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Is it the darned Prednisone?

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Posted 5/28/2009 8:37 PM (GMT 0)
Hey guys! Here I go again...

I knew I hated Prednisone, but I don't remember it being this bad this quickly the last time I was on.

I have been in this flare now for 6 weeks and I am getting VERY frustrated. If you haven't read my posts, up all night with D in the bathroom. It had been bloody but now just liquid, so I guess it's helping somewhat. I need to update my signature to say that I started 30 mgs Prednisone in the am and 10 in the pm 10 days ago.

Today I am just miserable... Fortunately (or unfortunately) it is my day off work this week. I have been laying around with my eyes closed. They are SO dry. My mouth is sticky. My nose is dried out. Trying to take a nap but my head just keeps spinning ideas around in it.

Last time I was on Prednisone, I ended up getting thrush. I went through 4 different drugs before that finally went away.

That time, I didn't sleep in days. Finally got the old GI doc to prescribe some Ambien and that got me a couple of hours at a time of sleep, took it until I tapered and was sleeping better.

Last time my blood sugar was out of control (in the 200s). I have been checking and it's in the 70s in the morning, just where it should be, but I am peeing all the time.

Do you guys think this stuff is all the Prednisone again?

I got my blood drawn on Tuesday morning to see if I have Remicade antibodies in it and to see how much levels are in my bloodstream to see if I need a higher dose / to see if it's not working anymore, etc.

Does anyone know how long it takes to get those results back? I really need to get better! I know a lot you guys have had it worse and maybe I'm just a wimp...

I really and truly hate this disease!

Jen
Posted 5/28/2009 9:07 PM (GMT 0)
I think it's the pred., I blame everything on the pred! I had thrush the last time I was on pred too, hopefully you don't get it this time. I hope you find relief soon!
Posted 5/28/2009 11:29 PM (GMT 0)
I too blame everything on the Pred. It is evil, but I know, I know, helps lots of folks. How much Remi are you on, and how many doses have you had? Unfortunatly, there are not alot of drugs left, once you've hit the biggies. Have any rectal meds hanging around? They can work quickly. Sorry for your pain.
Posted 5/28/2009 11:43 PM (GMT 0)

First of all I am one of those who LOVES prednisone.  But, sounds like you may have some of the side effects others have.  I started on 40 mg. - NEVER took any after 8 a.m. so no problem sleeping - took it all at once.  I love the nice skin, energy, and it stopped the bleeding.  After tapering to 20 mg. started bleeding again - added the 6 MP and now down to 10 mg.  and tapering symptoms are worse - moonface is no fun either but ok it the prednisone is working.  I am seeing a special specialist June 18 so holding my own until then (I hope).  Good luck!

ElaineNY

Posted 5/28/2009 11:53 PM (GMT 0)
I detest that drug. It screws with my cognition, emotions, and results in an obsessive fear of developing avascular necrosis.

I wouldn't be surprised if the symptoms you described are a consequence of the prednisone. It's well known for causing insomnia and hyperglycemia.
Posted 5/29/2009 8:27 PM (GMT 0)
Katmom and others,

I am on 5 mgs of Remi per kg dose (I weight about 120 pouds and I'm bad at math, so I'm not sure how exactly many mgs I'm getting). I started the Remi the first week of October 2008. I never thought until I started on the forum last month to count how many infusions I have gotten. Maybe 8? I was on the every 8 week program. (Maybe I still am, I don't know yet, though)

Anyway, I recently switched GI docs. I am waiting on those antibody tests still. I don't know if the doc is on vacation or what. It seems like the Prednisone is kicking in. I'm getting all of the side effects. BUT only had one BM in the last 24 hours! LOTS of gas, though. I can deal with that.

I'm going on vacation in a couple of weeks. THAT is what is making me nervous! Oh the things I would have never thought I would have to worry about!

Jen
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