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In remission...but is this it?? What is your remission like?

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Ulcerative Colitis
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Posted 12/10/2008 1:12 AM (GMT 0)
So, I'm in remission and I've been in remission since October. This is the first time in my life that I've ever been in full remission--no blood, mucous, stomach pain, stools are formed (unless I eat bad food--IBS), and I go one to four times a day. That's amazing from my minimum of eight times before.

Even though I'm in remission I'm still super achy and very tired. I'm pretty much spent after getting my daughter up and giving her breakfast. I still don't go out in the day time--only night when I know I'm stable. I think that's just habit though...

Anyway, what it like for you to be in remission? When you go into remission do you all of a sudden become wonder people?
Posted 12/10/2008 2:07 AM (GMT 0)
no I dont become a wonder person. I am still achy and I have been totally worn out and unrested sense 2004 when I was DX. like you no blood are mucous,and the pain is normally gone, but I really dont have well formed stool either. But I dont know how much of me being tired has to do with the uc are my heart condition, but like you I am always tired.
Posted 12/10/2008 2:11 AM (GMT 0)
Maybe you're suffering with extraintestinal manifestations that can go hand in hand with having an IBD (osteo, arthtitis, ect).

:)
Posted 12/10/2008 2:57 AM (GMT 0)
I never considered feeling achy or very fatigued to be remission. Granted, i don't go so far as to define remission as 100%l normalcy- for starters, I had mild IBSish symptoms on and off a bit before I was ever dx's with IBD- but anything beyond some mild IBS, including any outright pain, I consider non-remission.
Posted 12/10/2008 3:37 AM (GMT 0)
Remission for me is a fromed BM once a day usually sometime in the afternoon. No pain but it seems like i can actually feel my food digesting...or maybe I just pay more attention to it now. No blood or mucous. I still don't feel that I will ever be back to normal like I was before UC but once a day is as close as one can get. My only complaint when in remission is my energy level. It holds steady at about 60%. I manage to make myself workout 4-5 times a week and it helps a little.
Posted 12/10/2008 5:20 AM (GMT 0)
Good for you vega, I work out on a regular basis as well and for me I find it helps tons in the energy dept...and especially the emotional dept.

:)
Posted 12/10/2008 2:44 PM (GMT 0)
     I don't work out but try to walk as often as I can.  Remission is heaven on earth after suffering with my last flare for seven months.  I have one formed bowel movement per day (I named it Mr Hanky after the character on South Park), no blood, no urgency.  I can eat anything although I do stay away from my beloved crab cakes (which twice contributed to a flare), spicy and fried foods.  I say a prayer of thanksgiving for every day that I feel well.
Posted 12/10/2008 2:53 PM (GMT 0)
I guess I am in a remission but I know that it's hard to classify it as such. But for me, it's fairly stable. Right now my remission consists of going to the bathroom 1-3 times a day (semi solid to solid), no blood or pain. I do still suffer from joint pain but not nearly as bad as when I am flaring. I believe that I have some form of arthritis that the docs haven't found yet. Have you been checked for any arthritis?
Posted 12/10/2008 3:33 PM (GMT 0)
Achy and tired could be chronic fatigue, which can be a sign of a gut ecological imbalance and often goes hand in hand with other illnesses. Now that you have overt UC symptoms under control, it's time to look at improving your gut ecology and restoring healthy digestion so you can get your energy and well being back.
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