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Posted 8/19/2009 5:14 PM (GMT 0)

I have to agree with Dr. A - I have sciatic nerve problems (way back before UC) - sounds like it could be that.  A chiropractor fixed me right up. It has returned occasionally with UC and I may have to go again to take care of it if it continues to bother me.  At age 69 a lot of stuff "bothers" me!! 

ElaineNY

Posted 8/23/2009 6:09 PM (GMT 0)
Do some google searches for pelvic floor muscles and/or disorders...
Posted 9/9/2009 10:28 PM (GMT 0)
I had a similar pain which led to an mri that found AVN or avasculer necrosis. Which I got from the pred.
Posted 9/10/2009 11:58 PM (GMT 0)
Hi, I've suffered with Sacroiliac joint (SI joint pain) for 16 yrs. It took over a year to get diagnosed. My Pt showed my husband how to realigned me because it was going out daily.

The biggest thing that I learned is to ice it. Get a plastic bag, fill it with ice, and sit it right on the side of the bum (on your skin) that's hurting. It's cold, really cold, but it will get so cold that it's numb. Leave it on there for 20-30 minutes at least. Do this several times a day. It will help with the swelling and inflammation.

Hope this helps.
Susan
Posted 9/11/2009 12:14 AM (GMT 0)

Subrew said...
Hi, I've suffered with Sacroiliac joint (SI joint pain) for 16 yrs. It took over a year to get diagnosed. My Pt showed my husband how to realigned me because it was going out daily.

The biggest thing that I learned is to ice it. Get a plastic bag, fill it with ice, and sit it right on the side of the bum (on your skin) that's hurting. It's cold, really cold, but it will get so cold that it's numb. Leave it on there for 20-30 minutes at least. Do this several times a day. It will help with the swelling and inflammation.

Hope this helps.
Susan

That's a little scary. Not even in their scope of practice (the alignment portion that is).
Posted 9/11/2009 12:47 AM (GMT 0)
I live over 50 miles from my PT. It was hard for me to go there everyday. It was helpful and my husband is a smart man. It wasn't that difficult.

-Susan
Posted 9/11/2009 6:57 PM (GMT 0)
Alot of doctors don't know how to treat SIJ dysfunction.  And usually xrays and mri's don't show much either.  I did alot of therapy along with adjustments, massage therapy and so on.  I didn't get true relief until I found a doctor who knew what I was going through.  HE has SIJ dysfunction.  And knew what all is involved.  (meaning all the areas that are effected by it)  It gets worse as time goes on.   Anyway..... it wasn't until after I had several months of treatment, injections and so on before my pain levels decreased enough to feel somewhat good again.  It was after that I was able to actually SIT at my computer for awhile and do more research. 

Seriously....  go to this website:   lowback.com    It will show you why you hurt, and what the heck is going on.   It will show you how to do self corrections.  It took awhile for me to be able to do full corrections because muscles were so tight and just holding me in the wrong position.  And finding one that worked for me.  Not only that, but when I first started,  I needed to do them throughout the day.  But, now I can do self corrections as needed.  And usually I can fix myself before I feel like I am just falling apart. 

Do I still have problems? Yes.  Walking, standing, sitting for long periods do make me flair up.  As well as the weather and when I am sick I tend to have difficulty as well.  But it's nothing compaired to what I dealt with for the first 2 years. 

 

Posted 11/26/2009 8:53 PM (GMT 0)
This is my first time posting here but I ran across this thread and I have very similar symptoms. My chronic pain started about 2 years ago, when I was in the best shape of my life. I had spent 4 years doing triathlons and cycling for over 9 years.

I took a break and about a year later is when my pain started. Initially was low back pain only which later moved into the right buttock, travels down the right leg and is in my hip as well. I am MUCH worse in the morning, and in the morning I am unable to extend my right leg while sitting without intense pain in right buttock. My hip aches as well and my entire right leg aches all night long waking me up, as well as my right foot.

I had an MRI last october showing disc desiccation at L4/L5 and L5/S1 along with small paracentral disc osteophyte at L4/L5. I also have a bugling disc at L5/S1. Xrays of SI joint were positive for sacroilitis. Xray of hip was negative for Avascular Necrosis however after reading this thread I think I will push for an MRI of hip next.

I've had: injections in SI, piriformis, and epidural spine. None seemed to work.

I eventually found a great McKenzie PT who has me doing prone press ups and when I started 3 months ago I had about 8 weeks of nearly nirvana and very little pain. I was off all my meds. 4 weeks ago as the weather changed I worsened and I am back to where I was before- back on all my meds (anti inflammatory, muscle relaxers, vicodin) , unable to sleep at night and very achy and sore for 2-3 hours after I wake up. I improve as the day goes on, and when the anti inflammatories kick in and/or vicodin + ibuprofen. I am back with my PT but so far the same prone press ups have not resolved the night pain in right leg and foot or my morning pain. I no longer have shooting pains down the leg and havent in some time which is nice. Pretty much at my wits end with the choronic nature of this, most of the time lately I am deeply depressed.
Posted 11/26/2009 11:03 PM (GMT 0)
I think I mentioned what helps somewhere along the way. Not much use to live with it unless you really enjoy the misery.
Posted 12/4/2009 12:47 AM (GMT 0)
SI Joint pain is so terrible. What do you know about SI Joint treatment. Here are some information I would like to share with you.

sacroiliac joint treatment
Posted 12/4/2009 6:01 AM (GMT 0)
Please look into pelvic floor dysfuntion... The book Headace in the Pelvis provides a wealth of information. There are also excellent pelvic floor PTs in different parts of the country. I began suffering from tailbone, hip, rectal and some groin pain for the last six months and have so far had pelvic floor PT, an angoigraphy MRI that showed a completely unexpected acetabular labral tear/detachment in my right hip; I will most likely need arthroscopic surgery to repair this and there is 50/50 chance the tear is causing the rectal and tailbone pain which would be a blessing. I am currently undergoing spinal epidurals in the L3-S1 areas, just had L5/S1 done yesterday...I also have some nerve compression/degeneration in those discs and was told L3 and L4 can cause pain in the thigh and or hip. Unfortunately this pelvic floor stuff has caused me to get levator ani which causes painful spasms in the rectum and groin, My pudendal nerve is also getting compressed due to the spasms which causes terrible burning in my rectum...thank the Good Lord my UC has been quiet throughout this entire ordeal and I am most grateful for that. Please check out pelvic floor issues; in your case it sounds like it could possibly be piriformis syndrome. If muscle relaxers and heat help it most likely is muscular in nature. Hope this helps
Posted 3/24/2018 1:42 AM (GMT 0)
Hi I have exactly the same problem but none of my doctors seem to know what is wrong and it is so frustrating. Have you gotten a diagnosis yet?
Posted 3/26/2018 10:46 AM (GMT 0)
Kacana,

ask to be referred to a rheumatologist. If it is auto-immune spondylarthropy they will be able to diagnose it and suggest options.

I have it, and my rheum was of the view it is a side effect/additional manifestation of UC and if it got unmanageable I could try Humira. I'm not there yet. and in my case, diet, turmeric and oregano oil keep most of the joint pain at bay.
Posted 3/28/2018 1:41 AM (GMT 0)
Thank you for that advice...oregano is something I have not tried a yet.
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