Sherry, I have been on 6MP for about five years now. I did go off it for a short period of time before flaring last year (my bad). I hate taking all this medicine though. The thinning of hair has been for the past several months. I would say ever since going back on the 6MP.
Wishful, I feel ok on the 6MP. My white count is low though and I don't like that. I go for monthly CBC's. I cut back my 6MP from 75 to 50 mgm one day and 25 the next. My white count was STILL only 2.4...much too low (guess I know too much about this having worked as a lab tech for years). My GI doctor started me on the 6MP about five years ago and like I mentioned in former posts..it has NOT kept me out of flares. Now, maybe I would be much worse had I not been on 6MP..who knows? It usually takes anywhere from 3 to 6 months to "kick in" along with the prednisone. It doesn't affect my appetite at all.