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Anyone here suffering from night sweats?

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Ulcerative Colitis
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Posted 10/9/2009 10:56 AM (GMT 0)
Hello everyone

Well, I am going through a nightmare right now.  For the past 6 months or so, I have been suffering from horrible night sweats.  I wake up in the middle of the night, and have to change my pyjamas.  It is so awful.

It's bad enough that my UC is flaring and now I have this to deal with as well.  I have been to my Dr and had x-rays and ultrasound done to rule out TB and lymphoma. Everything came back normal.  Bloodwork was normal (inc. thyroid function).

So, I cannot figure out what is causing this?  I have read up loads on the internet and it seems nearly every article out there is aimed at women! Including most of the supposed "cures" for the sweats.  I can't believe I am the only man suffering from this!

My GI said the UC can cause night sweats. But, I have never had it before. Very confused.

Has anyone else out there had this problem?  Please help!  I need to be able to sleep again!

Many thanks

Take care

 

Posted 10/9/2009 11:11 AM (GMT 0)
Yes I get night sweats when I am in a severe flare. So bad that I have to change my pj's as well.
Posted 10/9/2009 11:29 AM (GMT 0)
I get night sweats too. When I was in my early 20's I got them because I was flaring so much. Then they stopped and then started again when I was in my mid 30's but this time I do not believe mine are Uc related anymore. But yes, night sweats with Uc is actually pretty common. Cure for them? I have NO clue but I would be interested in finding out how to stop mine :)
Posted 10/9/2009 1:47 PM (GMT 0)
For me the sweats are definately the prednisone... even the slightest exertion now and I start to "glow" and if I keep it up.. full blown sweat... I just have to make sure I drink TONS of water because if I don't.. the muscle cramps are HORRID....
Posted 10/9/2009 2:57 PM (GMT 0)
I had night sweats big time when I was flaring. I was not taking prednisone, so you can get it just from UC. It was awful. I gave up even changing my pj's because it would happen so often during the night. Every hour or so, at the worst of it. It was just miserable. If I had to list the one worst thing of the whole flare, it just might be the night sweats.
Posted 10/9/2009 3:47 PM (GMT 0)
Yes same here Ack. I was never on prednisone but yet I still had night sweats. It is horrible waking up to being soaking wet! Such an icky feeling!
Posted 10/9/2009 3:53 PM (GMT 0)
I only get them when on a higher dose of pred. Sometimes I stripped down and just slept in my bathrobe, which helps with absorption.
Posted 10/9/2009 4:14 PM (GMT 0)
i also get the nightsweats with flares, it doesn't take Prednisone to be soaking wet at nights. When I take Pred,I literally sweat all day and love to sit under the ceiling fan switched to full blast. Under prednisone, I get so hot, it is ridiculous. I remember my first flare of UC which was actually nothing more than a mild proctitis and I was sweating like crazy and it scared me. Maybe it is the fact that we have inflammation and the body is trying to fry it. I also sweat a lot when I have a severe sinusitis, so inflammation in the body in general could contribute to it.
Posted 10/9/2009 4:59 PM (GMT 0)
Im like susiebuddy and seem to sweat at the slightest thing i end up looking like a wet tomato its driving me nuts am on pred and 6mp
Posted 10/9/2009 5:24 PM (GMT 0)
I think nightsweats are pretty common in UC- I know pred can cause them, but so can UC itself. I had them something awful for a couple months, so bad I'd get up & have to take a shower to warm up, then put on dry pj's & go back to a damp bed! Putting a thick towel on your bed will help- then you just have to toss the soggy towel & lay on the dry sheets. I always assumed they were from the pred, but a surgeon I met with said they were just another extraintestinal manifestation of UC. So uncomfortable. They will pass, I promise!

Posted 10/9/2009 7:58 PM (GMT 0)
For me it's the prednisone. Then only my chest sweats.
Posted 10/9/2009 9:52 PM (GMT 0)
I get them too.  Of course I am also pregnant and on prednisone, so kinda hard to say what causes what.  lol  I do sweat a lot easier than I used to but then I can be sweating and be hot and freezing at the same time.  not fun!
Posted 10/9/2009 10:20 PM (GMT 0)
I am blaming my current bout of nightsweats on the prednisone, but I have experienced them off and on since before I was diagnosed. I'm typically really cold, so I tend to sleep with a lot of blankets, but then I wake up covered in sweat. It's mainly my head that sweats, so my hair is always damp. Quite annoying really.
Posted 10/10/2009 1:12 AM (GMT 0)
Pred makes me have night sweats. I sleep with the window open, it is 30 degrees at night.
Posted 10/11/2009 1:11 AM (GMT 0)
pred gives me crazy night sweats. last time i was on it, i took it in the morning. no more sweats/insomnia.
Posted 10/12/2009 1:15 PM (GMT 0)
My night sweats were crazy until I started the pred. I was changing my clothes, and then having to sleep on a towel because the bed was soaked. Only started the pred 3 days ago (40 mg), and the night sweats have stopped.
Posted 10/12/2009 2:20 PM (GMT 0)
Are your male or female?

My second flare was quite severe. I got night sweats even before being put on prednisone. They were so bad I thought I must be going through menopause, but the night sweats stopped after I went into remission. So it wasn't menopause after all.
Posted 10/12/2009 11:44 PM (GMT 0)

I had several very bad night sweats when I was at the worst of my first flare, and this was before I was on Pred. The first time it was so bad that I actually thought I had urinated in my sleep. While on Pred, I have been having sweats more nights than not, but just from my head and shoulders. It seems to be getting less of a problem though as my health improves. My doctor thinks the sweats are associated with my UC.

When I was sicker, I also had issues with vomiting before/after BMs, which the doctor said was unusual but not unheard of. His main point was that there are complex reactions in the body and brain to UC that manifest in idiopathic symptoms (obscure cause) in different people.

The best advice he ever gave me though is that given the severity of my disease, if I'm sick in any way and especially if the symptoms are GI related, 99 times out of 100 it's going to be the colitis and I need to seek treatment for that rather than try to just deal with the symptoms directly. Not knowing this put me in the hospital - I thought I just had poisoning from bad street food.

Keith
Posted 10/19/2009 4:36 AM (GMT 0)
i started getting them when I started the asacol and my prednisone makes me shaky all the time
Posted 10/19/2009 3:00 PM (GMT 0)

Had night sweats long before prednisone.  I know they are not menopause because I am 69!  They are much better now that I am almost in remission.

ElaineNY

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