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Uc VS SSI

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Ulcerative Colitis
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Posted 3/2/2010 10:35 PM (GMT 0)
shakehead am new to this website and I have been looking online to find help. I have Ulcerative Colitis and I also think since I have been dealing with my Ulcerative Colitis since i was 15. I am now 22 and I think it has finally caught up to me, I am feeling more depressed and all I want to do is sleep. I bearly want to get out of bed.

smhair  I have been trying for SSI since Febuary 2008, for my condition and now it has become more and more of something I cant handle anymore. I believe that I am more stressed out along with being depressed, I dont really take care of myself on top of my own health.

 

skull  I have been told no so many times by SSI that I am sooooo about to give up. I work now but I cant handle the stress of it.I am currently forced to work because of SSI.

 shocked  I already was told how bad my Ulcerative Colitis is and I dont think I can work and worry about my health, I swear I keep thinking that all this stress is going to make me worest then I already am.

cry  I want to say that my life is not normal, not one bit. yes I am married but my poor husband is dealing with my constant mood swings, my depression and everything else. I am waiting to have my hearing set but I dont know what I show do?

confused  can anyone give me some pointers on what I should do??????

Posted 3/2/2010 10:44 PM (GMT 0)
Welcome to healing well.

What medications are you taking to control your UC. Are you applying for SSI due to depression or due to your UC symptoms?

If your UC is very severe, and no medications are working, I think you should strongly consider surgery. Most people who have it only wish they'd gotten it done sooner.
Posted 3/2/2010 10:49 PM (GMT 0)
I am taking Asacol HD 800 mg 2 tabs 3 times a day, and I might be taking humara if the asacol doesnt work on it own.

I have applied for my uc. I am waiting to go and see a mental doctor to see if its more then my depression, for all I know I could be bi-polar.
Posted 3/2/2010 10:51 PM (GMT 0)
also I thought about getting the pouch but I know there is a high risk of being on it for the rest of my life and it hasnt gotten to that point yet.
Posted 3/2/2010 10:58 PM (GMT 0)

robin midnight said...
also I thought about getting the pouch but I know there is a high risk of being on it for the rest of my life and it hasnt gotten to that point yet.

High risk?
Posted 3/2/2010 11:01 PM (GMT 0)
Once you have your colon surgically removed, you've either got the j-pouch or ostomy bag for life. So I don't at all understand what you're saying.

Honestly, based on what meds you still haven't tried, I think there's very little chance of getting disability for your UC.
Posted 3/2/2010 11:02 PM (GMT 0)
I mean its a 50/50 shot that the J-pouch will take or not. thats what I meant.

Dr-A said...

robin midnight said...
also I thought about getting the pouch but I know there is a high risk of being on it for the rest of my life and it hasnt gotten to that point yet.

High risk?

Posted 3/2/2010 11:17 PM (GMT 0)
Oh ok. I wouldn't give up the meds just because asacol didn't work. I would have given up many years ago if I only had that option.
Posted 3/2/2010 11:19 PM (GMT 0)
And I agree with Dr-A. Given what you've said you've tried, I wouldn't be considering surgery yet either. It sounds as if your UC is affecting you a great deal mentally, or perhaps you have another issue.
Posted 3/3/2010 5:00 AM (GMT 0)
brain fart....what's SSI?
Posted 3/3/2010 1:32 PM (GMT 0)
I believe that the OP is talking about social security disability. Robin, what other meds have you tried? Is Asacol HD the only med you have ever been on? Where in the colon is your Uc? Have you ever tried an immune suppressor such as Imuran or 6mp? What about rectal meds? Are you on anti-depressants?
Posted 3/3/2010 2:21 PM (GMT 0)
You understanding of jpouch surgery is wrong! There is not a 50% chance of failure. There is a 90% satisfaction rate. Truly any surgery for UC (perm ostomy, kpouch, or jpouch) is 1000X better than living on SSI!!! If you want your life back, if you want quality of life, predictability, and productivity then have surgery. You are way too young to give up.

Sue
Posted 3/3/2010 2:39 PM (GMT 0)
Yeah, my surgeon said it was pretty rare that someone would end up with a permanent ostomy after trying the j-pouch surgery. He has actually only personally had a couple times that it's happened.
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