Who is a member of the Yahoo LDN Group?

jars05 said...
I'm asking my Gastro on Mar. 31, when I go to see him. If he can't let me try, I'll do some searchin' because I'm so close to just stopping my azathioprine as it is useless.

So does your GI insist you staying on it too, although it doesn't do anything for you, lol?

Miss, thanks for the encouragement. I know that it takes a while so I'm not giving up hope by any means. I think I'm just feeling down today because of this cold that I have. My DH has it too and I told him that at least when his cold is gone, he'll be healthy...I still have the stupid UC to deal with. lol. I've been sick a lot this winter which is unusual for me and I'm just sooo over it. Are you exploring a gluten free diet and yeast issues? I haven't done any of that yet. I had no appetite for so long and now that it's back, I'm eating whatever I want. I've never noticed food effecting me so I haven't wanted to go down that road yet.

I have kept a food journal for six months and have found absolutely no food issues setting things off for me.

It's my cycle and hormones. I can be fine for three weeks then boom, bleeding and D and more frequent a few days before I start my period. My periods have been much lighter also, I'm thinking it's because I'm losing so much blood elsewhere that I mostly just spot for a few days. It has gotten more normal the past few months though since starting LDN and losing less blood in my bm's.

I did strict SCD for a month and the day before I got my period things were the same so I figurred the heck with that. SCD was really hard so I didn't think it was worth it if it wasn't helping my monthly issues anyway. That's also when I quit the remicade infusions, it was just two weeks after the third infusion. Definately not worth the risks and side affects I was getting from it.

Miss

 

bookworm-you have to request to be a member and then you'll get an email accepting you THEN you'll be able to read the posts. I haven't found anything very informative on the site. It's for people that take LDN for every possible ailment, not just people with IBD. I found the info. on Healing Well and on other LDN websites to be more helpful than the Yahoo group.

Also I'm a member of the LDN yahoo group. You do get lots of emails not relating to UC but I have learnt a lot. Jayne Crocker is particularly helpful and knowledgeable.

I tried following the yahoo group but it got confusing. I've been lurking on the other LDN forum lately. Just picking up information when needed.

I know this is an old post, but I'm looking for some help.


I've been on LDN for a month and a half at least, two months. I was at 2mg when I decided to up my dose to 3mg more than a week ago. I started having loose stools, stomach ache and nausea. So I stopped for 5 days. I started it up again and now I'm having problems falling asleep. When I first started I was fine. No sleep issues. Has anyone have this happen to them?

Found this on www.ldnscience.org

"When is the best time in the day to take LDN?
The clinical trials conducted so far have not shown any difference in effect if LDN is taken at night or in the morning. Most users prefer to take it in the evening, however this does sometimes disturb sleep in some individuals, and for these people taking it in the morning is preferred."

Questions can be submitted at this site so I asked if there is an optimal time for applying the transdermal cream during the day and how long it should be left on my skin. (Probably 4 hours but want to be sure). You leave your email along with other info and they say you'll get a reply within a week.

I have been wanting to try LDN. No luck getting my GI to prescribe after showing him all the Data. Does anyone know a Dr located in the Marietta/Atlanta area that will prescribe LDN? Thanks for any suggestions. UC for nearly 48 years. Current flare on Lialda 4/day and Rowasa nightly. Avoiding another round of Pred. Also Black Cherry concentrate.