FRUSTRATED

I may be in denial about my disease, but I really don't think I have UC.

I know that soy and corn bother me horribly. As soon as I eat anything containing them, I can feel my stomach cramping up and then it rushes through my body and I have extremely bloody, watery diarreah. This happens within an hour or two after eating the offending food.

I have gone with two GI Specialists - because the first one was only pushing Imuran. NONE of their treatments have done anything.

My first dr originally put me on asacol. 4 pills 3 times a day. This did nothing.

He tested my inflammation levels and it is all normal. He has checked my blood and stool for everything under the sun. Celiacs desease, parasites, bacteria - you name it.  

Prednisone did nothing except turn me into a crazy B$%# and I don't know how my b/f stuck with me through it

I went to a new dr because the old one wanted to put me on Imuran saying that I was out of options.

He put me on Lialda and Bentyl. The lialda made me have so much gas that I could not hold it if I had to go. I had a few accidents- fortunately I was home when it happened. I would have died of embarrassment if I were out!

The Bentyl gave me extreme tachycardia. I could not even walk up my stairs without feeling like my heart was going to explode.

I had to stop taking both drugs because of these symptoms. I additionally stopped taking the asacol because I wanted to see what my body would do off all medications.

Since stopping all these, I have more pain in my gut. Blood in the same amount. Less gas and bloating as well as less urgency. Main problem now is PAIN PAIN PAIN.

This can't be UC! None of the treatments do anything, which makes all the dr's scratch their heads. None of my labs show that I have any problems!

yes I had a colonoscopy, but it showed no inflammation. It only showed that there was a sort of "road rash" looking portion of my intestine. Other than that they said it looked fine...

Road rash=inflammation, IMO>  I'd talk to your GI and get a copy of your colonoscopy report and the results of any biopsies they took.

My 1st symptom was blood in my stool. I was told I was to young to have anything wrong. The doctor checked my rectum and said it was just hemroids. I kept bleeding and then started with the emergency running to the restroom. I put up with that doctor for another year and 1/2 until I decided I'd had enough and changed doctors. The new doctor had me have a colonoscopy with a gasto. doc. because she said the other types of doctors do not know enough. Turns out I don't even have hemroids! Was your scope by a GI?

As far as the pain goes I have always had belly pain since I was in school the doctor told me it was just stress. Then as the years go on the pain has gotten much worse but it comes and goes and it makes no difference if I flaring or not. Some are so bad you get in the fetal position and scream, it's almost like a charlie horse in your abdomin. My doctor gave me vicodin for this and I take 2 pills together when these episodes happen. You have to be carefull not to take them unless you really need to since they are addictive and you can build up an immunity to them and they won't work anymore. I have also heard they can make your U.C. worse but I would always take that chance just to get rid of the pain since I would rather die than suffer those things.

It took me two years to get a diagnosis, i went through, hemmoroids, fissures,IBS, cdiff, possible paraisites, all kind of stuff before i ended up in the hospital and the GI who saw me then was like, its UC, thats what you have. he did a scope later and confirmed it.
I know that UC isnt food related, but certain foods cause some people more trouble. In general those are foods that are hard to digest, like corn, or broccoli, or dairy.
I was only able to eat a few things, while some people can eat anything they want.
My symptoms started with just some blood and i was still able to eat whatever i wanted, just would give me more gas. After a few months i started having pain, sometimes so bad i would be in a ball crying, i even went to the hospital once because it hurt so bad i actually thought my insides had ruptured. Went and by the time i got to see the dr, i had had abunch of gas and the pain started to go away. Dr looked for stuff and found nothing. I took meds too, but they never kept it under control.
Some people can control it with meds, some cant.