PB4...I agree with you....Here are my thoughts

I think it's about time that someone stands up a bit in here. If I'm thrown out over my comments...my email is

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Something tells me this may be the last time I'm on this site. I came out here a couple of months ago and was interested in offering surveys to help better understand this disease. I was told that I had to "ask the forum moderator" because it was a concern as to what my intentions were. The funny thing is , anyone can access this site and read the posts without even signing up so they can find out anything they want.....I was really annoyed by this, I thought to myself, geeze I have this disease wanna do some harmless and hopefully informative surveys and then I'm told that I have to ask for permission like a child asking if he can stay up late....We are adults in here and I strongly belive that there is too much bossing around going on here. Secondly, I have seen that when people such as PB4(who I agree with by the way) voices their opinion and says that certain foods are bad for you, and to be very careful...they are told not to tell other people what to do.... Let me make something clear, there are alot of newly diagnosed people who come out here and are very impressionable, as myself, and to have several people being told that they eat what they want and that food does not have any effect is irresponsible in comaparison to people saying that you should really watch what you eat.... When you are in remission, isn't the goal to stay in remission????? To say that you can eat whatever you want while in remission is completely wrong. There are foods that increase the amount of bad bacteria in our colons and will eventually lead to a flare up. I can't believe that people are being told that they can't say that certain foods are bad for you but the people who say eat what you want are free to say whatever they want. I do appreciate alot from what I get in here but unfortunately I see some people who are in a position of authority and are coming down hard on the wrong people. We have a disease that is severe...and for those who are not at the severe stage, eating the wrong foods can eventually lead to this. TAKE CARE OF YOURSELVES , PLEASE EAT ANTI-INFLAMMATORY FOODS, DON'T GET OVERCONFIDENT WHEN YOU ARE IN REMISSION AND EAT JUNK FOOD...STAY STRESS FREE BY ELIMINATING AS MANY SOURCES OF STRESS AS POSSIBLE....TALK TO A NATUROPATH, THEY ARE EXTREMELY HELPFUL...PRAY IF YOU ARE INDEED RELIGIOUS...EXERCISE, IT'S GOOD FOR YOU.....AND DON'T EVER EVER LET ANYONE BRING YOU DOWN OR TRY TO CONTROL YOU....THESE ARE MY OPINIONS, NOW IF YOU ARE IN A POSITION TO ERASE THIS POST , AND YOU CHOOSE TO DO SO....just please understand that I had only the best of intentions and was sick of some of the most sensible comments being criticized while misleading information runs rampant which can be extremely harmful for people who do not know any better. God bless everyone and what you read was about 2 months of frustration coming out.

Post Edited By Moderator (Lonie) : 11/4/2009 7:51:52 PM (GMT-7)

You just had to ask because those are the rules I believe... I haven't seen anyone being very rude to you. As for "To say that you can eat whatever you want while in remission is completely wrong." I disagree. I want to stress it depends on the person... some people can, some people can't. I was in perfect remission, the only thing threatening it is my birth control. Others can only control things through diet. That isn't to say I want you to eat anything during a flare... even I ate bland healthy foods out of precation and just added things as I went along. That also is not to say eat junk food... a healthy diet is better for anyone. Some people don't have a bacteria problem, some do. That's why you have to take everyone's advice with a grain of salt and act upon it as you see fit.
I don't think there's too much bossing around from the mods at all, I think they do a good job. I haven't seen them acting on the wrong people so far, or acting out of turn.
That said, when you get online in forums and chat rooms, people tend to be rude sometimes. Part of that is probably the anonominity (did I spell that right? lol)....
Good luck and I don't think you'll be kicked out. Hopefully this site can be a good place for you. Sorry for the novel XD

There is nothing wrong with saying that certain words are bad for our condition. The statement does not start an argument. The negative response does. Please, stop treating people in here like children and I didn't appreciate the statement about finding another room. I think the way you handled my comment contracicts what you say you are trying to avoid,,,,an argument. Once again, I am not a child, stop acting like you are my mom or something...please...like I said, had enough. And don't respond with "if you had enough of this room then go somewhere else." I like this room, I just don't like how some of the moderators handle ceratain situations,,,this being a good example.

When you signed up on Healingwell I'm sure you read the rules yes? And there is a very important DO that is stressed every now and then and that is:

4. Use good judgement. NEVER rely on information or opinions exchanged via the forums or chat rooms to replace necessary, personal consultation(s) with qualified health or medical professionals to meet your individual health or medical needs. Remember that what's right or has worked for one person may not be what's right for you.

