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Hello to all my old friends and a ne hello to all those I don't know here - on Ostomy forum now

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Ulcerative Colitis
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Posted 3/26/2009 12:59 AM (GMT 0)
I have been there for a couple of months and I am going in for a complete ileostomy and rectum removal on the 16th.  In between I am going in for pre-op tests and the required reading and ostomy meetings at the hospital.

I wanted to thank everyone here for allowing me to be a mod several years ago, and to all the people who supported me and provided a fellowship of love.

To the newer people who I have never met, I hope your journey to remission is a good one, and hang in there...there are lots of people in remission who you never hear a peep from who have this dd,

To the doctors and drug makers who I have to say gave me some very good years along the way - and the remission that I was so looking forward to.  (I had to stop remi as I am taking drugs incompatible with any immuno-supprescent for my Charcot disease diagnosed 2 years ago).  I have great visions of healing with new drugs and therapies, holistic and pharma.

In the meantime, my path is following a different way now.  And for me, having two diseases was just too much to fight.  My wonderful doctor agrees - and if anyone in the Wash DC needs a great GI, give me a line, as he has done everything including giving me his cell phone when I was in the hospital.  He is a saint.

And all are you.  I will be in the Ostomy room, just next door.  I will try to pop in to see what is going on here and say hello from time to time.  And please don't be afraid of the Ostomy room.  There is a magical spirit there as well.  And there is great information if anyone needs to ask.

With all my love here and many thanks to all

bob

schrek chewbacca   

Posted 3/26/2009 1:47 AM (GMT 0)
Hey schrek nice to see ya, please know I'm sending all my best wishes for your ileostomy and rectom removal, I'm sorry it had to come to this and I hope your other health issues have improved?

Keep in touch and take good care!

:)
Posted 3/26/2009 2:01 AM (GMT 0)
good to hear from you Bob, hope everything turns out good for you. wishing you a speedy recovery
Posted 3/26/2009 3:28 AM (GMT 0)
sending you lots of wishes - everything turns out well
I will pray for your fast recovery :-)
Posted 3/26/2009 5:27 AM (GMT 0)
Schrek-
I feel like I should refer to you as Mr. Schrek since you are a noted veteran and I'm new to the site. I appreciate your fine attitude. You obviouslly have quite a following.
i appreciate your encouragement - as one who after 11 tough years on the prednisone, suppositories, asacol, Lialda, Immuron, Assacol and now Cimzia injections - if this last one doesn't do it - I may meet you at the next forum too. I am seriously starting to think about getting rid of this diseased colon.

Thank you for the brave and elloquent words you shared.
Posted 3/26/2009 5:54 AM (GMT 0)
Hi Bob....it's awesome to see you!!! I do hope your surgery goes well and that the recovery time isn't long.

It's good the decision has been made to allow you relief from the suffering that's continued from UC. You've definitely given it your best fight....and more.

Your strength, encouragement and optimism always touches me.

Healing thoughts and best wishes to you and Mrs. Schrek.

Heather xx
Posted 3/26/2009 9:10 AM (GMT 0)
Nice to hear from you Bob. Hope everything goes well for you
Posted 3/26/2009 11:38 AM (GMT 0)
I know you've had a very tough road in the past and I am wishing nothing but the best for you in the future. Speedy recovery and happy thoughts! You have always been the teddy bear rock here for so many people that I feel blessed to have known you. God bless Bob and tell the wife that she is an awesome lady as well.

XO
Sherry
Posted 3/26/2009 3:26 PM (GMT 0)
I'm new, so I don't know you, but best of luck with surgery and recovery!
Posted 3/26/2009 7:51 PM (GMT 0)
May the April 16th surgery be a totally positive turning point for you, including the Charcot's disease, too. You have certainly endured more than your share over the past two yrs! I'm wishing all the best to you & your wonderful wife. It's good to know that you intend to "visit" us on this forum in the future; we look forward to that! You might find some helpful insights from reading Paul L's posts here from Oct.-Dec. '08 about his colectomy experience in Toronto-- he's about your age, I think. / Old Hat (30 yrs with left-sided UC; presently fighting off flare in sigmoid colon)
Posted 3/26/2009 8:49 PM (GMT 0)

Yes, my wife Philsy is glad about the decision but worried about the operation, as can be expected. 

Thank you for thinking of her, She will be so happy.  She knows how much in terms of blesssings I have received from you all.

By the way, when I came out of the nursing home and hospital from 8 operations with Charcot and a flaring UC, I lost 100lbs. 

As some of you might remember, my wife although a techie by profession is a marvelous seamstress.  You may remember all the wonderful clothes she made for me to make me feel good during UC.  Sadly, I have been in sweats mostly since my release, but the old girl says she will make me all new clothes.  Even she can't take in that much material - someone at Goodwill will be looking very dapper indeed.

It is expected that I will probably loose a bit more weight before starting to put some on again.  I had to get new glasses even.

Anyway, I will show her these messages and she will be happy.  Bless you all.

Posted 3/26/2009 11:14 PM (GMT 0)
Bob, I wish you all the best with the surgery.  It seems that we are neighbors!  Who is your doctor?  I've been going to one I like, but it is always good to have another option.  What hospital are you having the surgery in?  Just curious...although I hope surgery is not in my future :) 

Posted 3/26/2009 11:40 PM (GMT 0)

Bob,

 Good to hear from you, I've thought of you often , I miss your thoughtful and amusing posts. I'll never forget your tale of going to a halloween party as 'tinky-winky'.  Be well,

Merry


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