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Ulcerative Colitis
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Posted 9/8/2009 4:01 PM (GMT 0)
I need some advice.  I have been really exhausted lately and don't know why. Does this mean my disease is not under control? I am on colazal. I have so many health problems besides the colitis. The fatigue is unreal. We traveled this weekend and my stomach bothered me yesterday. I took some loritab 1/2 a pill in the a.m. and it got me through the day. But today, I am exhausted and somewhat achy too. I am not sure if this is the colitis or perhaps the depression acting up. Any suggestions? I have so many health issues: low thyroid, colitis, depression (b/c of the stomach woes) and now high BP and blood sugar is borderline diabetic. Sometimes I feel like I need to quit my full time job just to take care of my health. But I am 54, have worked very hard all my life and keep pushing myself. How do you know when you are pushing too hard? Thanks for listening, sorry for the rambling and god bless.
Posted 9/8/2009 5:10 PM (GMT 0)
You sound burned out. You need a break. Some suggestions: Take time off from work. Go on a retreat Try Tai-chi, meditation, yoga .... Learning how to relax can help you.
Posted 9/8/2009 5:48 PM (GMT 0)
I think you are right. I had a busy weekend of travel and I just overdid it. It is so hard because I want to have more energy and I just can't do the things I used to do. I need some rest.
Posted 9/8/2009 7:29 PM (GMT 0)
Hey jeanneac, I know all about that fatigue! I'm not sure with me if it's just the UC at this point or age/hormones and other things combined (I'm 50.) I have finally come to realize that traveling and other things that I used to do quite easily is now taking it's toll so I've given myself permission to take it easy when I need to. For some reason I used to feel guilty doing this, now I just figure it's my time to relax...take a nap, go for a massage, take a good long walk and smell the roses! I was always on the go...even when I was home I found that I couldn't quit. I've decided to just go with how I feel...I hope you do the same. Take care!

Posted 9/8/2009 7:33 PM (GMT 0)
I noticed someone said they do fecal implantation. I thought that was only in Australia and the scientist had 100% success rate of having his patients go into remission/cure. Let me know I am very interested.
Posted 9/8/2009 8:44 PM (GMT 0)
Fatigue is common for those with inflammatory diseases and since youhave other health issues as well then I'm sure fatigue is just part of the package deal for you but I know for me execising daily on a regular basis has helped tons in the energy department. Anything you can do even for just 30 minutes/day will be helpful with your fatigue and overall health as well.

:)
Posted 9/8/2009 9:57 PM (GMT 0)
     I get fatigued easily now too.  I used to be able to do a lot in the course of a day.  Not sure whether it is all the meds or my age...63 or a combo of both plus the UC.  I am starting to go into remission, finally, after suffering with a three and a half month flare.  Didn't even make it to the shore all summer.  Oh well.  I am borderline diabetic too Jean, thanks to prednisone.  Just have to watch the sugar and carb intake.  I overdid it last night, ate half a box of Good and Plenty and my blood sugar went up to 159 and it was 1+ in my urine...not good.  However, this morning it was down to normal.  I take Benicar for my blood pressure and it keeps it pretty stable. 
Posted 9/8/2009 11:21 PM (GMT 0)
I have not been able to exercise for 2 weeks now b/c of a D & C but can start back in a few days. That's probably some of my problem as well with some depression creeping in too. I miss my exercise routine of swimming. It makes such a huge difference and soon it will be too cold to swim. I will have to find something else for the winter.
Christine, I can't believe you had sugar in your urine at 159, that's a pretty low threshold! Wow. I thought it had to be closer to 200 to show up in your urine. ouch!
We had a very busy weekend and I drove home until after 9 pm last night, got up and went to work this morning. It was a rough morning. Now I feel better. Thanks so much for all the advice.
Posted 9/14/2009 2:12 AM (GMT 0)
Take it easy when you feel fatigued! Between the thyroid & chronic inflammation, your body has lots of "work" to do, trying to right itself. I used to be able to work 9-5, take evening classes, cook, and clean house like a demon-- but not any more. Does it bug me? YES, INDEED, but I just have to accept my physical limits to stabilize the blasted UC. So I finally decided that a less-than-perfectly tidy home beats a UC flare any day ... It could be, too, that your energy level will improve when you get thru menopause. / Old Hat (30 yrs with left-sided UC; taking brand-name Colazal longterm)
Posted 9/14/2009 9:55 AM (GMT 0)
Thanks old hat! I too am so used to being able to do more. I hate this! I am way over not having a clean house. lol... But, not being able to exercise like I used to is hard, especially since I have gained so much weight. Thanks again for the advice.

Posted 9/14/2009 6:47 PM (GMT 0)
I feel your pain.
I push myself until I'm ready to collapse. Especially in the garden.
And I played three rounds of golf in the past four days (and the last round was just awful!).

My husband scolds me, sit down and rest for a while!
I know I should, I'm just weary most of the time anymore.

I have success losing weight with a strict lo carb diet, have you tried that?
Posted 9/14/2009 7:05 PM (GMT 0)
When I'm flaring I need a lot of extra sleep just to function. Be sure to cut yourself some slack on the exercising and the weight gain. I know it is hard so hang in there!
Also, if you are suspecting that some depression is coming into your life, you should think about seeing someone before that slope gets too slippery. It sounds like you have had that treated before so hopefully you know when to you need help. Good luck!
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