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Ulcerative Colitis
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Posted 9/9/2009 7:51 AM (GMT 0)
As mentioned in previous posts I've been in a bit of a pickle with the whole urgency issue, and I finally stopped being stubborn and contacted the hospital. In the initial phonecall I was told to start another course of steroids which I have duly done.
The doctor phoned again this morning (2 days later) and said that he had discussed me with another specialist and they have decided I need to up the suppositories to twice a day (which will be interesting as all I do is poop in the morning!).
Also they want to see me in the next couple of weeks, for a barium follow through and potentially a colonoscopy. (I previously only had a flexi sig), this is to definately rule out Crohns.
So, here we go again! Will this ever end?
Also have an appointment with the dietitician this afternoon to tell her that I haven't been able to add anymore food into my diet because my bowel is behaving like a tantruming toddler!
Ho hum, I'm going back to work tomorrow regardless!
Posted 9/9/2009 10:55 AM (GMT 0)
I wished I could tell you that it will end but I can't :( However, I can say that it MAY get better. But it makes you feel like you're accomplishing something with the doctors when you finally get things done though doesn't it?? :)
Posted 9/9/2009 12:39 PM (GMT 0)
When I'm having a lot of poops in the morning and am told to do a suppository, I just wait until I think "maybe" I'm done with the pooping..... and then, even if it's not in there forever, the supp. does some good. Best of luck to you!!
Posted 9/9/2009 1:18 PM (GMT 0)
I'm really glad to hear you're going to have a thorough evaluation. Good for you, advocating for yourself, and it really paid off this time. I hope you get answers that will help you.
Posted 9/9/2009 5:57 PM (GMT 0)
Keep in mind that even if they don't find anything in your small bowel doesn't mean that it's still not crohn's. Two fistulas is probably the alarm bell that leads your doc into believing you do have CD since it's very rare to have it with UC....especially 2 of them.


:)
Posted 9/9/2009 7:35 PM (GMT 0)
To be honest I'm not sure they wil find anything, especially as I will be well into the steroids by the time it's done, so I imagine any inflammation should be lessened and therefore more tricky to spot.
That said the surgeon said that the fistula he opened up did not look like it was a Crohns type fistula and that my bottom does not look like a Crohns bottom. I had to take his word for that, I certainly wasn't going to ask to see proof!
They keep telling my I'm not a textbook ulcerative proctitis or Crohns case, the dietician reiterated that again this afternoon.

Whatever it ends up being I'm happy to say that I feel like I'm being well looked after and it's just how my chuffing luck goes that I wouldn't be a straight forward case. (I've always been difficult!) turn
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