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Ulcerative Colitis
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Posted 8/10/2009 12:40 AM (GMT 0)
Hello to all. First of all I'd like to thank all for your comments cause they are so helpful!
I have a mild colitis so in a way comparing to worst cases is helping me.
But we all want our situation to go better right?
In the past year I worked a lot on my fears and started to walk more, to go out more and to deal with the emergencies. I changed a bit my diet and got a severe pneumonia that got me to forgot about my colitis.. really! My sense of humour keeps me going on even though the toilet humour is not always funny :P
I need a few adivses here. I always have the feeling im full. Let me explain. If i'm feeling hungry, there is always part of my belly that feels full. So if i eat a bit I feel like I eaten just a huge buffet!!
It's a bit annoying since i feel more heavier and intoxitated. I eat less than before and if I listened to myself I would almost not eat at all! I'm afraid to do a cure or cleanse as I think it might irritate.
Do you have this sensation that your belly can never be tucked in??
What are your tricks?
Thanks for you replies.
Stefanie
Posted 8/10/2009 12:57 AM (GMT 0)
I don't know... do you have gas or are you constipated? (Yes constipation sounds stupid lol but I think it happens with inflammation of the rectum, at least with me). I think that's usually when I feel full for no reason.

If you are worried about not eating enough, maybe break it up into multiple small meals rather than three big ones?

That's all I can think of. Do you have any other conditions?
Posted 8/10/2009 1:06 AM (GMT 0)
Hello pipe. First what a name!
Well thanks for your reply.
I have no constipation at all. I have some gas yes but in a normal way I guess.
I don't eat 3 meals a day. I eat like 2 toasts in the morning, about a small meal around 4 pm (like a piece of quiche and salad) and if I eat during the evening i feel full. Actually after my second meal at 4 pm I would say I can be full for a day. So If I would listen myself all the time I would only eat 2 toasts and a small meal.
And I cycle about one hour everyday.
stefanie
Posted 8/10/2009 4:49 AM (GMT 0)
lol Thanks XD I'd explain it but I don't know if I'd get in trouble; maybe you can guess.
I guess then the only other thing I can think of is your stomach can't hold as much because maybe you ate less during a recent flare (I have no idea). But that doesn't sound like the same feeling. Others might have more ideas. But I'll keep brainstorming til you get more helpful replies
Posted 8/10/2009 1:50 PM (GMT 0)
Thanks Pipe!! Well I still believe that your name is fine and I'm sure this elephant pipe can play the flute.
Well it's weird to say but maybe I'm not that much hungry anymore. In march I didnt eat for like 3 weeks cause I was very sick (pneumonia, fever, diarrhea) and I didnt drink any alcool too. Wich I do a lot usually. So I think it just has to do that i might need to not eat at all after 4 pm. And if so just a small fruit.
I'll try that this week. Thanks for your help.
Posted 8/10/2009 1:50 PM (GMT 0)

hi tournevice,

are you on any medications?  Do you drink a lot of water during the day?  I have been on Prednisone for a little over 2 weeks and notice this feeling since being on that.  Also, I have completely cut out all drinks besides water and since I drink so much of it, I feel like it makes me feel very full.  Yesterday I definitely had that "cant tuck your belly in" feeling all day long.  I attributed it to a lot of water, the heat outside and my medicine...  Hoping it goes away soon, its pretty uncomfortable!

Posted 8/10/2009 2:03 PM (GMT 0)
Haha the can't tuck your belly feeling! I live that expression. They are granny undies to tuck in you know!
Well I drink plenty of water, cycle about an hour each day.
I'm on the salokalk suppositories once a day but I dont always take them regularly :S
I think over all I'm better than last year. I do much more exercise and drink lots of water and I did some diet changes. Not drastic but still over all I'm better.
But I find the thoughest part is the diet part. To find what really works for us is really difficult. And you need to test some diet to see if it's working. And I find that even with the diet the disease is a "*****" and will appear even on a good day without reason.
I see you are testing the spinach and sunflower diet... can I have you feedbacks on that?
Thanks,
Stefanie
Posted 8/10/2009 2:18 PM (GMT 0)

The spinach and sunflower thing is very easy to incorporate (and I think it is good for me to do even if it doesnt put me into remission!!).  I feel like it has helped, but then I also started it at the same time as prednisone, so it could be wishful thinking.  The spinach does make your poop green (kinda gross) but I think overall I have been feeling better (Until today when I am laying in bed sick with an "episode day" :( NO FAIR!) 

I would suggest if you try it, to do the canned spinach at first (just a little) and maybe the sunbutter instead of seeds.  I think these are a little easier on the system and then you can work into the raw stuff.  Right now I am eating about a cup of raw spinach (on a turkey sandwich) and 1/4 cup of seeds every day.  I really hope it works for you!!!

