Is bleeding okay? I want to get pregnant soon...

I read kops2da/ElaineNY's post from last month:
"Her gastro said if I was not bleeding enough to be anemic (keep up the blood tests) not to worry about bleeding".

Do I have to worry about a little bleeding? I read on this board that I shouldn't get pregnant while in a flare. Other than a little blood a couple days a week I have no other symptoms. Does this count enough to hold off on getting pregnant???

I would like to get pregnant soon and would rather not be on a ton of meds. I am considering a fecal transplant next month.

Any advice is appreciated.

Here is what I am taking now:

Canasa 1X or 2X daily

Upon arising: Freeze dried wheatgrass equal to 2 oz fresh
1 oz concentrated Aloe (no aloin)
with proprietary blend 120 mg of slippery elm, german chamomile flower, marshmallow root,
borage leaf, peppermint, pau d' arco bark, blessed thistle leaf, ginger root

With breakfast: Boswellia 500mg 65%-70% acids
Turmeric extract 600mg 95% curcumin (plus 200mg tumerica root)
Fish oil 2000mg
Prenatal multi and zinc and pycnogonol

With lunch: again Boswellia 500mg

With dinner: again Boswellia 500mg

Before bed: Wheatgrass 2oz , aloe 1oz , turmeric
enteric Fish oil 1000mg
enteric 50 billion probiotic: Ultimate Flora Critical Care
plus L-glutamine 1000mg

Bedtime: Vitamin E enema 8000IU daily or ever other day

Thank you Quincy, that helps. I will look into retention enemas.

Many have taken them through a whole pregnancy and maybe you may just need maintenance of twice a week....depends on if you flare or not.

The oral 5ASA meds you should be on are ones that hit the terminal ileum and upper colon...and since they dissolve there, you shouldn't need a large dosage since the part between the rectum and cecum are clear. You just want enough to keep inflammation as calm as possible.

Pregnancy is a hormonal up and down....a perfect brew for a flare.

I've not been pregnant and made a conscious choice to not do so.....but you should realise that you need to learn to deal with UC because it's a reality of your life. If you don't have the tools to know what to do, you have the possibility for the between area to become just one big flare.

5ASA meds are also first-line with the lowest side-effects if one can use them. Colazal isn't necessarily the best med for you possibly, but you should be on the enemas...4g to start and then lower to 2g for maintenance.

Make yourself options for when it's too late, you'll be desperate and not know what to do. And if you worry about being pregnant, I hear that once babies are born it's no walk in the park.

You have the opportunity to get real smart about it all....just my perspective since you have an incredible want to be pregnant.

quincy
6

My GI was always the opposite. She was always saying how we have to get the bleeding to stop. I guess that was the main concern for me, even before it was really bad. I did however end up waiting too long without adequate treatment and beecame severely anemic and felt awful. If I were you, I would try to get the bleeding to stop, especially if you can do so with some kind of rectal meds, then try to get pregnant. It sounds like you're doing pretty well and maybe you just need a little push to reduce the inflammation. Goodluck getting pregnant!

I have been advised to wait until i'm not flaring before getting pregnant as pregnancy can send you either way, for some pregnancy sends people into remission but for others it makes it worse.

As it is i did get pregnant last October, the UC was undiagnosed at that point but was flaring and got worse when i became pregnant, i then had a miscarriage in December, no-one knows for sure what caused it to happen, it could be my clotting problem (but i was on fragmin injections so it shouldn't have been that), the fact i had untreated UC or just one of those things but i was left heartbroken and am not willing to risk another pregnancy whilst flaring just in case.

I know people have had healthy babies whilst flaring but equally others haven't, you really must look into it and weigh things up carefully. Good luck whatever you decide to do.