom line is, I am losing sleep and some days I have a lot of stomach/nausea symptoms too.

This is all really weird because I am feeling better than I did at the beginning of the year.  I have more energy even with lack of sleep and I think I look better too. 

I go to my GI yet again tomorrow and I don't know how to present this to him.  I am miserable, but not really sick.  I never can decide what symptoms I should highlight and what symptoms I should keep back.  Also he prescribed me Rowasa when I saw him two weeks ago.  It is almost impossible to keep in very long.  I get cramps from it and I think it is now contributing to my night time bathroom visits.  However, I feel certain that it has freed me from an almost constant pain in abdomen that has been with me for months so I am not sure what I should say about the enema either.

I hope this makes sense....I am really in a fog today.

Thanks!

Posted 8/4/2008 2:13 PM (GMT 0)
I'd just lay it all out there and tell the GI everything . . .you never know what combination of symptoms are going to trigger ideas or changes in their minds.

Good luck!
Posted 8/4/2008 9:07 PM (GMT 0)
Tell your GI everything regarding your condition. They need all of the info to make an informed decision. Don't play it up or play it down - give him the facts.

Usually, night time bms signify and increase in inflammation.

Let us know how your appt goes.
Posted 8/4/2008 9:39 PM (GMT 0)
Madabs, I was diagnosed with UC pan colitis July 2008. I've been on medicines for about 2 weeks now. For the past couple days, I've been going to the bathroom between 11:30 pm and 7:00 am and I wake up every 2-4 hours. So annoying to have to wake up couple times a night to go to bathroom. It's been pretty consistent since I've been keeping record. I'm wondering if it's because I'm taking my steroids in the morning and it wears off by nighttime.
Posted 8/5/2008 2:56 PM (GMT 0)

Thanks everyone for the advice!  I will tell the doc as much as possible.  Since my symptoms are different than before I feel like I am starting over. 

The problem is that I tend to chatter a bit much and offer too much extraneous info.  Everyday details are the bane of my existance and I always trip up on them.  Cutting to the chase/getting to the point, are not things I do well.

Posted 8/7/2008 8:10 AM (GMT 0)
nah, let it all out.. doc needs to know everything..
i let my doc know everything. its so funny, we end up laughing for most of the visit cuz i tell him everything.
farts and all.

so go on... spill the beans!

ps---in australia, its a whole different experience than a doctors visit in the states. im from california and if i went to doctor, i waited in waiting room, went to another room, waited, saw a nurse, waited, then doctor came in and then left, waited, nurse came, waited, then given go ahead to leave.

in australia, you wait in waiting room, get called straight into the doctors office and there you chat or do whatever you do with a doctor then your done. so much more efficient and better and you have him to yourself for however long you need. doctor is not triple booked in multiple rooms with lots of waiting. so its more of one on one, you and doctor, interaction where they are devoted to you the whole time. i luv it!

where i was going with this, is why i said to "spill the beans" and say everything, is cuz over here you can cuz you have time, but i do understand what your saying about taking too long with extra info that might not be necessary.

jeez im babbling. sorry
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