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good and bad times of the day? other questions.

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Ulcerative Colitis
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Posted 5/18/2009 8:41 AM (GMT 0)
I was wondering if you guys have different times of the day that are good and bad for your UC symptoms.

I saw my new GI doc on Friday and I have been eagerly awaiting the test results from the blood and other samples that he took from me then. I have been writing a lot of things down, something that I haven't really done before.

I have noticed that I have UC symptoms from about 5:00 pm to 8:00 am (overnight and in the early morning!) and very little stuff in between there. But enough to worry about that I called off work again today. I better not call off tomorrow or there will be lots of paperwork for me to fill out then! :(

Now, I don't know if I'm lucky that I'm not running to the bathroom around the clock and that I can be semi-normal during the day? I still have the joint pain that I have been having for about a week all day and all night long. That is helped by ice / cold packs. Tylenol does nothing for me. I really wish I could take some Advil but we all here know that that's a no-no during a flare especially! My primary care doc gave me a script for Tramadol for the joint pain, it helped a bit more than the ice does, but I think it is why I got little to no sleep last Thursday and Friday nights so I quit taking it. Anyone ever find another pain killer that we UCers can take?

The past 2 nights, I have also been waking up when I have to use the bathroom SOAKED in sweat. So much so that I have to change my clothes. Why is that happening? Do I have some kind of infection? I guess I should ask the Dr. about that?

I love this forum, you guys are great at answering my questions!

Jen
Posted 5/18/2009 11:03 AM (GMT 0)
I've always had night sweats while in the middle of a flare and that is pretty common actually. Even having a mild fever if you've ever had that too. As for the joint pain, some people don't have issues with *some* anti-inflammatories. When I was having massive joint pain, my docs tried me on several anti-inflammatories. The only one I can take is Celebrex. I bleed super easy and if I take otc Nsaids, I start bleeding within a day. But if you don't want to go that route and just need a pain pill to help you sleep you can try any medication that contains codeine such as Tylonel #3. I can't take codeine so I usually take Darvocet when things get bad.
Posted 5/18/2009 1:38 PM (GMT 0)
For me it usually, but not always, I would feel best in the mornings and worse later at night. I don't have joint pains, but I am talking like cramping or upset tummy feelings, totally random light abdominal pains.

I think the sweating is normal when your body either is fighting an infection or thinks it is. There in is the problem with them not exactly knowing the cause of UC or Chrones, is it a real infection they don't find or just your body attacking itself.
Posted 5/18/2009 2:00 PM (GMT 0)
For me the worst time of day is early morning. Usually right as I get up I have the urge to use the bathroom sometimes 2 or 3 times within the first hour. Every day is a struggle. I have no idea how I have held a job for this long, being that I have to be there early in the morning. Also for some reason if there is any kind of drastic weather change it upsets my UC even worse and makes getting ready twice as long.
Posted 5/18/2009 2:02 PM (GMT 0)

Mornings were and still can be (sometimes) the worst for me. I used to call 11:00 am my wake up time because until then I had a terrible time bathroom wise and the worst "brain fog" ever. It seemed after 11:00 am, everything eased up.

Oh, and welcome to the forum, Jen O! :-)

Posted 5/18/2009 2:21 PM (GMT 0)
Mornings were always the worst for me. When I was in a bad flare, I remember nights I woke up 5x drenched in sweat. I would have to run to the toilet and stay in their for 20 minutes with pain and cramping. It was awful.

I am happy you got a second opinion. What did he think? I hope you can get results from medication. Blood tests usually come back pretty quick. Maybe you will hear something today. Keep me posted!

Posted 5/18/2009 2:45 PM (GMT 0)
My mornings are usually worse. It's the reason I wake up at 5:30, just so I can be ready to go to the office when I need to.

I am prone to night sweats too. Not fun waking up soaked, changing and throwing on the robe just so I can lay back down in bed.
Posted 5/18/2009 7:00 PM (GMT 0)
Mornings are still my worst (most active) time of the day but I find with IBD bathroom trips can be very random even if you're not having alot of frequency, this disease is so stupid and annoying to say the least.

:)
Posted 5/18/2009 7:07 PM (GMT 0)
Mornings were tough and, when I flared, after dinner I would get spasms and feel like I needed to go every 15 or 20 minutes! Very annoying. Thanks goodness for the DVR.

I get night sweats from prednisone (I thought) and also from being pre-menopausal. But only my chest would get sweaty. It is weird but not uncomfortable.
Posted 5/18/2009 9:25 PM (GMT 0)
When I was flaring bad, I got night sweats really bad too, worst thing was I was in hospital for almost 4 weeks having these sweats and going to the Loo through the night constantly. Didn't get a proper nights sleep for the best part of the 3 weeks, it was awful.

I like coming on here, but it just makes me depressed reading through how we suffer.

Got to keep the ol' chin up I guess.
Posted 5/19/2009 12:08 AM (GMT 0)

 First thing in the morning (there is no leisurely laying around in bed) is when my symptoms are most active.  Gas starts around bed time (9pm or so).  Sometimes sleep is interrupted at 2am or other random times.  After 8AM, I'm fine - no symptoms at all.  Maybe it's the best it will ever be for me.

My wife says I'm "doing pretty good", since she remembers years ago where I was running into the bathroom all day and night. 

Posted 5/19/2009 12:33 AM (GMT 0)
Mornings and nights are worse for me....seems to ease up around 10am until about 6-7pm.... I have been having the night sweats too....some nights I get up soaked and have to change... That is a new one for me - have had this a long time and never had the sweats like that until this flare...
Posted 5/19/2009 2:15 AM (GMT 0)
Yep, mornings are the worst for me too, generally speaking. I can tell by the way I feel when I wake up. My joint pain went away after taking meds for about 2 months, I am happy to say. One less thing to worry about! I am still trying to figure out all the dietary stuff. Welcome to the forum. It is great.
Posted 5/19/2009 1:39 PM (GMT 0)
My colon wakes me up every morning around 5 am , I go to the bathroom and go back to sleep until 9, then I take my prednisone and feel fine until after dinner... So the worst time of the day is between 4 am and 7 am and after that between 6 pm and 10 pm...
Posted 5/19/2009 11:16 PM (GMT 0)
When I used to sweat like that, I would put a fan directly on me all night. Its cold at first but I wouldnt end up changing shirts and sheets every hour lol
Posted 5/19/2009 11:22 PM (GMT 0)

When I'm not "flaring", mornings are the worst for me.  I'm in a pretty bad flare right now so the whole day has been bad.  Latley I've been getting the sweats and very bad urgency at night to run to the bathroom.

I feel like my urgecny at night is spured on whenver I roll over on to my side...does this happen to anyone else?

Posted 5/21/2009 12:34 PM (GMT 0)
Mornings are really bad for me too. Does anyone know why that seems to be the trend? I also find that rolling on my side triggers it... interesting...
Posted 5/21/2009 2:18 PM (GMT 0)
yup, mornings bad, as the day goes on the symptoms ease, until by the evening I'm ready to rock! I get up around 6:00am, to leave the house by 8:30, & run to the bathroom URGENTLY anywhere from 4-6 times. Sometimes more, sometimes less. The night sweats are a common extra-intestinal manifestation of UC- they're horrible! I can remember waking up soaked & freezing, to the point where I'd have to take a shower in the middle of the night to warm up. Then my bed would be damp too, gross. I found putting a bath towel on the bed helped- at least that way, you can change your pajamas, take off the towel & put down a new one, & get right back to bed & be fairly warm & dry. I don't think you're on pred, but that will cause night sweats also.

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