The same can be said about diet. We are all different people and we all react differently to different things. It's like saying, "Wow, breathing this smog filled air doesn't bother me at all!" While an asthma sufferer can't take a step outside for fear of going into a deadly attack. Does that mean every asthmatic is going to go out in the smog filled air because someone said it didn't hurt them? The same principle can be applied to UC.

I didn't mention any names. Why are some people getting defensive? What is wrong with stating a fact....some foods are inflammatory foods and some foods are anti-inflammatory. Stick with the anti-inflammatory. What is so offensive about that? Why do some moderators take that as someone being confrontational? I wish everyone luck and unfortunately some people are taking what I say and only seeing the negative. It's kind of disheartening but I said what I had to say and am glad I did.

Pancolitis, when that happened we had a discussion and you indicated you understood the reason for the rule. Your posts were never edited, and no one was ever rude to you. Only later did you decide you had been treated badly, even though at that point you had been told the administrator approved your surveys.

I'm not sure what your upset is about, but if it's really about your surveys I don't understand it at all.

Smog comparison is not a good one. Because if you could avoid the smog, then as an asthmatic, you would probably be wise to do so. So basically you are saying, if something doesn't bother you , then no need to avoid it? What about if it is gradually bad for you? Shouldn't you avoid it then? Or should you just jump in there until it bothers you? Hmmmm.....that's the point I was making and what it all comes down to, is that people see that as confrontational because they are defensive. Maybe I struck a chord, I don't know. But I stand by what I say, and I see nothing wrong with it. By the way, does it really take this many moderators to react to someone who is saying that it is better to eat anti-inflammatory foods? I'm amazed....and the Yankees are clearly gonna win...lol. They're up 7-1. Congrats on the World Series but hopefully the Tigers will be there next year.

I don't believe I've seen a good study that proves people with UC must eat anti-inflammatory foods.

I'd hate to see how confrontational you would be if you didn't like it.

It's fine to say you believe some foods are bad. When you state theory as fact, and apply what affects you to everyone globally, you will inevitably have people who disagree. The moderators role is to keep the disagreements from becoming heated and affecting the atmosphere here. In doing so we're only following the administrator's wishes.

Fruitgirl, inflammatory foods will help heal the bowel as they are the opposite of foods that promote inflammation of the bowel. A study would be impossible as it would be unrealistic because people would cheat because most people lack the discipline or motivation to stay on such a strict diet. Talk to a naturopath , and they will tell you about anti-inflammatory foods. According to my specialist I have an extremely severe case of Pancolitis, so maybe I fall in the motivated category and I have been about as disciplined as I can be. Why does it seem like you think I'm directly talking to you Fruitgirl? I was not complaining about you, sorry you may have missed the whole point I was trying to make.

Unfortunately, some of the people have read my general comments and have taken them personally. I really think that I have been misunderstood here. I think it's wise to just end this discussion. I hope everyone is doing well.

I just disagreed because you said it was completely wrong. I have tried diet and it hasn't really helped me... I won't eat like a slob but I'm not making radical changes. I eat like a regular person. I wasn't being mean, just saying that this disease is individualistic like fruitgirl said. I never said not to watch what you eat, a while back I said, start with good colon friendly foods and if when you add something it doesn't agree, don't eat it. I guess the word you used that I don't like is irresponsible. I'm not being irresponsible.

I also had very bad pancolitis, U of M actually MADE time to get me diagnosed and I don't think they like making time for anybody lol. Anyways I was also motivated, I tried a lot of things, but for me, medication is the way to go. We accept what you say and it's like you didn't even try to get what I was saying. Anyways I'm done with this, I'm sick of arguments.

sheesh...get over yourself already pancolitisandfightingit. There's absolutely no need for back-patting when forum rules have been violated.

We are all here for various reasons and learn tons on a daily basis.

Food doesn't cause UC or flares but it can have an impact on how one feels. It's a trial and error and more of it all to get it all sorted out.

Some people will follow any advice, others will take it with a grain of salt or try and see if it works or not.

Not everything works for everyone and it's frustrating to see the struggles everyone is going through and being limited to help in any way since most options have been exhausted.

If you really don't want to be here and refuse to even bend a bit to rules of the forum then make a decision.

I've been humbled many a time and have a difficult time to ignore the ignorance, stupidity, rudeness and arrogance of some posts....some members and some moderators.

We have the best of the best on this forum....there is much to be grateful for regarding the magnitude of experiences and advice.

If you choose to stay, find your niche and try to be open that while a single theory may be the ONE that works for you, it may not work for all.

The polls were very interesting.....but very limited, for it was geared to a specific answer it seemed. If you opened them up to be unbiased, maybe they would have given more interesting results.

Hang tough through the learning curve.....you have much to share, but it's not the be all or end all. You can learn as well.

Respectfully,
quincy