When does it stop?

My scope was Monday and they said they would have to research the Humira for me because of my Kidneys, they are aparently restricting my UC treatment options greatly.  I just spoke to the nurse and she doesn't think that they are going to get the "go" on the Humira which leaves them looking into Remicade.  I'm no longer freaked about the drug itself . . . . it's the way it has to be given that poses problems for me.  I have horribly bad veins and already have to be subjected to an IV for my anemia every month, now add Remicade and I have to get nabbed twice a month?  This is going to be sheer torture.  It takes them 3-4 tries to get a line in me and I come out looking greusome when they are done blowing veins on me . . .now I will have to go about every 2 weeks so I won't ever have a break from the bruising!  Does the horror show with this disease ever stop?  Just when you think you are ok and doing well something more demoralizing seems to come knock you down the few pegs you were able to struggle your way up to and then a few more just to add insult to the injury. 

Oh, I feel your IV pain. My veins are terrible, too. They look fine, and every nurse thinks that it's going to be no problem, and then 4 tries later they admit that I was right. Had my first full scope today, and my arms are nice and bruised all over from the IV attempts. Sorry, no good advice, but hope things get better for you!

I'm so sorry! Its no fun to feel like a pin cushion

I am a total needle-phob. I use to pass out when they would draw blood. This disease has changed that a bit but I still hate it.

The last time i had a scope it took the head nurse, a hemotologist, and the anestesiologist to get a vein. 11 tries in all. I was so black and blue. It sounds like your veins may be even worse.

The remicade needle is super tiny. A lot of IV drugs are very thick and need a big old needle but remi isn't one. I hope it works out for you!

They are leery of the port for me because of having a toddler, they said they would rather wait until he's a little older in another year or so before trying the port. When I pick him up he grabs ahold of my bra strap (normal I'm told) and the port would be right under it. If it's early in the morning and I only have PJs on he literally grabs a handful of skin (yes it hurts). With a port in place there would be a risk of him pulling on it too hard and causing issues, internal bleeding and infections were just 2 of the things they were talking about that could happen. He's the same reason they don't want to do the arm ports, they are more exposed and would be easier for him to pull on. He's not a bad child, they have just seen these things happen in the past and know to be careful about them. So for another year at least . . . I'm kinda stuck being stuck.

the one consolation to how my son grabs ahold of me is that he does it to my husband too and gets a hand full of chest hair underneath the shirt *grin* the pained expression that he tries to suppress is too funny not to laugh at.