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What are the symptoms of a real "Flare'?
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Ulcerative Colitis
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MIMIO
New Member
Joined : Apr 2010
Posts : 8
Posted 4/1/2010 7:39 PM (GMT 0)
I've been confused about
this for several years. Would love some feedback on the topic.
MimiO
quincy
Elite Member
Joined : May 2003
Posts : 33769
Posted 4/1/2010 7:43 PM (GMT 0)
a REAL flare is when one has consistent symptoms other than no symptoms which would be confirmed by inflammation.
All our flares are variable in symptoms. My flares now are different than what I ended up with when I was diagnosed and started healing and reflaring, etc.
What I may consider a flare, others may consider a blip. I treat my flares very early, others may wait it out until it fits their criteria of a flare.
The start may be increased mucus. The clincher for me is rectal throbbing and pain upon bms, urgency, gut spasming. Frequency is another, but that could mean one, then an hour later another and maybe the same later in the day or evening.
The key is consistency or increase of symptoms....intermittent to me doesn't mean a flare, that would be more connected to food or stress.
q
blksteeda
Veteran Member
Joined : Dec 2009
Posts : 1709
Posted 4/1/2010 7:43 PM (GMT 0)
I've been in a flare for almost two years now...I usually have lose BM's, some diarrhea, mucous, some blood, urgency and occasional cramping
juju0010
Regular Member
Joined : Mar 2010
Posts : 312
Posted 4/1/2010 8:03 PM (GMT 0)
I consider myself in a flare when I see blood.
KrissyUC
Veteran Member
Joined : Feb 2010
Posts : 971
Posted 4/1/2010 8:20 PM (GMT 0)
I am in a flare when I start going after each meal..thats the first sign..things loosen up as well and stools do not look formed and lots of undigested particiles..then everything else comes later...urgency, blood etc...fun.
songlady
Veteran Member
Joined : Aug 2009
Posts : 3840
Posted 4/1/2010 8:21 PM (GMT 0)
To me, a flare means increased frequency and mucus and/or blood. Increased frequency alone doesn't mean a flare to me if it's just for a day, because that could be a reaction to a meal or a virus, but if the increase happens for more than a day and has mucus and/or blood, I know there's inflammation.
journey2health
Veteran Member
Joined : Oct 2009
Posts : 2885
Posted 4/1/2010 9:28 PM (GMT 0)
I always wonder if I could stop it early or it's a done deal. Throwing everything at it might not work, and you could get an incredible amount of anxiety hoping it will work. Like, if you see the signs, do you immediately get on prednisone?
Quincy, nice explanation.
ellen
Peety
Veteran Member
Joined : Mar 2008
Posts : 2855
Posted 4/1/2010 11:52 PM (GMT 0)
I always had a little blood, so for me a flare was urgency and regular spasms (every 20-30 minutes or whenever I'm startled) that made me need to go, and lots and lots of blood and D. I can't say what my gut would look like, because my doc would hold off on scopes until I was out of a flare, so to not make it worse.
change is possible
Regular Member
Joined : Mar 2010
Posts : 90
Posted 4/2/2010 12:18 AM (GMT 0)
my dr told me a flare usually start with joint inflation
subdued
Veteran Member
Joined : Dec 2008
Posts : 3231
Posted 4/2/2010 1:19 AM (GMT 0)
Yah. For me too, a flare is when I see blood.
Since many of the symptoms for IBS and IBD are similar, it's hard to know otherwise. I could have had IBD much longer than my first flare, because I've experienced bloating, gas, and severe diarrhea for many years. I don't think I'll ever know.
quincy
Elite Member
Joined : May 2003
Posts : 33769
Posted 4/2/2010 7:13 AM (GMT 0)
Ellen....asking for pred? I'd avoid it forever, and my first flares took many months to even stop bleeding. Then during tapering I had to go back to nightly enemas, etc.
I would say dealing with flares depends on what one's expectations are. I don't like flaring nor would I ever wait as I did the first year...but that all happened because of the experience of learning.
Throwing everything at it.....again, to me that means start the enemas nightly. I pretty much would stay on them nightly for at least a month before even considering to taper.
Everyone is different obviously on various levels.
q
gingerdog
Regular Member
Joined : Oct 2009
Posts : 25
Posted 4/2/2010 7:46 PM (GMT 0)
Well, a flare for me starts with mucous, lots of gas and rumbling, increase in appetite and joint pain. Sometimes at this point I can get a flare under control on my own, without seeing my doctor. Once it gets to the point where I'm waking up at night with painful bm's, or I start having continuous rectal pain, or my stomach cramps worsen significantly, then its time to admit I'm in a full blown flare and its time to see my doctor -- probably for Entocort.
There have been many times that I thought I'd have to be back on prednisone for sure once I went to the doctor, but I was able to get things under control through diet, nicotine gum, bentyl, increasing metamucil, etc., just at the point I was ready to throw in the towel!
I rarely have blood during flares anymore. Just lots and lots of mucous!
Gingerdog
Dr-A
Veteran Member
Joined : Jul 2006
Posts : 2105
Posted 4/2/2010 7:57 PM (GMT 0)
As opposed to a fake flare? lol They are all real to those of us that have them.
songlady
Veteran Member
Joined : Aug 2009
Posts : 3840
Posted 4/2/2010 8:20 PM (GMT 0)
Dr A - LOL! Well, what's some confusing to me, even in one of the brochures from the ccfa they describe a single run to the bathroom as a "flare" - so that someone might say, "gosh, I had 16 flares today." Most of us here generally think of a flare as something that develops, gets treated and ebbs over a month or more (think of Q's remark about
being on enemas for at least a month - definitely, that's the way I address it....)
To me, a single urgent bathroom run could be attributable to rich food, an IBS attack, etc - it takes looking at the pattern of a few days. That's what I thought the thread question was asking.
Journey2 - I have not "thrown pred" at a flare for 22 years, and would like to avoid doing so ever again. I hit it with 5 ASA enemas and then cort enemas if the 5 ASAs don't squelch it.
trixi491
Regular Member
Joined : Mar 2010
Posts : 42
Posted 4/3/2010 3:36 AM (GMT 0)
How long do you find it takes the enemas to make your BMs blood-free? I started mine a week ago and def see improvement, but there is still blood when I wipe. Pre-enema I would sit on the toilet, pass gas, and blood would come out. 1 week into it I really only see blood when I wipe after a BM (but it is a lot of of blood on the toilet paper). GI wants me to take it for a month. From experience, how long does it take the enemas to make you totally symptom free, or at least free of blood?
quincy
Elite Member
Joined : May 2003
Posts : 33769
Posted 4/3/2010 5:56 AM (GMT 0)
All varies Trixi....you have improvement....that's good.
Takes time to heal....for me to see no bleeding the first year, it was a few months...nightly.
q
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