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Anyone not have pain?

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Ulcerative Colitis
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Posted 11/4/2008 7:14 PM (GMT 0)
I have never had pain from UC.  I've basically been bleeding for 5 years (besides a few months here and there) so I'm constanly flaring but I never get pain.  The only time I do is sometimes when I'm going to the bathroom I'll get some really bad cramping while I'm trying to go but that's it.  Is this normal?
Posted 11/4/2008 7:17 PM (GMT 0)
Of course it's normal to not have pain, IBD varies from person to person and even in a severe flare of bowel frequency and urgency does not mean you have to have pain as well in order for the flare to count or anything....I don't have tummy pain either, never really did and I have crohn's (crohn's colitis specifically) but when I first got sick it was in my small intestine as well as my colon, rectom and anus and I still never felt tummy pain, just lower back pain during really severe flares (30+ times/day).

:)
Posted 11/4/2008 7:20 PM (GMT 0)
sometimes i get these pinchie sensations on my left side and every now and then on my right side. supposedly i have proctosigmoiditis so hopefully that doesn't mean it has spread. no real pain though but on occasion when i have to crap really bad i'll get some intense pressure. it's funny because my butt knows when it's near a toilet. i'll be walking by a bathroom and all of a sudden my rectum will start going into a fit.
Posted 11/4/2008 7:23 PM (GMT 0)
I know that it differs from person to person, just wondering if the majority have pain or don't have pain. Abdominal pain is always listed as a symptom of UC and my doctor always asks me if I have pain so I was curious if others have pain.
Posted 11/4/2008 8:10 PM (GMT 0)
I'd say probably the majority do, I'm just glad I'm the minority.

Pain is a common symptom of IBD but luckily that doesn't guarantee we'll all suffer with it, and it can differ from flare to flare likely as well.


:)
Posted 11/4/2008 8:25 PM (GMT 0)
I also never had pain, I think we are in the minority. My GI could never believe that with my severe flare my pain was zero.

Sue
Posted 11/4/2008 9:49 PM (GMT 0)

I don't have any pain either. Every now and then there is a little tenderness in the lower left area but it's more just a sensation than pain.

V

Posted 11/4/2008 10:03 PM (GMT 0)
I have never suffered from pain either to the surprise of my GI. Also diet does not seem to effect my UC. My Uc is in the lower sigmoid I wonder if that has anything to do with it.
Posted 11/4/2008 11:40 PM (GMT 0)
I always tell my NP I am "aware" of my left -sided UC.  I did have pain there - right near where my ovaries are but no more since healing.  Now only discomfort (can't call it pain) would be in my back low and sometimes rectum - never had any really bad pain.  ElaineNY

Posted 11/7/2008 12:29 AM (GMT 0)
i am soooooooooo jealous of all of you.
i have sooooooooo much pain it just ruins me.

i have to take half and endone (oxycontin) every 4 hours to manage.
it is a severe cramping in my guts that just goes and goes and goes and doesnt stop.

when on the toilet, it hurts so bad i sound like im having a baby, i have to have plastic bags with me cuz i involuntarily puke from the pain.
i hate it. i cant get away from it. i walk hunched over and im always grimacing (attractive i know).
it wears me out.
i still go out everyday and walk and shop and eat out and do things cuz i refuse to be bed ridden again. i just strategically know the exact latitude and longitude location of every single toilet on the gold coast.
i just wish they had handle bars on the toilets!
Posted 11/7/2008 3:07 AM (GMT 0)

Kazygirl,

Your post made my heart break for you.  I am just a few years older than you and have also gone through terrible flares over the past 3 years that I've been diagnosed.  One of which put me in the hospital for 4 days and the other led me down the path of exploring j pouch surgery as I didn't think Remicade was working after being on it for 4 months.  My dr. and I increased the dose of remicade and it worked wonders.  Have you, in your immense discomfort, considered remicade or J-pouch surgery to put the pain you deal with from UC behind you?  I'm asking because I have also been through so much with this disease (and don't even experience the pain you do) and at your young age you should be able to be enjoying your life rather than being trapped by this horrible disease.

I wish you all the best!

kazygirl said...
i am soooooooooo jealous of all of you.
i have sooooooooo much pain it just ruins me.

i have to take half and endone (oxycontin) every 4 hours to manage.
it is a severe cramping in my guts that just goes and goes and goes and doesnt stop.

when on the toilet, it hurts so bad i sound like im having a baby, i have to have plastic bags with me cuz i involuntarily puke from the pain.
i hate it. i cant get away from it. i walk hunched over and im always grimacing (attractive i know).
it wears me out.
i still go out everyday and walk and shop and eat out and do things cuz i refuse to be bed ridden again. i just strategically know the exact latitude and longitude location of every single toilet on the gold coast.
i just wish they had handle bars on the toilets!

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