I'm so sorry to hear this. That has to be terribly frustrating to deal with, and I hope you will find some relief.
This is one of my fears about having to stop taking meds (as much as I hate being on them and risking the side effects) and go down the surgery path. Because my GI at one point mentioned inflammation at the ileum and that I might be dealing with a Crohn's/UC combo, I would fear putting myself through surgery only to become more diseased in the small intestine and wind up right back where I started with meds.
I'll be thinking and praying for you.