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Nauseous and Lialda! Help!!

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Posted 3/8/2010 7:07 PM (GMT 0)
Does anyone get severely nauseous while taking Lialda?? Im on my 3 week of this new medication and I feel just awful!

I was so sick to my stomach a week ago, I thought I had the flu, but now today, Im hit with such nausea that I almost fall over. Plus having gone to the bathroom about 6 times already today..with a lot of blood and D.

Wondering how long do I give this medication before going back to Pentasa. I never got sick like this on it...

Any advise or experience would be greatly appreciated!!

Thank you.
Michelle
Posted 3/8/2010 10:12 PM (GMT 0)
I have not had any problems with Lialda making me sick but everyone is unique. If you are sure it is the Lialda I would call your doctor and ask to go back to the Pentasa. I don't think you should suffer more if you are reacting badly to the medication!
Posted 3/8/2010 10:49 PM (GMT 0)
Thanks thatfield. I did end up calling my GI today and they just called back instructing me to go back onto Pentasa. I was really hoping that a new med would do wonders for me, but it has done quite the opposite. Im happy to go back on Pentasa and take a few more pills. Im just bummed that I just had to spend $500 on a Lialda perscription and I have 1/2 a bottle left! Darn.

Wish I could donate them to someone. :)

Thanks.
Michelle
Posted 3/8/2010 11:22 PM (GMT 0)

I had the same issues w/ Lialda (nausea, anxiety, increased amount of BMs).  I started taking it at night and was eventually able to sleep through the side effects.  I've been using Lialda since November and then started also using Rowasa enemas in February.  It's been a long road but FINALLY in the past 2-3 days I feel really close to remission(WAHOOOOOOOOOOOOOOOOOOOO).

Sorry to hear you had to go back to Pentasa - hope you feel better soon!

Posted 3/8/2010 11:47 PM (GMT 0)
LIalda was one of the medications (all mesalamines)that gave me flu-like symptoms as well as increased UC symptoms most of the time.  I tried to "ride it out".  My doctor thought I did not try it long enough but NO WAY was I taking medications that made me worse!!  In the end - the day I quit taking it (not sure how long I took it - maybe a week or 9 days) I could barely get out of bed!

ElaineNY

Posted 3/9/2010 12:21 AM (GMT 0)
Good to hear everyone's experiences. I as well thought that I have not given it time enough to work since I only started it on Feb. 19th. But after almost 3 weeks, I can't stand feeling like this anymore.
Pentasa has gotten me through some flares..mine have always been pretty mild, but after starting this Lialda, I feel worse than I have in years.

Now time to start with Pentasa (my husband is picking up my persecription as I write. I think he wanting me off of this new med as much as I do! :)
Posted 3/9/2010 4:06 AM (GMT 0)
Lialda was a little rough on me at first for about two weeks but I decided to switch my dosage to night time right before bed, after I ate. That way, I would sleep through any problems. It works for me ... in fact, I went from my regular two pills a day to one pill a day as a maintenance dose (currently in remission) so my Rx lasts twice as long.

I always ask for samples before I fill a new prescription. And if samples are not available from my doc, I ask for two prescriptions - one for a week's supply of the medication so I can "try" it out without paying for a full month I may not use; and a second Rx for the normal prescribed length of time in case the Rx does work. I've saved hundreds of dollars over the years this way.
Posted 3/9/2010 1:46 PM (GMT 0)
Hi GusSent,
I have to say I am not throwing in the towel.
I read a LOT about Lialda on this site before I started it and did find the advise to take it at night and with food. So that is what I was doing.
I along with my doctor has decided that the my daily life quality was not worth going through this horrible yuck that I was feeling. I have 2 small kids and work from home (thankfully), so me being unhappy and miserable were not worth it. I was getting sick of myself complaining, I cant imagine my husband..although he's always been understanding.

I have gotten in remission on Pentasa and its never bothered me, I had just had a colonoscopy and I was totally out of my Pentasa, so my doc thought (and I wanted to) try the new med that was out. Well..now I know it's not for me.

And I think it is not for everyone..
Posted 3/9/2010 4:19 PM (GMT 0)
Michelle - I think that you are right to listen to your body and to your doctor. For me Lialda works but several of the enemas and suppositories do not. Each person is different. I can relate to wanting your family time and quality of life to be the best it can be. I do hate that you had to spend so much money on a prescription that did not work for you. That is the pits. I had to throw out a month's worth of cort enemas once and it was not fun! Hang in there and I hope you feel better with the Pentasa!
Posted 3/9/2010 5:38 PM (GMT 0)
Thanks thatfield! :)
I am always one to try things and never give up. But after having this disease for 17 years, I know my body. And if the Pentasa doesnt quite do it's job, then I look into prednisone. Bleh. Which is always my very last resort for my flares, but a small dose for a month or 2 has always worked.

Funny, I took the Pentasa last night and today already and feel better already. Perhaps its a state of mind thing too. I've always been a big believer of the power of the mind. To just try to be positive. This stuff can wear you down very easily.
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