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For those on 6mps or Remicaide...?

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Ulcerative Colitis
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Posted 9/15/2008 3:15 AM (GMT 0)
How is it going for you since beginning treatment and how long have you been on it?

Thanks

Posted 9/15/2008 4:18 AM (GMT 0)
I've been on Remicade for 2 1/2 years. Before that, I was on Imuran for several years. (Imuran breaks down to 6-MP in your body.)

I was unable to tell that Imuran did anything for me. Remicade got me into remission within a month and has kept me there.

Posted 9/15/2008 11:05 AM (GMT 0)
I am not on Remicade nor will I ever be - this is one med in which I draw the line at (my personal choice). But I have been on 6mp for 2 years. It took a while for it to start working but once it did, I started feeling better. I have found out recently though that I can't metabolize it correctly and I am just under the liver toxicity level so I may have to reduce my dosage or stop altogether. But for the most part, this med has been a lifesaver. I still flare just not as severe.
Posted 9/15/2008 1:37 PM (GMT 0)
I've been on Remi for several years now and have held a remission ever since I started it.

Posted 9/15/2008 2:06 PM (GMT 0)
My first Remicade infusion was November 07 - I reached remission March- and began a flare in June--- Remicade appears to have stopped working. Very frustrating....
Posted 9/15/2008 3:27 PM (GMT 0)
I will have my third infusion in two weeks and I feel wonderful. I am down to 10 mg of pred and I think this is working:) keeping my fingers crossed! There was a guy in the infusion room that got cancer from 6mp and had to have his large intesines removed b/c of the cancer. He has crohns and he still has to take remicade. I felt bad for him and it kindof brought the risks of these drugs to a new light.
Posted 9/15/2008 4:04 PM (GMT 0)
I just recently started 6-MP to help me get off of Prednisone as my UC had become Steroid Dependant. I was nervous about side effects but so far i have not had any. I have not noticed any differences yet but i think it is too soon anyways.
Posted 9/15/2008 5:07 PM (GMT 0)
I started 6mp/mercaptopurine about 3.5 months ago.  I'm not in a bad flare but I'm not in full remission either.  I know initially it was high doses of prednisone that got me mostly back under control.  I don't know if it was the 6mp that has been keeping me mostly controlled or if it was the prednisone, hard to say since I just got off the prednisone.  I was taking 100mg of 6mp but then my liver tests in my bloodwork shot up into abnormal range so now I take 75mg of 6mp.  Crossing my fingers that my next bloodwork (a week from tomorrow) will be more normal.  I think my lack of appetite may be due to the 6mp (which I take in the morning).  I am losing a lot of my hair and am very tired, but unsure whether those things are due to 6mp, the ulcerative colitis itself, lack of some nutrient, or possible low functioning liver or low functioning thyroid.   Now that I'm off the prednisone I will be doing some nutritional blood testing and some thyroid testing soon, but I think I want to wait until liver seems more stable first. 
Posted 9/15/2008 5:18 PM (GMT 0)

I have been on Remicade since February08 and went into remission within a few weeks. UC symtoms started showing up again a few weeks ago and I haven't been able to get them under control. Dr moved my next infusion up to tomorrow from the 23rd and put me back on the Rowasa enemas. If things don't clear up by Wed or Thurs it's back on Prednisone. mad

V

Posted 9/16/2008 10:56 PM (GMT 0)
I tried 6MP but it landed me in the hospital b/c of side effects.

I'm going in for my 4th Remicade infusion tomorrow. First two infusions only helped urgency. The third infusion drastically helped for two weeks, stopped working for two weeks, and then helped for a week (and then I had cscope and everything got screwed up again). This past week has been a normal flare-up, so my body is telling me that I need Remi now. However, my cscope showed that all but a few centimeters of my colon is healed (which is why I canceled surgery).
Posted 9/17/2008 3:32 AM (GMT 0)

For me, I've been on 6mp for er 3 or 4 months now.  I suffered minor side effects, just a little nausia, but I solved that by taking the 6mp at night.

I'm down to 5mg of Pred as of last tuesday and feeling awesome. 

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