Posted 8/10/2009 2:39 PM (GMT 0)
Mmmmm that sounds a bit boring.. thought the turkey make it all!!
I'm not sure about grains like sunflower cause I find nuts are making me fuller and irritated.
I never heard of prednisone. Do you have side effects?
Episode days suck. I just want to be alone in my pijama on those days. And it always happens when I had a social thing planned!!!!
So mainly you are eating one sandwich a day and a quarter of cup of seeds? Is that your diet at the moment?
Posted 8/10/2009 3:18 PM (GMT 0)
yeah, eating it every day does get a little boring but i know it is good for me, so I carry on!! :)  My daily diet right now looks pretty much like this:

Breakfast- banana

lunch- turkey & spinach sandwich

dinner- whatever we are having that night

snacks- activia yogurt and sunflower seeds

no matter what, i am eating spinach, the seeds and a banana every day (the banana is for the muscle cramps with prednisone!!)

PJs and bed- that is me today :)

Posted 8/10/2009 3:45 PM (GMT 0)
Whenever I eat lettuces I get that feeling. I can't eat iceberg lettuce at all.
Trying skipping the salad for a day or two?

And nuts would give me that feeling, if I eat more than a few. Ugh, what an awful feeling, I hope you can find some relief. Have you tried gas-x?
Posted 8/10/2009 3:51 PM (GMT 0)
Hello Peety. I just love this site. Everybody is so nice!
Well I dont eat that much salad anymore. And nuts well a few.
I never tried gas X. Ill have a look on wilkipeia but bare in mind I'm in montreal and sometimes the usa products have different names.
I talked to a friend that has normal bowels.. and she says she doesnt eat that much too! I think it has also to do with the fact that we think eating healthy is about 3 meals a day. But I think 2 is enough.
And maybe the full feeling is trapped air too?
Im on the metamusil this week to try to make the stools more solid and grapped together. So maybe my body will cleanse better?
I'm still carefull about probiotics since I tried them and was really cramping. I heard by my nutritionnist about prebiotics.
Any comments on those?
Thanks.
Posted 8/10/2009 4:53 PM (GMT 0)
I take Gas-X every night before I go to bed. It's awesome.

Since you're in Canada I'll say the main ingredient in what I take -- Gas-X Ultra Strength -- is simethicone 180mg.
Posted 8/10/2009 5:05 PM (GMT 0)
The probiotics can be harsh, but don't give up on them. They made me feel bloated at first. Start with something not very strong, work up slow.

I could not handle high fiber, so no Metamucil for me.

I get a headache if I skip a meal. I have to eat something, even if it's just a little something. But I also eat because I'm bored or want a break from what I'm doing! Hence I carry more pounds than I should...
Posted 8/10/2009 5:28 PM (GMT 0)
Yeah well it's difficult to find if you are truly hungry when you feel bloated or full all the time.
I find that diet is so personal and even if they are main guide lines it's always up to you to listen to your body and therefore test all the time... wich can lead to bad conclusion sometimes!! I still remember the cleaning tea I got a few years ago... with all natural sena! I still feel the tornado inside me and it was like... "Should I expect a Hiroshima?"
Then again one might be able to put high fiber and another won't.
And I know about confort eating. My nutritionnist says that when you feel hungry from the top center of your belly means its emotional. real hunger is much lower. Don't you have sometimes the crave for a coffee with some sugary paste like muffins or danishes? I used to have that all the time but only at work.
But when you have colitis you have the "never empty" feeling. Like there is always anyway a cumulation of waste and crap in your body somewhere... somewhat you can't never relax.
I'll look for gas-x and im trying metamucil and peppermint tea for this week.
I dont think I should try probiotics with metamucil cause obviously I don't want a second Hiroshima!!
Posted 8/12/2009 4:59 PM (GMT 0)
I do a lot of comfort eating, that's for certain.

And I know what you mean about that feeling. Never being comfortable. I feel so much better now that I am on Remicade.
Posted 8/12/2009 6:40 PM (GMT 0)
Food allergies and sensitivities can cause gas, bloating and water retention. IBS can contribute to that "already full" feeling. There's a great book called The False Fat Diet that may help you explore the food allergies/sensitivities question and determine if some of the most common offenders are problematic for you. You may also find digestive enzymes helpful.
Posted 8/12/2009 6:46 PM (GMT 0)
That is interesting. Thanks for the book suggestion.. looking forward to it.
I see you are on remission for years now and I can see you integrated some supplements and other helpers.
How do you dose all that? And how it helped you?
How was your colitis before?Thanks.
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