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Years in remission????

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Ulcerative Colitis
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Posted 10/6/2008 1:22 AM (GMT 0)
i have been in remission for approx. 5 years.  I'm on colazal (3 pills 3x a day) & imuran (150mg a day).  I am just wondering if anyone knows if there have been people that have been in remission for 10, 20 or even 30 years?? Some days I feel like at any moment I am going to be in a flare like I was last time - 27 days in the hospital and  1 day away from surgery. 
Posted 10/6/2008 2:03 AM (GMT 0)
I so know how you feel. I've been in remission for about a year and a half. I was in the hospital for 25 days, sent home with a pic iv because I contracted a staff infection, and C-Dif while in the hospital. I'm thankful for the remission, but I too wonder when I will step out of it. I do pray that I stay in for a while though.
Posted 10/6/2008 2:22 AM (GMT 0)
As you can see in my signature, I have enjoyed a very long remission. I really, really hope I can achieve that again. So, as you can see, it is possible. Good Luck.
Posted 10/9/2008 2:16 PM (GMT 0)
My dad is in remission since 32 years (he is 51 years old right now).....believe it or not. He has a marvelous psychological control over UC.
Posted 10/9/2008 3:15 PM (GMT 0)
I've been in Remicade remission for over three years.

Posted 10/9/2008 6:19 PM (GMT 0)

...and now I'm confused. I distinctly remember reading a definition for UC remission that said something to the effect that remission from the disease is full absence of any of its symptoms while not being influenced by medication. In other words, after you complete your Remicade treatments Loneylane, after I can fully taper off this dam*ed Prednizone and the rest of the drugs in my sig. line, etc.

Am I wrong? I have seen other posts by some who live a drug-free life and say they are in UC remission and it sounds like a thing of beauty.

Even though my own symptoms are virtually nonexistant for the last several weeks (thank you Lord!), I'm not inclined to claim remission because I fully believe it's the drugs that are responsible and that any deviation from that routine and I'll soon find myself back on the UC treadmill.

Posted 10/9/2008 6:22 PM (GMT 0)
That's exactly why I said Remicade remission. To me, having no symptoms while taking Remicade is a remission I'll take.

Posted 10/10/2008 3:20 PM (GMT 0)
My father hasn't had major problems for over 20 years. No major UC symptoms in that time (and no cancer!) He's 65. He still gets diarreah from time to time, depending on what he eats and stuff, but nothing major.
Posted 10/10/2008 6:14 PM (GMT 0)
I felt that way at first, but over time, I've learned how to monitor and manage my UC so that I no longer fear it ever getting to the point where I'm as sick as I was when diagnosed.
Posted 10/10/2008 7:07 PM (GMT 0)
I know how you feel! It would be amazing to be in remission for long periods of time, especially through my 20's. I think the definition of remission is different for everyone. To me being on maintenance medication and feeling good is remission. I would much rather be on medications and feel great than take the risk of stopping them and flaring again. I take 9 UC related pills a day and I'm totally cool with that.
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