Hello All - My post is primary intended for the UC mods - of which I used to be one here.

I will also post this on the Ostomy board so the mods over there may help me now as well.  The people on the Ostomy board helped me in way so similiar to here - and this odd friendship and love that I feel for those in both these rooms.

But I ask the mods for a bit more help please.  If you might petition Peter to open a new room/forum for my new medical concerns that have completely now overtaken my life.  Please, may I beg Peter to open a new room for amputation/amputees - or mobility impaired - I am not sure which is more appropriate.  To help seek out others who are facing the probable amputation of both my legs due to charkot disease.  It is different than having diabetic charkot, and the one or two people there who have been amputated.  There is a need for the same love compassion and support that pulled me through here with UC on a limb loss level.  Especially being in DC with all those brave soldiers coming home without limbs that I do PT with.

Is this something that is wrong or inappropriate to any mods who may remember to ask Peter for?  I would volunteer as a mod as I am having my 14th charkot surgery for limb salvage and they are going to make a decision soon whether to permanantly amputate my legs.  This is a heavy, and I ask this favor of you...and that of Peter to open his heart to our world on need and solace found here at healingwell.com.

Any help the mods who may remember me might make will be greatly appreciated...and to those who also may remember me, my wonderful wife says to say hello to all of my beloved here.

With all my love,

bob   

Bob,

Oh, I am so sorry you are still struggling.  I had hoped that once you had your ileostomy surgery that things would have turned around for you.  I will keep you in my prayers and I hope you get that new forum.

Sue

 Peter without being a mod anymore?  Perhaps I forgot that part of the room.

I do appreciate the support again from old friends, and those who may not know me that well, or at all.

In terms of the UC, I will say to the people here that the surgery is not a walk in the park, but you can get through it and put your own life in control if your UC was/is uncontrolled for years.  The hardest part for me to the UC crowd was the psychologolical impact of body image change - but I learned so much from going into the cancer infusion center for my remi imfusions.  There I met women of all ages going through breast removal, and I thought how similiar was this?  My wife is a dear, and she still loves me more than words can ever due justice to - and I her.  But it did make for an adjustment - in my headplace and not hers as much.  As males, I believe we are even more visually aware from a romantic perspective than women - and I think women because of their own concerns of breast surgery are able to be extremely supportive of this process.  This is true of my legs as well.

Although we don't romp the countryside the way we used to, we do still all the wonderful romantic things for each other, and that gets me through all of this as well.  The reading, music movies (mostly on Netflix) dinners and deep conversation are as strong as they ever were - when she looks at me she doesn't see a man with a bag, or man withour working legs/wheelchair bound - she sees the man she married still - and I can see than in her eyes -and that is God's biggest blessing to me.

We can get through this, and if surgery is a route that we must accept when that decision times comes, you will have the strength to get through, as I found through healingwell and beyond.By the way, the new appliances if you do have the surgery are so much better than they used to be with literally hundreds of options (Too many, as it was confusing at first).  But you can live with it and well if you accept your body image change.

I will post this over in Ostomies as well so they are seeing this - and thank you. 

With all the love in the world

bob

Thank you so much for your support.  And thank you MArty for the wonderful message.  I am glad you got our card - you are missed too.  I just saw Peter's message and although it disappoints me, I understand that we are sometimes unable to get what we want at the moment. 

I thank the mods here and wonderful people who supported me throughout the many years.  I hope to pop in from time to time - My next surgery is scheduled for April 7 being pushed back because of record snowstorms in my part of the country.

With all my love here to all - My best on getting through and getting by one day at a time.  To the mods again thank you and to Peter.

With love

bob