Dear Robin
I have joined just now and have found the site to be very informative. I have been a UC patient since October 1989. Underwent Total Proctocolectomy with J Pouch surgery in November 2005. My advice to everybody is to avoid surgery if possible, as the life becomes more painful. The sucess rate of surgery is very minimal and it takes number of years to get on with the life after that. I have been having lots of complications after surgery, which were not there with UC, like a massive incisional hernia, which all surgeons say cannot be repaired. I have got horseshoe Fistula connecting to J pouch, which again cannot be repaired.
So avoid surgery and shift to alternate medicines, before it is too late. Best of luck.