***???

As some of you may remember I have been going through kind of a mini flair over the last several weeks with no D, very little mucous but light bleeding and some pain, so I uped the rowasa back to every day (over the last 3 weeks) and the bleeding got better and for the last 3 days straight no blood...EXCEPT for this a.m. there was blood scaterred on my stool...what could have happened since for 3 straight days of no bleeding??? I did not change form my usual bland diet...the only thing I did change was seedless rye bread vs white bread and I ate a mutli grain bun that came with a chik filet sandwhich and yesterday I uped my fish oil/omega3 from 1 to 2 capsules but I just read that fish oil/omega3 is a blood thinner!!!

I feel fine and have almost no pain at all...just the blood scttered on the stool and some on the tissue...as I mentioned for the last 3 days I've had no/0 blood...not even a spec and I truly thought I was doing better.

Thanks.

Lialda 3x's per daily, daily rowasas, supplments etc.
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I only have one small internal hemmie so I kinda doubt its from there...I also have an old fissure that acts up once in a while but I have no pain in that area at all so I'm truly stumped. Jeez, I was just totally blood free for 3 straight days since this mini flair started 3 weeks ago

 

Hi Q thanks for the interest and feedback...I've addressed your questions/thoughts:

 

Seems par for the course....you're improving.

 

So it's normal to have the bleeding slow way down over the last week or so then go for the last 3 days straight w/o bleeding then start bleeding again and at the same level (stripping vs. a sopt or two) as 3 weeks ago?

So, I'm assuming that you're having more formed stool? Less often bms?

I've always had formed stool this time around just some bleeding and pain/spasms so I'm not sure its the stool causing the issue...It's just amazing that I had a significant setback in just 24hrs when I was tracking to be back in remmission.

If it isn't a the fissure, it means that the tissue is still fragile. It will probably bleed from having a bm and then pool. The blood along or in the stool will probably be just that. If it's only a bit, that's a huge thing to celebrate.

But compared to the last 3 days of having no blood and it getting better each day (up until today) I feel this was a big set back and not a reason to celebrate.

You've been on the nightly Rowasa for 3 weeks or within the 3 weeks that you upped to nightly.
Hang tough..seems it's working.

I'm not so sure it's really is working anymore as in the past/year rowasa would stop my heavy bleeding in about 24-48 hrs  and now it can't evevn handle mild bleeding and if so for only 3 days.

Yeah about the omega 3s...I don't recommend to use high dosages of them while bleeding.

I just doubled the dose as of yesterday due to a fellow UCer telling me I was only taking a third of what I should.   I also stopped the melatonin about 3 days ago even though it is a natural TNF protien inhibitor.

I even tried to cut back on starches sugars etc but they (white bread, rice, saltines etc) are what is recommended when in a flare but yet they are so bad for IBD...I beginning to think truly believe that nothing is going to help until I can get my autoimmune system to function properly again. I will also say this; I will not spend the rest of my life on more and more meds all with so/so results and many with very significant side effects...my next step is seeing a new GI doc on the 28th and I will begin my long term quest to have this diseased colon removed and go on with my life as I'm sick and tired, of being sick and tired and not being able to eat all the wonderful things that are available to us, losing weight worrying when the next flair will come, looking into the toilet after every BM etc etc...I've had ENOUGH!!.  I used to think there will be some sort of significant break through for UC/IBD in the next five years but I'm thinking it may be more like 10+ and I just don't want to spend the next 5, 10 or 15 years etc feeling poorly going in and out of remmission. I feel as UC'ers, we are blessed that surgery is #1 an option and most importantly #2 a real cure. Someone take my colon...please LOL...

Q,

I've been on rowasas since Dec 07 and everytime I've cut back from daily use I flair again; usually the rowasa gets me back to normal in about a week but this time around it took three weeks and I was doing great getting better each day with less and less bleeding.

3 weeks ago the blood was stripped and went to spots on the stool then gone for 3 straight days...now I'm stripping again and the rowasas are not stopping it at all. My GI doc wants me to up the lialda from 3 to 4 (the max dose) as he thinks the bleeding may be up stream of where the rowasa can go so it may not just be a rectal flair : (

A few mos ago I switched from asacol to lialda (it so much easier to take 3 pills vs 9) and 2 days after I switched I started bleeding again but the rowasas got it under control very quickly (that's what's worrying me, normally rowasa always gets me good again in a very short perios of time). So as of yesterday a.m. I went back to asacol just to see if it might change things for the better (I'll give it three days) and if not I'll go back to Lialda and increase the dosage to the max and see what happens.

I agree my flairs are no where's near as bad as they were prior to using rowasa, but since I'm still bleeding while using the rowasa daily, plus I've been keeping it in for 12 hrs + so unfortunately I'm not very optimistic : (.

Thanks again for your continued interest and advice.

Thanks and great suggestions...I've already switched the rowasa back to night time as of last evening.

What exactly do you have and what are your meds, treatments etc?

Hang in there and feel free to vent...I'm praying for us all.