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What does remission look/feel like?
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Ulcerative Colitis
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journey2health
Veteran Member
Joined : Oct 2009
Posts : 2885
Posted 11/5/2009 7:37 PM (GMT 0)
Is there a spectrum of symptoms that's acceptable or that can be called remission, or is it a complete absense of symptoms. What do we put up or not put up with and call it remission?
Newbie, tapering down pd at 20, saw bleeding last time at 10... doctor felt it wasn't the right kind of blood for him to worry too much. Jumped the gun, he said, got myself back on 40. When I had a flare there was no blood, it was just a spicket full force of brown water for 7 weeks, and misdiagnosed as C-Diff so I wasn't used to any blood. So blood completely freaked me out the first time on a taper and I had panic attacks and talked myself into a second taper, I guess.
Ellen
fruitgirl
Veteran Member
Joined : Feb 2009
Posts : 7164
Posted 11/5/2009 7:41 PM (GMT 0)
I'm one of the lucky ones (at least, of the ones on here) and have no symptoms now that I'm in remission. I have 1-2 normal, non-urgent BM's a day, and don't have any food problems that I didn't before (MSG and artificial sweetners). However, when I was flaring, I would have been happy with 5-6+ Bm's a day, so long as the urgency was gone. That was the thing I had the most trouble with...I wasn't really able to do much outside of work, because I was too scared to be too far from a bathroom. I was able to opt out of some work travel that I can't imagine having done when flaring. And, if it had been summer, when I have to be out in the field a lot, I'm also not sure what I'd have done.
quick14
Regular Member
Joined : Oct 2009
Posts : 48
Posted 11/5/2009 11:00 PM (GMT 0)
For me, I stopped feeling the little tingles I used to get in my abdomen prior to having to
rush to the bathroom. I didn't feel bloated or distended. My appetite came back as well
as my energy level. Plus my butt healed up!
Good luck.
Later...
Yavw
Regular Member
Joined : Feb 2009
Posts : 29
Posted 11/5/2009 11:19 PM (GMT 0)
I have just recently come into what I would call a remission with sulfasalazine, although its not what it was before having UC. But I've gone from going 5-9 times a day to 1-2, and little to no blood. The abdominal pain is very minimal too. But I assume it will continue to get better, I've only had this remission for about
a week and a half.
But when I was first diagnosed, I was given 40 mg prednisone and 4 asacol 3 times a day, and from that day on the problems completely went away, like I was going once a day, sometimes 1 every other day! Those were the days :)
journey2health
Veteran Member
Joined : Oct 2009
Posts : 2885
Posted 11/5/2009 11:31 PM (GMT 0)
All of you are so helpful... Sometimes GIs think you know more than you do... My flare was bloodless, 15 bouts a day with brown explosive water, no blood. So on a taper to 10 mg you can imagine how I freaked out. seeing it for the first time....
He's not worried about
that... I don't think that's a remission AT ALL... he wants me off pred. (plain and simple)
fruitgirl
Veteran Member
Joined : Feb 2009
Posts : 7164
Posted 11/5/2009 11:34 PM (GMT 0)
So your only symptom is blood? How much? Could it be from hemmies?
journey2health
Veteran Member
Joined : Oct 2009
Posts : 2885
Posted 11/5/2009 11:37 PM (GMT 0)
that's what he says? Hemmies.... but why wouldn't I have hemmie blood on steroids, on steroids it's just a wipe of the tissue, nothing in the water or clinging to the stool,
its so much more when the taper drops from 20 to 10... it's light blood though... if he told me that's what I have to live with, deal with it, then OK, but I don't think that's a remission....
fruitgirl
Veteran Member
Joined : Feb 2009
Posts : 7164
Posted 11/5/2009 11:44 PM (GMT 0)
Prednisone calms inflammation all over the body, so I can see how it could make hemmies better. But that's JUST a guess, so don't take too much stock in that!
Most GI's are ok with a smidge of bleeding. I'm not sure how I'd react to having bleeding all the time, though. I'd probably worry a bit as well. I know that people on here deal with a bit of bleeding quite often, and are happy so long as they don't have diarrhea, frequency, and urgency.
journey2health
Veteran Member
Joined : Oct 2009
Posts : 2885
Posted 11/5/2009 11:52 PM (GMT 0)
Thanks, so much, in terms of spectrum, it's making sense... I can now see what I can live with and what would be uncomfortable to intolerable...
darn, you guys are helpful. What would I do without you?
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