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Ulcerative Colitis
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Posted 1/31/2010 4:55 AM (GMT 0)
Just a quick question. I am new to uc and am experiencing my first flare up. The drs have me on the steroids and mesalazine. They also gave me tremadol for the pain but it doesn't seem to help much. The cramping is keeping me up at night and affecting me at work. Does anyone have any advice on how to deal with the pains or any other medications that work for you? Thankyou for any advice you have. Also the steroids seemed to help clear it up but today after a week or so of feeling better, the bleeding and cramps have come back. Is this usual or should I be concerned. In don't want to bother the drs if I don't need to.
Posted 1/31/2010 5:33 AM (GMT 0)
i'm using oxycodone and it works great
Posted 1/31/2010 6:44 AM (GMT 0)
im on oxycodone as well. (endone) and it does work for me.
Posted 1/31/2010 8:23 AM (GMT 0)
Thankyou for your replys. Do you take the oxycodone for long periods or only during flareups? As I am new to this I am not sure about how much pain to expect between flareups. Do you get the pain on and off without a full flare up? I am worried about dependance on painkillers but don't want not sleeping to affect been able to work. Thanks.
Posted 1/31/2010 8:42 AM (GMT 0)

I’ve had many bad flares with lots of pain since first being diagnosed and this is the first time I asked the doctor for pain medicine. I went into the hospital about 6 weeks ago and, wow, I never knew pain medicine could feel so good. I now know why it’s so addictive. So I’ve been taking this oxycodone (10mg) since that 1 week hospital stay. I am going into remission so I will give up the pain medicine soon; I’ll probably have to wean myself off it as it’s so addictive. But it works and I’ll never flare without pain meds again. It's allowed me to work and run errands where I would, in the past, have stayed at home. Anti-spasmodics or supplements never helped me but oxycodone halts the urgency too.

Posted 1/31/2010 10:55 AM (GMT 0)
I think I should go and see my general doctor again. The hospital did give me 5 days worth of oxycodene when I left. I went to my general doctor to get more pain killers and he gave me 10 days worth of 2x 50mg per day tremadol. I am new to dealing with doctors and got the impression that he thought I was trying to take advantage of getting drugs. This is so not the case as I needed to take 4 tremadol a day for the last 2 days just to be able to work, let alone sleep. I don't know if I should ask him directly for oxycodene or just use the tremadol if he gives me that? I just don't want to have to go to the doctor every week and be made to feel bad because I need pain relief. Hopefully it will settle down soon.
Posted 1/31/2010 11:44 AM (GMT 0)
I am experiencing the same thing. Really bad lower left sided ache, which is really intense after a bowel movement. Paracetamol doesn't touch the pain. It's really annoying as I have many important things going on in my life right now and I don't have the time to be ill!
Posted 2/1/2010 1:23 AM (GMT 0)
They spoon feed pain medication to you because it’s so addictive and so many take advantage. If you are truly in pain then just insist. You have to convince them that you are in pain and not seeking a drug to get high. My first 3 prescriptions after leaving the hospital were for 10 days worth. The third time I called the nurse for a refill she said the doctor wanted to wean me down from 6 pills/days to 4. I insisted that I was in too much pain for that and asked that she ask the GI again for a high dose. After some convincing I got what I wanted but it wasn’t easy. During my last office visit I told the doctor that I was still in pain and this medication allows me to work, it stops the pain, reduces the frequency and even though I realize it’s addictive I would like another prescription and I would like it for more than 10 days.” He asked if I ever tried anti spasmodics (those don’t’ help me) and wanted to know where the pain was. He asked how many pills I take a day. Just be honest and you should get what you need. He wrote me a prescription for 30 days of oxycodone and 30 days of valium.
You have to been assertive when asking for pain medicine and let them know that you are in pain and this medication helps you.
Posted 2/1/2010 1:37 PM (GMT 0)
Pain med junkies gave the rest of us, who really need it, a bad rap. Doctors can actually lose ther licenses if they prescribe addicting medications long term to people who use them just to get a high. So they have to be conservative and question your motive. I have used Darvocet in the past with success (I can't use anything that contains even a trace of codeine since I'm allergic) but I heard that Tylonel #3's work well too. Once your in remission, the use of pain meds should not be an issue because when you reach remission, you are practically like you were before getting Uc.

Have you ever tried anti-spasmodics such as Bentyl? I just recently added Bentyl to my med regimine due to IBS and it has helped with cramping tremendously. What about rectal meds?
Posted 2/1/2010 4:23 PM (GMT 0)
Another good benefit of Tylenol with codeine (Tylenol #3) is that it's constipating. When my GI was working towards diagnosing me (ie, running stool samples and such prior to doing a c-scope), he prescribed it to keep my diarrhea under control. I was having 15-20 really urgent BM's/day, and immodium and lomotil didn't touch it. The tylenol #3 actually slowed things down somewhat.
Posted 2/2/2010 3:23 AM (GMT 0)

fruitgirl said...
Another good benefit of Tylenol with codeine (Tylenol #3) is that it's constipating. When my GI was working towards diagnosing me (ie, running stool samples and such prior to doing a c-scope), he prescribed it to keep my diarrhea under control. I was having 15-20 really urgent BM's/day, and immodium and lomotil didn't touch it. The tylenol #3 actually slowed things down somewhat.

Same with the oxycodone. I go all day with no bm's, only having them if the pain medicine wears off (usually at night). At this phase of the game I would normally have 15 bm's a day.

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